Autism Sunday is on Feb 13, 2011

By: Tiffany Tan, ASP Board Secretary

Autism Sunday is the International Day of Prayer for Autism and Asperger’s Syndrome. It is commemorated every second Sunday of February. This year, it will be observed on February 13, 2011.

Ivan and Charika Corea, parents of Charin, a teen-ager with autism, founded Autism Sunday. In 2000, both Ivan and Charika were instrumental in the Autism Awareness Campaign in UK, aiming for better services in education, therapies and greater public awareness about autism. UK declared the year 2002 as the Autism Awareness Year, with a major conference on autism and a historic service was held at St. Paul’s Cathedral, an Anglican church in London.

(Source: www.autismsunday.org.uk)

How to make Autism Sunday relevant in your local church?

1. Pastor Rick Warren of the Saddleback Church, one of the largest churches in California, USA, pledged to pray for over 60 million people with autism and Asperger Syndrome back in 2009. Ask your local pastor, priest or prayer partners to pray for children with autism and their family members who care for them.

2. Talk to your church pastor or priest to ask for accommodations for children with autism. Sunday schools or youth groups may also offer special lessons in a small group setting to accommodate their special needs. It is good to also volunteer your own services in the church where you worship, like offer to be the teacher aide in your child’s class, or custodian for Sunday school materials, or offer to distribute snacks to kids.

3. You may also involve older children with autism in church, like volunteering for them to arrange chairs in the fellowship, set up the computer and sound system, or join the worship leader during singing, or play musical instruments. Again, it will all depend on the child’s skill and the willingness of the church to accommodate your children’s needs.

4. If you have a loved one with autism, or a friend of a family member who has a child with autism, show your support by wearing the Angels Walk for Autism T-shirt during Autism Sunday, February 13, 2011. Show you care. Order now at 7-903-5496. Hurry, while supply lasts!

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What worked for Gabriel

By: Chelo Banal-Formoso

Chelo Banal-Formoso is mother to Gabriel, a 24-year old student with autism who is taking part in the Library Assistant Program at Centro Escolar University. He is currently taking a course on Children’s Literature.

Chelo is also the editor of Philippine Daily Inquirer’s (PDI) Learning Section. Her brother Conrado Banal, also a columnist of PDI was instrumental in paving the way for a more autism friendly mall environment in the Philippines.

Below are some of Chelo’s Practical Parenting Tips she gave as part of her testimonial together with other “super parents” during the Family Power Forum last January 21, 2011, at SM Skydome, North EDSA, as part of the 15th Autism Consciousness Week Celebrations.

1. Encourage language by asking him to “use his words”

2. Backward chaining in teaching him life skills

3. Placing him in an age appropriate regular classroom

4. Having a “Taking Notebook” with the teacher and with the tutor

5. Beginning with 2-hour attendance at start of school year, gradually adding an hour every week

6. Holding an autism awareness session in his class every year at school opening

7. Making partners out of his teachers and tutors

8. Taking advantage of every teachable moment

9. Teaching him to mastery

10. Allowing him to do what he enjoys doing – music, art, swimming, etc.

11. Making a decision to take him wherever we go as a family

12. Dressing him in the style the other guys of his age are wearing

“My prayer for Gabriel is different from my prayer for his sister. I ask that he may be healed, that, no matter how late in my life, I may see him open up to all that this world has to offer….” Click here to continue reading “Engaging Gabriel,” courtesy of Philippine Daily Inquirer.

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“Super" Families Share Hopes in Public Forum

By Tiffany Tan, ASP Board Secretary

The Family Power Forum was held at SM Skydome, North EDSA, Quezon City, as part of the National Celebrations of the 15th Autism Consciousness Week : “Autismo Paghandaan: Maagap na Deteksyon at Interbensyon Isakatuparan”. The event was in cooperation with SM Supermalls, SM Prime and SM Program on Disability Affairs.

Two years ago, Ms. Chelo Banal-Formoso, mom to now 24 year-old PWA Gabriel, suggested to ASP Chair Emeritus, Dang Koe, about having a Public Forum for Parents of Children with Autism (CWA). Through the perspective of parents of older CWA, other new parents get to collect nuggets of wisdom from their experiences.

ASP National President Grace Adviento as she gave the welcoming remarks

“Today, ASP is very fortunate to have with us “super parents”. As they share their stories, please get ready with your tissue paper, as I am sure, no one in this room will leave without shedding a tear. Also prepare to laugh, as autism is not always seriousness, as you will learn later, that parents also find a sense of humor in the trials and travails. Lastly, prepare to be inspired, from their many colorful experiences in their journey of Sharing Hopes and Building Dreams,” said ASP National President, Grace Adviento, as she gave the welcoming remarks during the Family Power Forum.

Super Families Deal with Tough Questions

Joining Chelo were other parents, Chrissy Roa, former Vice President of ASP National, author of Federic’s Flight- documenting Fedi’s story from birth to early adolescence; Evert Malapad, Trustee and President of ASP Metro-South Chapter; who gave up a promising career abroad to care for daughter Mae-Mae and last but not the least, ASP’s most sought after speaker-trainer, Dang Koe, and mom to Gio, who propels her to be a passionate autism advocate.

(Upper left side, clockwise) PDI Learning Section editor Chelo Banal- Formoso, ASP Metro South Chapter President Evert Malapad, ASP Former Vice President Chrissy Roa and ASP Chair Emeritus Dang Koe

After the forum, some parents approached the mic to air their own concerns regarding their children’s behavior. One parent related on having two boys with different special needs, (one with Downs Syndrome, one with Autism) and their therapies can be financially draining on the family. Concerns of other parents ranged from dealing with their difficult behaviors; keeping girls with autism safe from unwanted advances or abuse; and public or alternative education for CWAs. The panelists were able to give practical tips and encouraged them to also seek professional advice from specialists.

Encouragement and Courage

A single mom was very thankful for having found ASP, as she was searching to find answers to the “strange behaviors” of her two young boys, later diagnosed to have autism. “Nagpapasalamat ako sa ASP, dahil dito, nagkaroon ako ng pag-asa para sa aking mga anak.” She also found comfort from other parents and continues to equip herself with by attending ASP monthly seminars. This lady later becomes ASP UP-Camp Chapter President, Elizabeth Udquin.

During one of the ASP events last year, Maricel had an unpleasant encounter. She was pinched again and again by a teen with autism, who had a huge crush on her. Having no idea on how to deal with the situation, she left the event crying and locked herself in the ladies room for hours.

At first she was reluctant to volunteer again for ASP this year, but decided to come, after much prodding from her mom. She stayed all through-out the Family Power Forum and also joined the Free Seminar on Roles of Professionals in the Management of Children with Autism that afternoon. Maricel finally decided on her own to return to volunteer that Sunday for the Family Day Celebrations.

Are you an Angel for Autism? Send us your stories on how autism has touched your life. Email us at autismphils@gmail.com.

We would like to extend our sincerest thanks to our following sponsors: SM Prime, SM Cares, SM Program on Disability Affairs, SM City North EDSA, SM Skydome, SM City Fairview, SM Mall of Asia, The French Baker, Unilever RFM Ice Cream, Inc ,Transaxion Unlimited Corporation, Councilor Alfred Vargas, Ardex Motor Corporation, Long Life Bakery, Philippine Multimedia Systems, Inc. , Richard's Food Products, Pizza Pedrico's Food Corporation, GMA 7, Home Town Realty Developer,Inc., Palms Country Club, McDonalds, Rey & Peng So.

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Posted in: families,forum,nacw,parents

Pa-Raffle ng mga Anghel- 2 Winners

Congratulations to all the winners of the “Pa-Raffle ng mga Anghel- 2”. The draw was held during the ASP Family Day at the Skydome, SM City North EDSA last January 23, 2011

WINNERS OF CONSOLATION PRIZES

20 SM Gift Certificates:

1. Jennifer Solin, Quezon City (18303)

2. Marivic Rimano, Antipolo City (18332)

3. Wilma Manalo, Pampanga (09921)

4. Milagros G. Sabino, Bacolod City (10845)

5. Orfel Yu, Cagayan de Oro (09082)

6. The Learning Center, Parañaque City (00357)

7. Myrna Belardo, Albay (14279)

8. Bernadeth Malong, Marikina City (14776)

9. Janette R. Pascual, Dasmariñas Cavite (04042)

10. Marianne Grace A. Galingan, Ibaan, Batangas (17767)

11. Joenie M. Morales, General Santos City (15257)

12. Sharon Aliermo, Quezon City (04538)

13. Pauline S. Dimaculangan, Ibaan, Batangas (17886)

14. Analiza Yu, Zamboanga City (06035)

15. Joy Marybeth T. Calimbahin, Imus, Cavite (00516)

16. John Emmanuel J. Tero c/o JMJI (20076)

17. Klinika Medika, Hagonoy Bulacan (07080)

18. Anita Munallon, Ozamiz City (15299)

19. Mind Matters Christian Academy c/o Filemon Jutba of QC (05508)

20. Candida Arceo- Corpuz, Quezon City (00742)

Major Prizes:

10th Prize - (Microwave Oven), Reynosa Camposano, Naga City (11665)

9th Prize - (DVD player), Cirica Antalan, Quezon City (22621)

8th Prize - (Washing machine), Cresencia Obmerga, Quezon City (20616)

7th Prize- (Ipod Shuffle), Sherloyd P. Samon, Cornerstone Christian Academy (04542)

6th Prize - (Nokia Cellphone), Ryan Cayubat. Pasig City (05407)

5th Prize - (Canon Digital Camera), Daniela Marie A. Roque, Laguna (16760)

4th Prize - (Magic Sing), Leila H. Villar, Caloocan City (09533)

3rd Prize - (Refrigerator), Jandell Joseph T. Dellosa, Bulacan (07017)

2nd Prize - (1unit LED 19”TV/monitor), Aileen Ogao, Divine Word College, Legazpi City (14224)

1st Prize - (Samsung Laptop computer), Frances Gloriene Hoy, Cagayan de Oro City (09147)

Please bring the WINNING RAFFLE STUB and 1 Valid Identification Card to claim the prize at ASP Office, Room 307 ML Building, #47 Kamias Road, Quezon City or call 7-903-5496 for details.

ASP would like to thank all its generous donors and for supporting the

PA-RAFFLE NG MGA ANGHEL-2!

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ASP City of San Fernando Pampanga Chapter's FSG meeting

ASP CSFPC will be having Family Support Group meeting (FSG) with ASP Vice President Peng So, our Facilitator this coming February 05, 2011 at Crownvale Learning Center located at 2 E. Aguinaldo St. Kalayaan Village Quebiawan City of San Fernando, Pampanga. Limited for 15 slots only so hurry up!

Momie Peng with sons
Patrick and Angelo

Peng is another woman who wishes to be low-key yet, when she speaks, her intelligence provides an ironic twist. Having a full-time job as a stay-at-home-mom, tirelessly searching for the latest literature on autism and recipes, this bio mom makes sure she’s on top of her boys’ IEPs and well-being. Patrick, now 20, is a celebrated science and math wizard who WAS offered with tempting scholarships from the country’s leading universities. He is now enrolled in the Ateneo De Manila University taking up BS Life Science and wants. to become a scientist. Her youngest, Angelo is 13 years old and already an aspiring performing artist. Peng empowers her sons and accepts the challenge to defy logic and topple neurotypicals.

For reservation, pls contact Ms. Joy Ofrecia at 0922-854-3574.

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What’s the next step for my teen with autism?

By: Dang Koe, ASP Chair Emeritus

Doing crochet

My son Gio just turned 17 this month. He has autism. When it comes to handling teens with autism, some parents may get frustrated and confused. What we need to understand is being a teenager is, in itself, challenging. And being a teen with autism is a bigger challenge for parents. Adolescence is a stage of changes and transition. Due to their limitations, teens with autism face greater challenges and need extra help to function more effectively in different settings. A collaborative effort among professionals (physicians, educators, allied health professionals) and government and non-government organizations is necessary to ensure they achieve successful transitions in life. This week’s Angels Talkers Raina Stella Reyes, Joan Dominique Go, & Anna Louisa Tiu are licensed occupational therapists from TW Community Enablers Inc. TWCE recognizes that adolescents with different abilities have the capacity to reach their fullest potential in valued, integrated, and safe life settings.

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An occupational therapist (OT) can assist teenagers with autism to lead meaningful and productive lives. OTs can help them participate in everyday activities, whether it be at home, in the community, at work, or in leisure pursuits. For teens with special needs, OTs use practical activities to teach skills so that teens may function in natural settings. Through simulations and practice, discussions, modifying activities, and/or breaking down tasks, OTs can teach teens to attain optimal independence.

Changes and challenges Among the first changes teens will begin to experience are the physical ones. For boys, their voices will sound lower and facial hair will begin to grow. They will begin to wonder why they are suddenly taller than all their female classmates, and why they seem to smell different after gym class. Girls will have their first menstruation, begin to notice that their breasts have enlarged, and they may become more conscious about the pink dots that begin to appear on their faces. Teens with autism, particularly those with sensory processing disorder may perceive growth of facial hair as irritating. For female teens with autism, the use of a sanitary napkin can be exceedingly uncomfortable. Preparation is the key in ensuring that the teen with autism is able to handle these changes. As early as pre-teens, boys with autism can be stimulated around the face (around the cheek and chin area) using a towel or a sponge cloth to reduce irritation due to growth of facial hair. Pre-teen girls with autism can also be asked to wear sanitary napkins or panty liners for a few hours per day in anticipation of the onset of menstruation). Your teen will also be developing cognitively. Teenagers begin to have a better understanding of abstract concepts. Thus, parents need to be equipped with answers to questions that dwell around topics such as love, respect, honesty, faith, and nationalism. At the same time, teenagers still have a tendency to demonstrate a form of egocentrism that leads them to believe that everything happens only to them. This leads to other emotional and behavioral changes that make them appear rebellious, aggressive or, at times, overdramatic. For teens with autism, they have limitations in understanding subtle social cues which become imperative in establishing mature relationships. They are also concrete learners, making it difficult for them to understand abstract cues, such as “respect” or “responsibility”.

Teaching abstract concepts and social skills To help the teen with autism understand abstract concepts, the OT usually teaches these concepts in the context of everyday situations in different settings and with the use of visual aids. For instance, instead of simply defining the term “respect”, the teen with autism is shown pictures and/or videos of instances and circumstances in which respect was demonstrated and not demonstrated (e.g. using a normal tone of voice as opposed to answering back and raising one’s voice when talking to parents).

Stories may also be used to clarify abstract concepts. Psychoanalyst Erik Erikson regards the period of adolescence as a tug-of-war between identity and role confusion, and more often than not, adolescents tend to derive their identity from their “barkada” or their constant group of friends. Adolescents feel the increased need to belong and tend to succumb easily to peer pressure. Their physical and social environment also expands from being confined to their home and school, to attending parties and hanging out with friends. Teens with autism may have difficulty in understanding the difference between private and public places. Also, given the misconceptions regarding disability, they also face increased difficulty in adapting to the norms of society, and have to work harder to be accepted and loved by a peer group. This is the reason it is necessary to help the teen with autism identify why it is important to interact with others and to teach them social skills. There are many teens with autism after all who do not socialize with others only because they are aware that they are not as adept as their peers. Simulations and practice can initially be done to train this; sessions can be videotaped to help the teen with autism see how he acts, what he did correctly, and what he can improve on. The teen can later on be placed in situations where he needs to apply these skills (e.g. introducing him to a new person, making him join a club or organization, organizing a day or nigh out with him and his classmates in school, etc.).

Teaching them to deal with problems Most teenagers resolve conflicts on their own, but teens with autism and other special needs are faced with even greater challenges. More often than not, teenagers with autism can only act on a problematic situation that they have already experienced. When faced with a new one, their responses are usually either inappropriate or ineffective (e.g. would cry, throw tantrums, or panic). In order to help them, teens with autism can be taught to systematically solve problems (that is, in a step-by-step manner). This can be done through the use of worksheets, videos, and/or pictures where the teen with autism is helped to identify problems and come up with solutions to problems. Simulations and practice in real settings can also be done to assist the teen with autism handle conflicts or problems effectively.

Teaching responsibility and independence Finally, recognizing that adolescence as a period of increased responsibility and independence, adolescents are faced with the added challenge of adapting to new life roles beyond school. The OT, in particular, builds on the skills teens already possess such as counting, letter identification, basic reading, basic computation, etc. For example, instead of counting objects, the teen is taught to recognize and count money in preparation for grocery shopping. Instead of reading a set of words, the teen with autism is guided to recognize road and/or street signs to help him/her go around the community or a new place (e.g. when on vacation) safely. Their occupations (defined as valued and meaningful activities) evolve from simply playing and studying, to planning on how to save their weekly allowance, learning how to drive, forming mature relationships, and applying for college. While most teens have the freedom to select what “they want to be when they grow up”, the options for teens with special needs in our country are limited. Although, RA 7277 (The Magna Carta for Persons with Disabilities) states that “no PWD shall be denied access to opportunities for suitable employment” a large number of adults with disabilities remain to be unemployed due to both a lack of training to achieve the necessary skills and the lack of awareness and opportunities for employment. OTs can also evaluate work potential and train work skills of teens with special needs to give them a fair chance at employment and also to explore their work options.

Equipping the teen with autism Ideally, pre-teeners (10-12 years) and teens with autism are prepared for life after school; and those who wish to attain skills to improve performance at home in the community, in leisure pursuits, or at work. OT evaluation includes looking at the teen’s adaptive and everyday skills, interests, work-related and work skills. Long term goals are developed in coordination with the teen, the parents, and other valued members of the immediate community. Training is conducted on an individual or group basis (depending on the needs of the teen) in any or all of the following areas: Home, community, leisure, and/or work. An ideal setting will be a simulated office, a library, a bedroom, and a kitchen which are necessary for teens to learn how to function independently in different settings. To help the teen with autism assimilate, the teen can be taken to different establishments, such as restaurants, banks, and stores that will allow for practice of community skills in their actual context. The main goal of occupational therapists is to help the teen with autism become independent and contributing members of society, by providing them the guidance needed to successfully attain important and life-changing milestones.

Uploaded with Permission Acknowledgement to Manila Bulletin: What's the next step for my teen with autism?

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Autism Society Philippines thanks all its members, volunteers, partners, supporters and sponsors for the successful nation-wide celebration of the week-long 15th National Autism Consciousness Week from January 16-23.

Thank you, angels!

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New therapy options via TheraPinoy

By: Dang Koe, ASP Chair Emeritus

The last two months of 2010 spotlighted three centers for differently-abled children: the inauguration of Shine Intervention Center in Pasig, the Atty. Jose Miguel T. Arroyo Developmental and Behavioral Studies Unit inside Philippine General Hospital; and the re-dedication of Quality Life Discoveries in Quezon City. Filipinos can be proud that all three centers have world-class facilities. For parent advocates, we are happy that families dealing with autism and other developmental disabilities now have more options. We are even happier that even the marginalized families can avail of these services through TheraPinoy. Let our Angel Talker this week explain new therapy options and TheraPinoy. She is Raina Stella Reyes, an occupational therapist who graduated from the College of Allied Medical Professions, University of the Philippines. She holds sessions in private centers such as the Quality Life Discoveries in Quezon City. Teacher Raina serves as adviser to the Occupational Therapy Students Assembly, the umbrella organization of OT student groups from various universities nationwide.

* * * * *

If you are a parent or a family member of a child with autism, you must have typed the keywords “treatment for autism” in the Google search bar at least once. It is also certain that the minute you pressed “enter,’’ you were somewhat overwhelmed by the more than 10 million hits you received by just typing in those three words. If you narrow it down to only “pages from the Philippines”, you get 8,000 hits, which still does not make it any easier to select the best available course of action for your child. The things we know about autism have greatly evolved since the diagnosis was first described in 1943. But a large amount of information still waits to be uncovered, specifically relating to what really causes these changes in our children. If you have ever spent an hour with a group of children with autism, you will realize that despite the similar diagnosis, each child is unique. Each has unique behaviors, weaknesses and strengths. Thus, it comes as no surprise that evidence for treatment options for children with autism has been so difficult to generate. The same can be said about services provided to other children with special needs, such as cerebral palsy. Back to basics: What is occupational therapy and how can it help your child? The World Federation of Occupational Therapy (2004) defines occupational therapy as a profession that is "concerned with promoting health and well-being through occupation. The primary goal of occupational therapy is to enable people to participate in the activities of everyday life”. At present, majority of Filipino occupational therapists (OT) are involved in pediatric practice, with clients that include children with physical and psychosocial disabilities, such as cerebral palsy and autism spectrum disorder (ASD). The goal of an OT is to educate and guide clients in acquiring or rehabilitating the skills necessary for self-care activities (e.g. feeding, bathing, dressing), education, work, play/leisure, social participation, and other necessary life skills (e.g. buying from a store, using public transportation). Common approaches OTs use in order to ensure maximum function include behavior management techniques, sensory integration activities, cognitive-behavioral approaches and developmental skills training.

Contemporary therapy options •Aquatherapy.

The beauty of aquatherapy is that it chooses no one. Clients across all ages and various types of conditions have gained several benefits from simply being in the water. More so for children because swimming in a pool filled with toys can be an exciting and rewarding experience for them.

Nicolo swimming

Aquatherapy is recognized as a widely used treatment for children with cerebral palsy. The physical properties of water are used to allow for improved performance of exercises and different movements that would not usually be possible on land. With each new posture or movement clients accomplish, self-image and self-esteem are also improved, in addition to several motor gains. Commonly used aquatherapy methods in the country include the Bad Ragaz Ring Method, the Halliwick Method, and Watsu (Water Shiatsu). These methods are all capable of improving strength, flexibility or reducing spasticity in children with cerebral palsy or adults with stroke. Jilliana, a child with global developmental delay, experienced difficulties in holding her head, rolling over, crawling, sitting and walking. She initially demonstrated poor work behaviors and a short attention span during activities. She was also very resistant to instructions given by her therapists and would cry throughout the session. After months of receiving aquatherapy, her family and developmental pediatrician began to note positive results. Crying has decreased as she has learned to enjoy her sessions, and she has become more exploratory, open and active in activities both within the pool and in her home environment. Her mom proclaimed that the skills she gained through aquatherapy shine the most and can be considered as some of her best skills.

• Oral-motor therapy.

Children with physical and psychosocial disabilities have been found to experience difficulties both in feeding and speech, due to muscle weakness in the oral-motor (OM) area, tactile hypersensitivity around and within the child’s mouth, etc. OTs and speech therapists use tools such as vibrating toothbrushes for proprioceptive stimulation and muscle activation. They can also use bubbles and horns to provide children with actual experiences of creating sounds and using the muscles of the cheeks and tongue in activities such as blowing. Nicolo, a child with autism, was often observed to drool profusely. His shirt, the table, and even the floor would be wet after sitting in one area for a period of time. After undergoing the OM therapy, he had remarkably better oral motor control, his cheeks and lips were strengthened and his drooling eventually ceased.

• Multisensory environment.

Sensory integration (SI) allows children with sensory processing concerns to develop adaptive responses to stressful or unfamiliar situations. This is by providing them with the sensory experiences they may be avoiding or seeking.

Multi-Sensory Environment

The Multi-Sensory Environment (MSE) is a room that is specifically designed to control and adjust the environment to the child’s sensory needs. It contains technologically advanced equipment such as light projectors, audio systems, fiber optics, aromatherapy, swings, as well as toys and surfaces of different textures and uses. Nicolo also experienced several sensory processing concerns. His parents found it difficult to bring him to malls and gatherings, and he did not feel comfortable going almost anywhere. During his first OT-MSE session, he stayed by the door the whole time. After a few minutes, he would take a few steps inside and would look at things more avidly and even attempt to touch things. As he progressed, he learned to explore and be more at ease with his environment. The feeling of security and safety in this environment allowed him to cope and adapt better to his sensory processing difficulties. At present, he accompanies his parents almost anywhere, and he is more comfortable learning and exploring his surroundings.

• TheraSuit.

The TheraSuit is a soft, dynamic orthotic that was designed by PTs Richard and Izabela Koscielny, in 2001. It is meant to provide adequate vestibular and proprioceptive input to children with motor difficulties. Such inputs are for decreasing inappropriate postures and pathological reflexes, and allowing them to experience appropriate movement patterns. Kiss is a child with cerebral palsy hemiplegia. According to her mother, the best thing Kiss benefited from the TheraSuit is that she is able to maintain a cross-sitting position without any difficulties. She also demonstrated improved behaviors, such as increased patience during therapy sessions.

Facing the facts:

TheraPinoy Financial concerns are among the top reasons children decide to drop-out of therapy programs or fail to receive therapy services as early as possible. According to the Department of Education, the universal estimate of children with special needs reaches a total of 5.5 million, and only close to 160,000 received special education services from schools in 2005. Given that a significant number of these children also belong to families who live below the poverty line, it can be expected that even less are able to afford quality services, such as occupational, speech or physical therapy. As a response to the growing need for excellent yet affordable therapy services, Quality Life Discoveries, Inc. has recently launched TheraPinoy: Gawad Therapy para sa Batang Pinoy. Funded through the kindness of Tasco, Inc. and Spira Sales Corporation, the center will be providing scholarship grants, initially to deserving children with physical disabilities to help them achieve maximum quality of life; empower and provide hope to their families; and contribute to society as a whole by increasing awareness and hopefully inspiring more initiatives for such programs. Moreover, the Quality Life Discoveries launched its research program in cooperation with reputable research groups in the field of medicine and rehabilitation. This initiative is to promote the center’s objective of evidence-based practice.

For more information about the Quality Life Discoveries’ service, charity and research programs, you may visit it online at www.qualitylifediscoveries.com

Uploaded with Permission Acknowledgement to Manila Bulletin: New Therapy options via TheraPinoy

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Building Dreams at the ASEAN Autism Network

By Grace Adviento, ASP National President

Flying for a weeklong workshop and conference excited me as I looked forward to having a large scale Family Support Group with co-parents from other countries. Together with my travelling companions, Ranil Sorongon (ASP Executive Director) and Riza Cansanay (ASP Laguna Chapter President), we headed for Bangkok, last 13-17 December 2010.

ASP Executive Director Ranil Sorongon (2nd from left), ASP President Grace Adviento (6th from left) with the other AAN participants

The first ASEAN Autism Network Workshop and Congress was held in Thailand, the host country, with participants are from Brunei, Cambodia, Indonesia, Laos, Malaysia, Myanmar, Singapore, Vietnam, including representatives from the Asia Pacific Center on Disability (APCD).

APCD, with its center located in Bangkok, is endorsed by the United Nations Economic and Social Commission for Asia and the Pacific as a regional center in line with the Biwako Millennium Framework’s action towards an Inclusive, Barrier-free and Rights-based Society for Persons with Disabilities in the Asian and Pacific Region.

The first 3 days were devoted to the Workshops for the Capacity Development of Self-Help Organizations, which was organized by (APCD), in collaboration with the Association of Parents of Thai Persons with Autism (APTPA). On the fourth day, the ASEAN Autism Network (AAN) was formally inaugurated and henceforth the signing of the ANN constitution.

ASP Laguna Chapter Riza Cansanay (in green) during her discussion

Not knowing what to expect, from the room filled with about 30 people, I listened intently to the representatives from 10 countries and began to understand their plight. At the workshop, representatives gave Situational Analyses, reporting on the different challenges encountered, the current statistics on people with autism, existing local laws for persons with disabilities, collaborations between groups and organizations related to autism, as well as the Definition of Autism is in their respective countries.

To achieve the ultimate goals, the workshop aimed to achieve three main activities for persons with disabilities: (1) Networking and Collaboration among government and non-government organizations, as well as the private sector to support persons with disability, (2) Human Resource Development through training of PWD work-related and (3) Information Support for All.

From all the information gathered, autism advocacy still plays a big role with primary concerns pointing towards funding, accessibility and affordability of services, which are very basic. What struck me the most was the willingness of the other country representatives offering to help each other, even though they too have their own local concerns.

This experience not only allowed me to enrich my knowledge on ASEAN’s Diverse Culture, it also made me realize that one of the key factors facing autism is the struggle of families.

Each year in our country, families, schools, centers, professionals, friends and supporters from both from the government and non-government organizations converge for the annual Angels Walk for Autism. The celebrations continue to grow bigger and the Autism Advocacy, brighter.

As we continue to share hopes with our fellow country men dealing with autism, we equally build dreams for the future of our children, together, hand in hand with the ASEAN Autism Network.

According to our Chair Emeritus, Dang Koe, “Ang ASP ay KSP o Kulang sa Pansin.” At oo nga, napapansin na nga tayo. Maraming salamat.

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Posted in: aan,international,intl

Fulfilling a Special Purpose

By: Joy Nerona-Ofrecia, ASP City of San Fernando, Pampanga Chapter

No amount of words could express how hard and painful it was when my eldest son, Juris, was diagnosed to have mild autism at age two. That was October 2001, but thanks to the Lord’s unbelievable strength and power, He made it easier for me to accept my son’s condition. I believe that the Lord has given me a special purpose to fulfill: for me to take care and love Juris better, more than anyone else.

A 11-year old, Juris currently studied at Independent Living Learning Center.

With that special purpose, I prayed for wisdom to expect great things from Him; for I believe, nothing is impossible with God. So, I decided to forgo what should have been a normal life and focus on helping Juris be the best that he can be – to reach his full potential, be independent and productive.

During the first four years after diagnosis, I learned that money is not all that will give us hope. Although our family resources were stretched, we enrolled Juris in special education, speech and occupational therapies at Bulilit Pleyskul for two years and at Cahbriba Autism Center for another two years, both in Laguna. For his other needs, we availed of the Thera-free Program, courtesy of UP-CAMP. In 2006, we decided to move to Pampanga to fully implement his Home Program.

Last October, I attended the 2nd Regional Autism Conference, Cebu. The speakers talked about contributing factors that lead to the significant progress in the lives of children with autism. I could not discount the value of early detection and I realized from the conference that there were some areas that I might have missed out in Juris’ early intervention. But, according to the speakers, it is never too late. Although difficult, it is still possible.

Most of the speakers also stressed on the importance of parent training. I took up MA in Special Education to augment the valuable knowledge gained from the shared experiences of other parents, sought occasional consultation with professionals, and attended various seminars and trainings. I continue to educate myself about autism and remain involved in his education. My son’s intervention program also never stops evolving.

Another contributing factor is an ideal educational setting. At the present, Juris attends Independent Living Learning Center in Mandaluyong City, for pre-vocational and socialization activities. Juris is now eleven. His interest and skills are in the use of the latest computer gadgets, which can be overwhelming. He reads and communicates satisfactorily; though he continues to exhibit some challenging behaviors.

And lastly, family involvement. Our children (with autism) may remain living with us, during our lifetime, so I continually keep myself fit for my son. Nine years have passed since the diagnosis, and I can not overemphasize also, that we should have consistency in implementing programs at home, and involve the members of the family (like siblings/other members of the household). This has become very vital to Juris’ success in attaining independent living skills.

There is another realization that occurred to me. In my continuing faith walk, I have recognized that everything that happened in our life’s journey happens for a bigger and wider purpose. I realized that I am not only mom to Juris, and of course, to Patricia; but also to other children with autism. So, I have decided to help other families dealing with autism. To accomplish this, I embraced the responsibility of being an advocate for autism by spreading awareness and fighting for autism rights.

Eldest son Juris and Super Mom Joy

To all parents of special children reading this, as you go on the journey with your child, I want you to keep meditating on some questions below. Change your previous answers if you have to. What is important here is that you should be able to evaluate yourself, whether or not you are FULFILLING the SPECIAL PURPOSE you were created for:

1. What are your specific goals for your child?
2. Are these goals realistic?
3. Are these goals based on what you want or on your child’s needs, strengths and weaknesses?
4. What are your plans to achieve these goals?
5. What do you need in order to implement your plans?
6. How will you ensure that these goals are achieved?
7. How far could you go in order to ensure your child will realize the best of his potentials?

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Applying for PWD ID in Pasay, a UNICEF Child-Friendly City

By: Mirana Medina, Autism Film Maker

Mirana Medina is the film-maker behind ALYANA, the first Filipino digital documentary on autism. The subject matter of the film is her grand-niece and the rise of autism awareness and advocacy in the Philippines. The article below is posted with permission from the author.

December 22, 2010. I tried searching from the National Council for Disability Affairs (NCDA) Website the application form for Person with Disability Identification Card (PWD ID) for downloading purposes so that I could apply for Alyana’s ID—my grandniece with autism— that will give her the same rights and privileges as the senior citizens, but I could not find any.

I had to personally meet Cristy Castañeda, focal person for PWDs here in Pasay to get a copy. I learned from her that only one resident from our barangay is registered. I was surprised. I know that there are other PWDs in our area so I got extra copies for them, only to find out later that there are more children with disability other than those I knew of.

Since I needed more copies, I just scanned the original copy that I got from the Department of Social Welfare and Development (DSWD) office and used it. They were accepted when I filed them yesterday. I was very happy to finally get three more IDs (for the other PWDs) aside from Alyana’s, with the necessary booklets (for groceries and medicines) that they will use to enjoy their benefits. Thanks to Cristy of Pasay DSWD Office and the rest of the staff for being so accommodating!

I am happy to learn, too, that UNICEF categorized Pasay City as a Child-Friendly City. Incidentally, I was given a copy of a proposed ordinance on “… providing for child survival, development, protection, and participation, and establishing a comprehensive children support system in Pasay City…” for some suggestions if I had any. I browsed it and I believe that the Non-Handicapping Environment (NHE) concept should be injected, and BP344 should be stressed since that law affects all PWDs not just the adults. If the Pasay City Council is really bent, serious and sincere in keeping a Child-Friendly City, then they should consider the implementation of the Accessibility Law in the whole city as soon as possible. There was no mention of BP344 anywhere in the said proposed ordinance. It is just good that they are passing it around to concerned individuals for suggestions and additional ideas. For that alone, congratulations!!!

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To all Universities and Institutions who are requesting for Alyana Film Showing, you can call the ASP National Office at 7-903-5496. Or send us an email at autismphils@gmail.com

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PWA, Thriving with Excellence

By: PWA David Michael Lopez, ASP Laguna Chapter

David Michael Lopez, aka Kitt Lopez, is a graduate of Bachelor of Arts in Communication from the Lyceum Institute of Technology Makiling, Calamba City. He currently works in ASP Laguna’s Autism Resource Center. He regularly contributes articles to the chapter’s newsletter.

Mr. David Michael Lopez

As we enter the year 2011, I recall the time that I was a trainee in Autism Resource Center (ARC) of ASP Laguna Chapter, in the year 2008. I typed portions of the book about autism-related issues with co-worker, Michael Cansanay, who also has autism. During the Yuletide Season, I made “Angel” Christmas decorations, using assorted beads of different colors. I also participated in workshops on the production and processing of meat products, such as tocino.

The year 2009 was also a fruitful year because I stepped into greater heights from becoming a trainee into a full-time apprentice. I met new trainees and reunited with my former schoolmates from Cahbriba Alternative School Foundation. (More than half of the trainees came from CASF’s Special Education Department). I did various assignments in preparation for the real world of work, clerical work like photocopying and typing documents; sorting and collating of various files, and also messengerial work. I also worked in the production of paper bags, and paper briquetting.

At home, I performed household chores such as washing of dishes, sweeping floors, and arranging of beddings. I attended gym classes at Ma Gym Fitness Center. Sir Paolo Aquino, who served as my personal trainer, gave me exercise routines and introduced to me various gym equipment like treadmill, stationary bikes, weights, and dumb bells

“Gimik Night” and “HOME Life” were my two most exciting activities to date. In Gimik Night, we went to LB Square for a gimmick night and stayed overnight at the ARC, while at HOME Life (Harnessing Options in Managing Everyday Life), we rented a house for one week and tried to experience living independently away from our respective homes and parents. I did household chores in the rented house and worked at ARC during office hours. We also did leisure activities such as going around places inside the UPLB Campus and throughout Barangay Batong Malake, watching movies and television shows, and singing songs in the videoke.

I participated in Kick Ball and recreational activities under the Pahinungod class. In kickball, I learned techniques in kicking, throwing, and passing the ball with my teammates. I represented ARC in the Friendship Games in February where we took part in such sporting activities as tug-of-war. I also participated in leisure activities during the Pahinungod class. As part of their academic requirements, some UPLB students conduct meetings with us at the UPLB Grounds, the Pahinungod building, and the ARC on Mondays, Fridays, and Saturdays respectively. They facilitated workshops in drawing, singing, dancing, and other activities.

In late-November, I participated in the social marketing group alongside Wilbert Rola and Gil Nogrado. We organized a bazaar where we sold merchandise like paper envelopes and angels.

2011 will be another challenging year for me. I will pray and hope for the best to survive in the workplace as I report for work at the Autism Resource Center and now at Saint Therese of the Child Jesus Parish. A little help goes a long way, as the saying goes. I will be obedient not only to my parents but also to my superiors and will strive to do excellent work as always.

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ASP CSFP’s First Fruits: Autism Seminar & FSG

By: Joy Nerona-Ofrecia, ASP City of San Fernando, Pampanga Chapter

ASP San Fernando, Pampanga Chapter (ASP-CSFP) had a very successful Autism Seminar last December 4, 2010, Saturday 1pm to 5pm at the Heroes Hall, City of San Fernando Pampanga (CSFP). An overwhelming number of fathers came and participated in the open forum, expressing their feelings and queries on how they would go about dealing with the condition of their child.

The "Super Moms" together with the guest speaker "Super Daddy Evert".

ASP Vice President, Peng So, welcomed 36 individuals composed of parents, SPED teachers, therapists (OT/SP) from the different towns of Pampanga (Angeles, Apalit, Mexico and San Fernando) and neighboring provinces (Bataan, Bulacan). ASP Auditor and President of ASP Metro-South Chapter, Evert Malapad, was guest speaker.

“The idea of inviting Daddy Evert as guest speaker started when we met at the 2nd Regional Conference in Cebu City last October 24, 2010. Before we left the conference, we discussed on the possibility of organizing a seminar for ASP CSFP Chapter,” said Joy, one of the seminar organizers.

During the chapter’s meeting last November 6, Grace Mallari and Rhea Serrano, together with Joy Ofrecia; through the mentorship VP Peng So, proposed this idea to the group. After it was approved, the “super moms” got very busy with only two weeks left for preparations.

Despite lack of funds and work force, the chapter received unexpected calls and text messages inquiring about the details of the seminar. All these brought excitement to the organizers, so they continued to pursue the activity.

During the Autism Seminar on December 4, many praises along with comments and questions were raised. One statement stood out during the open forum. A father of a 3-year old boy with autism related that whenever well-meaning friends inquire about his son being “different,” he would tell them his child has delayed development. According to him, he doesn’t want people to remember his son as “having autism”, until he became “normal” again.

“Without hesitation I took the opportunity to tell the father that autism is a lifelong condition, and that it is not curable, but treatable. I also stressed that accepting and understanding the child’s autism should start in the family. We, as parents, must be their advocates so that our own acceptance will reflect on society,” said Joy, mom to 11 year old PWA Juris Ofrecia, who incidentally, led the opening prayer for the Autism Seminar. Click here to read their family’s testimony.

Some parents were very thankful to discover that there is a Parent Support organization like ASP, catering to families dealing with autism. As a result, 10 people from a SPED school, professionals and parents signed up to be ASP members. This then led to the launching of the chapter’s first Family Support Group (FSG) Meeting.

The first launching of Chapter's Family Support Group facilitated by Teacher Randy Tallorin (in a Green ASP Polo Shirt)

Both Parents and Teachers who attended the meeting were so grateful for having this kind of opportunity.

Sixteen (16) ASP and non-ASP members, parents and teachers came to hear Teacher Randy Tallorin, mentor of soon-to-be ASP Bataan Chapter last Saturday December 11, 2010 at Chowking Sindalan, CSFP. They actively participated in the FSG discussion, which focused on a short orientation on Behaviour Modification and Sensory Integration.

Parents and teachers who attended the meeting were given information and techniques on dealing with behaviour and sensory issues of children with autism (CWA). The parents were also given advice on how to develop skills of CWAs, according to the child’s interests.

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The chapter is now planning to have a Seminar-Workshop on Behaviour Modification and Sensory Integration with Teacher Randy early 2011 after the FSG attendees clamoured for more FSGs and seminars on a regular basis. This is an additional success for ASP CSFP Chapter. We promise to have more fruitful events in the coming years.

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PWDs Showcase Talents in 3rd Int’l PWD Day Celebs

By Cristine Republica, ASP Trainee

One of the highlights of the 3rd International Day for Persons with Disabilities held at Skydome SM City North EDSA Last December 3, 2010, was the PWD Talent Competition, with 10 contestants from different PWD organizations and LGUs from Luzon, rendering song and dance interpretations.

To kick off the event, former radio broadcaster, Engr. Emer Rojas, President of NVAP (New Vois Association Philippines) gave the opening remarks. The national anthem was led by the Rondalla on Wheels, with sign-language interpretation from the MCCID (Manila Christian Computer Institute for the Deaf). The invocation was led by children from PAVIC (Parent Advocates for the Visually-Impaired Children), Tanya Fernandez, Joshua and Jerome Nelmida.

PWDs Showcase group

Ms. Eden Garde, National Coordinator of UN Habitat read the keynote inspirational speech on behalf of Dr. Jacqueline Badcock, UNDP (United Nations Development Program) Resident Representative and UN Resident Coordinator.

Mr. Noli Agcaoili, Chairman- AKAP Pinoy, representing the PWD Sector; Dr. Minda Marie Cabrera, President- PARM (Philippine Academy of Rehab Medicine), representing the Civil Society and Hon. Alfred Vargas, Councilor of District 2, Quezon City, representing the Local Government also boosted the morale of contestants with inspirational words.

PWD Winners

For the 3rd place, PWD Dancers of Mandaluyong, 2nd place Jackylyn Penazo, a 17 year old Grade 4 student in PNSB and for the 1st place, Mhar Jason Palmeda, a 10 year old Grade 1 student of GS Option House and his winning piece "You'll never walk alone" by Regine Velasquez-Alcasid.

Composed of 10 members, PWD Dancers of Mandaluyong bagged the 3rd Place

From Left, NVAP Pres. Emer Rojas awarded the trophy to Jackylyn Penazo, the 2nd Prized winner from Parent Advocates for Visually Impaired Children. (PAVIC)

The Panel of Judges was composed of Ms. Carmel Almendrala (ASP Trustee), Mr. Armando Cos, Arch. Rizal Morales of DOTC (Department of Transportation and Communications), and Mr. Prime Bonife of DENR (Department of Environment and Natural Resources). Mr. Oscar Taleon, President and CEO of AKAP-Pinoy, Mr. Mateo Lee, NCDA-OIC, and Engr. Emer Rojas, President of NVAP, announced the winners.

The afternoon’s ceremonies were hosted by Ms. Carmen Reyes Zubiaga of WOWLEAP (Women with Disabilities LEAP to Social and Economic Progress Inc) and Mr. Ming Barapantao of The House of Representatives. Ramil Haictin serenaded the audience with “Tagumpay ng may Kapansanan, Tagumpay ng Bayan”.

Differently-abled kids were also treated to freebies like balloon twisting and face painting. Other highlights included the screening of a documentary film about the struggles and strengths of persons with disabilities.

Click here to read highlights of the event.

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Posted in: government,ipwdd

3rd International Day for PWDs Celebration Highlights

By: Cristine Republica, ASP Trainee

The 3rd International Day for Persons with Disabilities was celebrated at Skydome, SM City North EDSA, Quezon City, last December 3, 2010. ASP joined hands with 1,200- strong PWD Sector Groups in “KEEPING THE PROMISE”.

Participants from different areas in National Capital Region plus the nearby areas like Bulacan, Cavite and Tarlac.

“KEEPING THE PROMISE” Mainstreaming Disability in the Millennium Development Goals,” is 2010’s theme for the International PWD Day. ASP was represented by Peng So (Vice President), Evelyn Go (Treasurer), Ranil Sorongon (Executive Director), Carmel Almendrala (Trustee), Ging Viado (Trustee) and Lilia Taroy (President of ASP Commonwealth Chapter) and ASP members.

The original plan to hold an Opening Ceremony at the Malacañang Palace did not push through due to President Aquino’s previous appointment. This however, did not hamper the enthusiasm of participants from the National Capital Region: Quezon City, Valenzuela, Malabon, San Juan, Las Piñas, Taguig, Mandaluyong, Makati, Rizal, Morong, Tanay and San Mateo; including those from as far as Cavite, Bulacan and Tarlac. PWD Leaders and AKAP-Pinoy (Alyansa ng may Kapansanang Pinoy) members actively participated in the event.

Everybody cheered when Eng. Bien Mateo, Chair of SM Committee on Disability Affairs said in his welcome remarks: “Binubuksan po namin ang lahat ng pinto ng SM Supermalls para sa lahat ng PWDs, sa buong Pilipinas!” SM Supermalls has been supporting endeavors of ASP and other PWD organizations, by hosting various activities.

Pastor Rico Domingo and Atty. Jessica S. Magbanua moderators of the Lay Forum on RA 9442.

A welcome news for the PWDs is the latest resolution from the 11th Division of the Court of Appeals, lifting the suspension of the implementation of NCDA (National Council of Disability Affairs) Administrative Order No. 1 or the guidelines on issuance of PWD IDs; which is now enforceable nationwide. This was discussed during the Lay Forum on RA 9442, or the Magna Carta for Persons with Disabilities, courtesy of Atty. Jessica S. Magbanua and co-moderator Pastor Rico Domingo.

ASP Dream Girls- Vell, Nica and Thara transcends to "Professional Level Performance"

The ASP Dream Girls- Vell Barria, Nica Escasiñas and Thara-Marie Santiago, wowed the crowd with their powerful rendition of a Lady Gaga-inspired medley. Some even commented that the ASP Dream Girls have transcended into “a professional level”. All thanks to the tutelage of Trustee Ging Viado and Voice Coach Jenzen Turica.

The 3rd International PWD Day Celebrations was a huge success. And we congratulate everyone for their hard work and solidarity. Click here to read more about the event.

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Grace abounds at the ASP Angels Walk for Autism

Thousands of angels walked for autism yesterday, 16 January 2011 at SM Mall of Asia grounds. ASP National President, Grace Adviento delivers her opening speech to usher the Angels Walk for Autism.

Raising a child with Autism is a lifelong challenge. Today, I walk for Autism. I walk for Adrian, my son. It’s an annual reminder for me, to renew my commitment to him. Together, and with all the families dealing with autism today, let us hold hands and walk as one.

Autismo paghandaan. We ready ourselves to do better. Maagap na deteksyon at interbensyon. Early detection and early intervention remains our top priority. We remain creative to reach out to other families.

We walk this journey with great encouragement from people like you. We dedicate this walk to a better and brighter tomorrow--- a dream society that accepts our children for what they are -- angels of God.

Enjoy the walk and the rest of the program. Maraming salamat po at magandang umaga!

Angels Walk for Autism last January 2011

This year, more than 5, 000 Angels Walked for Autism. Thank you very much to all persons with autism, their family members, friends, supporters, partner organizations: SM Prime, SM Program on Disability Affairs, SM Cares, SM Mall of Asia, SM City North EDSA, Skydome, DOTC, DENR, NCDA, Cong. Irwin Tieng of Buhay Partylist, DepEd, DSWD, DILG, Kampi, Liliane Foundation, CHR, CWC, PIA, HOR-CSS, Mandaluyong City Government, AMO-PDM and Bagumbayani and sponsors: SM City Fairview, The French Baker, Unilever RFM Ice Cream Inc., Transaxion Unlimited Corp., Coun. Alfred Vargas, Ardex Motor Corp., Long Life Bakery, Philippine Multimedia System, Inc., Richard's Food Products, Pizza Pedrico's Food Corp., GMA 7, Palms Country Club and Home Town Realty Developer, Inc.

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Posted in: angels-walk,nacw,speech

ASP Puerto Princesa ACW Celebration

ASP Puerto Princesa City Chapter celebrates the 15th National Autism Consciousness Week on January 16-23, 2011with a Theme: “AUTISMO PAGHANDAAN:” Maagap na Deteksyon at Interbensyon Isakatuparan

ACTIVITIES

January 21, 2011 - 2:00 PM - Symposium on the Care and Management of Persons with Autism

Resource Speaker: Debra Plitchard

Educational Therapist/SPED Specialist

Peace Corps Volunteer

VENUE: Palawan State University

LEAD ORGANIZATIONS: Social Work Society, ASP -PPC

January 22, 2011 - 2:00 PM - Family Support Meeting General Assembly and Election of ASP Officers

VENUE: LRC Compound Junction 2, PPC

LEAD ORGANIZATIONS: ASP –PPC

January 23, 2011 - 3:00 PM - ANGELS WALK for Autism & Quiz A

VENUE: Baywalk Area, Puerto Princesa

LEAD ORGANIZATIONS: ASP-PPC, Social Work Society, CSWD

January 28, 2011 - 10:00 AM - On the Spot Painting Contest

VENUE: Mendoza Park, PPC

LEAD ORGANIZATIONS: Pilot SPED Center, CSWD, ASP –PPC

January 26, 2011 - Training on Autism Early Detection and Intervention

VENUE: Brgy. Bahile, Puerto Princesa City

LEAD ORGANIZATIONS: CSWD, Pilot SPED Center

Month long- Radio Guesting/Advocacy

VENUE: Various radio stations

LEAD ORGANIZATIONS: ASP-PPC, Taw Kabui, Pilot SPED Center

For any inquiries, you may get in touch with our Chapter President Cymbeline S. Martinez at 0927-392-5234

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ASP Dumaguete's Autism Week Activities

15th National Autism Consciousness Week Celebration:

January 16-23, 2011

Theme: “AUTISMO PAGHANDAAN:”

Maagap na Deteksyon at Interbensyon Isakatuparan

ASP Dumaguete City Chapter Autism Week Activities:

January 16, 2011 - Sunday "Radio Guesting"

January 21,2011 - Friday "Poster Making Contest & Angels Walk for Autism"

For more details please call Ms. Joby at 0917-800-7868.

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ASP Tacloban's Evaluation for Children with Special Needs

ASP Tacloban City Chapter had 3 days of Developmental Evaluation by Dra. Vilma Bagay- Salcedo last January 5-7, 2011 at the Divine Word Hospital, Tacloban City, Leyte. There were 31 Children evaluated, and 6 of them were said to be Indigents.

ASP Tacloban logo

WHAT: "Occupational Therapy Evaluation and Home Program Development for Children with Special Needs"

WHEN: January 27-29, 2011

27-28 (9-7pm) 2 Days of Evaluation

29- Whole day Occupational Therapy Demonstration by Teacher JP

WHERE: Tacloban Center for Autism and other Developmental Disabilities (TCADO)

WHO: most of who were evaluated by Dra. Salcedo and Teacher JP Mallari of Skillbuilders last January 5-7, 2011.

For more information, you can contact Dr. Ge Abuyabor at 523-7689 or 0917-306-3539

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Christmas for Autism Angels 2010

The ASP Board of Trustees and National Office Staff had a much needed Christmas Party last 11 December 2010. Our gracious host, Ms. Chrissy Roa, former ASP National Vice-President, opened her home to accommodate the group.

From Left, ASP Trustee Carmel Almendrala (sideview), Andrew Go, Grandmother Josefa, ASP Diliman Pres. Jo Palomares, ASP Angel Bing David, ASP VP Peng So, Ms. Annie Añana, and Ms. Baby Tan from ASP Diliman Chapter, they're all enjoying the traditional "White Elephant" game.

ASP Chair Emeritus Dang Koe truly enjoyed the "Pinoy Henyo" game.

ASP Lagro Chapter representative, Ms. Emma, ASP Executive Director Ranil Sorongon while in the midst of guessing the mystery Christmas word and (standing) ASP Pres. Grace Adviento, the game master.

From Right, ASP VP Peng So holding the sets of "Scrambled Christmas Words", while the Autism Angels wrote their guesses.

The fun began with the traditional White Elephant Exchange Gift, a popular game played each year. Each participant took turns grabbing a favored item from the other. It was truly a hilarious and fun activity. Other games like the “Memory Game” and “Pinoy Henyo” challenged everyone’s brain cells while Christmas themed “Scramble Word” and “Charades” kept in line with the season’s mood. After the games, the group listened to Christmas songs and shared a sumptuous meal.

As we celebrated Jesus Christ’s birth, we thanked Him for the many blessings bestowed upon ASP for the year 2010. For the many trials and challenges that came and went, we were equally thankful; for He remained faithful in supplying the strength we needed. We look forward to year 2011, for His guidance in Sharing Hopes and Building Dreams for more families dealing with autism.

The ASP Christmas Party 2010 was attended by Dang Koe (Chair Emeritus), Grace Adviento (National President), Peng So (Vice President), Evelyn Go (Treasurer), Trustees: Carmel Almendrala, Cristina Estampador, Fredeswina Javier, Ranil Sorongon (Executive Director). From ASP Lagro Chapter, Baclig and Emma; ASP Diliman Chapter Jo Palomares (President), Baby Tan (Secretary) and Annie Añana; PWAs Mike Almendrala, Derek & Henry Estampador; ASP Angels: Lanie Casalme, Abegail Mendoza, Cristine Republica, Bing David, Cathy Genovia, Teacher My Sorongon and son Simoun; PWA Sib Support: Andrew Go; Grandmothers Josefa and Lucila. Special thanks to Christine Roa and her family for being gracious hosts.

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Posted in: christmas,party

ASP Cebu Chapter’s Rebirth

By: Sandra Espina, ASP Cebu Chapter President

"I found this togetherness a fitting moment not only on learning the truth behind the spectrum, but also working together as a throng of angels who sees to it that glory shines in each child with autism.”

This statement came from one of the consultants of ASP Cebu Chapter, after the huge success of ASP Cebu Chapter’s Regional Conference on Autism. The event marked a new milestone in the pursuit of putting the puzzle together. For the FIRST time, ASP-Cebu Chapter, in affiliation with ASP National Office embarked on hosting the 2nd Regional Autism Conference last October 23-24,2010. The theme “The Spinning Truth Behind the Spectrum: Teaming up with Families, Professionals and Society,” is a timely declaration that every sector should do their part in understanding autism and the different interventions available for PWAs.

The conference was attended by 302 delegates and over 80 volunteers from various support groups and from the City of Cebu Sinulog participants.

Looking Back

A few months before the conference, the core group was faced with overwhelming challenges. The chapter was undergoing the pains of rebirth; there were but a handful of enthusiastic members and only a few understood that our special children had so much to give this world if only given a chance. Thoughts of backing-out actually crossed our minds. But we were quite resolute in pursuing this endeavor of hosting the conference and advancing the cause of autism.

Truly, there is truth in what the Bible says: “Ask and it will be given to you: seek and you will find; knock and the door will be opened to you.” And so, the working committee, in coordination with the ASP National Executive Director, Ranil Sorongon, took up the cudgels, zealously prepared for the conference, and slowly, things fell into place.

We mailed a letter to President Aquino for a Souvenir Program Message. A few days later, we received a call from the Office of the President that his message will be mailed to our chapter. SM City Cebu confirmed their intent to be a Major Sponsor for the conference. Our international and local speakers; autism specialists and partners-in-service, confirmed support for the conference.

We realized then, that our special children have their own little story to tell “Let’s make this happen in CEBU!” Click here to read more about the conference.

Looking forward

A collaborative TEAM approach in providing parents and medical affiliates an array of perspectives in managing children with autism helped us Recognize, Cope and Deal with our loved ones with Autism. The conference delegates were enriched and empowered.

The ASP Cebu Chapter Family

As ASP-Cebu Chapter embarks on its 10th year of Sharing Hopes and Building Dreams, we have become bolder in promoting Autism Awareness. We are gaining support from the public and private institutions, government and non-government agencies in helping our CWAs become socially accepted and understood in mainstream society. It is evident that ASP Cebu Chapter is on the right direction.

On behalf of the members of ASP-Cebu, “Mulambo ug magpadayon ang Advokasia sa Autismo! Daghang Salamat ninyong tanan!”

ASP Cebu Chapter will be participating in the celebration of 15th National Autism Consciousness Week this coming January 23-26, 2011 and to know more about the details kindly Click Here.

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Children of ASEAN work together for a brighter future

Children of ASEAN work together for a brighter future

NOTICE: To the extent possible under law, Ian Lopez has waived all copyright and related or neighboring rights to “Sending a Successful Dispatch from the Abode of Peace” (excluding the newspaper scan displayed above). This work is published from the Philippines. Since the scanned image contains copyrighted content coming from another country, it can be used for non-commercial purposes or claim fair use.

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Sending a Successful Dispatch from the Abode of Peace

By: Ian Ferdinand Lopez, Person with Autism

Mr. Ian Lopez

Ian Ferdinand Lopez, is a college student taking up BS Applied Physics in University of the Philippines Los Baños. He is the First Person with Autism to be the Official Philippine CWD representative for the 7th ASEAN Ministerial Meeting on Social Welfare and Development (AMMSWD), at Brunei Darussalam last November 23, 2010. Ian advocated for autism and children with disabilities to ASEAN member ministers. Ian filed this report using the third person narration.

The Philippine delegates, Ian Ferdinand Lopez, Almyradz Aguam and Jiordan Gabriel Simon, together with Ms. Marissa Navales, planning officer of the Council for the Welfare of Children, arrived in Brunei International Airport in the morning of November 23, 2010. They were immediately brought to Grand City Hotel, located a few kilometers south of the airport, through a vehicle courtesy of the Ministry of Culture, Youth and Sports of Brunei Darussalam.

In the early afternoon, they traveled to Rizqun International Hotel where a meeting among senior officials from their respective social welfare and development-related ministries was being held. They met three delegates from Brunei Darussalam representing their various sectors.

During their time in the said place, they rehearsed and subsequently revised the presentation to suit the flow of the discourse. After the rehearsal, the Philippine delegates stayed in the hotel until 6:30 PM, when it was time for them to return to their hotel. They concluded the evening by searching for a place to eat. Subsequently, they ended up eating at a nearby local restaurant.

On the 24th, they had breakfast at their respective hotel rooms. After that, they were toured around Bandar Seri Begawan by Abdul Wahid bin Abdullah, an Education Officer from the Ministry of Education. They visited the Jame’Asr Hassanil Bolkiah Mosque, the Sultan Omar Ali Saifuddien Mosque, the pier to Kampong Ayer, and Tutong, where Abdul resides with his wife and two daughters.

After lunch, they set up the booth in the conference room at Empire Hotel and Country Club, and made final touches to the presentation. The booth highlights the ASEAN Children’s Forum’s productive output. Also present in the final rehearsals are the representatives from Myanmar and Malaysia. To cap the night, the child participants and their mentors were invited to the welcoming dinner, which was held at the nearby Empire Theatre.

The next day was the opening session of the ASEAN Ministerial Meeting on Social Welfare and Development+3, otherwise known as AMMSWD+3, which was held at Empire Hotel and Country Club in Jerudong, Brunei Darussalam. The ASEAN+3 are composed of the member-states of the ASEAN Community, plus the People’s Republic of China, the Republic of Korea (South Korea) and the State of Japan.

The program started with the arrival of The Honorable Pehin Orang Kaya Pekerma Laila Diraja Dato Paduka Awang Haji Hazair bin Haji Abdullah, the Minister of Culture, Youth and Sports in Brunei Darussalam and Chairperson of the said meeting. He delivered a speech on the role of the elderly in society.

After the speech from the Minister of Culture, Youth and Sports, the selected child delegates from Brunei Darussalam, Malaysia, Myanmar and the Philippines delivered a report highlighting the outputs of the child delegates and mentors who attended the ASEAN Children’s Forum.

At the end of the presentation, they managed to succeed in their goal: to convince the ministers of social welfare and development that the children and the youth are the future of ASEAN. After that, relayed the good news – the ministers decided that the ASEAN Children’s Forum will be held once in two, not once in a year as mentioned in the presentation.

To inspire them to stay true to their mission, objectives and advocacies and to reach out to some children in need in the sultanate, they were toured to the Pusat Ehsan Al-Ameerah Al-Hajjah Maryam, a training center for persons with disabilities funded by non-government organizations, located at the outskirts of Bandar Seri Begawan.

After their lunch at Empire Hotel and Country Club, they proceeded to Royal Regalia, a museum highlighting the life of the current Sultan of Brunei, Sultan Haji Hassanal Bolkiah, and various important events in the history of Brunei Darussalam, including the 25th anniversary of his reign, which happened sometime in 1992.

The day ends with a dinner with Philippine Embassy officials led by Consul-General Raymond R. Balatbat, Philippine representatives to the AMMSWD led by DSWD undersecretary Alicia R. Bala, and two delegates representing the Philippines at the 40th APEC Energy Summit, held near-simultaneously with the AMMSWD, at the I-Lotus Restaurant in Kampong Rimba, approximately 10 minutes from the airport.

The dinner was highlighted with a lively discussion among the guests, sometimes bordering on contemporary issues. Before, during and after the dinner, they discussed the plight of Filipinos migrating from the rural parts of the country to more urban areas (Zamboanga, Davao, Cebu, Iloilo, Naga, Manila) for various reasons (poverty, war, coercion by syndicates). Other discussion points included nuclear energy, efficiency in government, charter change, utilization of natural resources, development of various places in the country through various means (agro-industrial projects, tourism, education and related infrastructure projects) and other current events that were considered as important in the Philippines and in the Southeast Asian region. Notwithstanding the hot issues, they managed to enjoy their meals, some of which are too hot to be handled by some of the guests.

On the last day, the delegates dismantled the booth and bade their farewells to their new and old friends, especially to those who have close ties with other child delegates and members of the secretariat – some of them participated in the ASEAN Children’s Forum. Before they left for the Philippines, Ian tried ABC, otherwise known as Ais kacang, their version of “Halo halo”, and spent on pasalubong for their kin, officemates, classmates and their special friends.

In the end, it wasn’t all about the memories and their Brunei experience. What is important is that they were able to convey a message – the ASEAN Children’s Forum is important for all, since the children living in the ASEAN Community can utilize it as their voice, where governments and organizations can utilize some of the suggestions and tackle the issues raised in the forum, and where parents and mentors guide the children to become productive, responsible and proactive members of the ASEAN Community.

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Acknowledgements: UNICEF-Philippines, Council for the Welfare of Children (especially to Ms. Marissa Navales), Autism Society Philippines, City Government of San Pablo, University of the Philippines Los Baños, Ms. Dory Gadaza, Creature Graphics, Ministry of Culture, Youth and Sports (Brunei Darussalam), AMMSWD and AMMSWD+3 organizers, Philippine Embassy in Bandar Seri Begawan, Abdul Wahid bin Abdullah and Dalina Binti Awang Sabili from the Ministry of Education (Brunei Darussalam), the Department of Social Welfare and Development (Philippines), friends and family members most especially his parents who trusted him during the entire duration of the voyage since he traveled without his relatives and God Almighty for guiding him.

Ian also represented CWDs in the First ASEAN Children’s Forum. ACF serves as a platform for ASEAN children to express their views on urgent regional issues and how these can be resolved by governments through consultations, participation in developing policies, legislation, and implementing programs that affect children. Click here to read more on Ian’s report.

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ASP visits World-Class Shine Intervention Center

By Abegail Mendoza, ASP Program Assistant

Shine Intervention Center, also known as Shine Special Education Center, Inc. has expanded their facilities in order to improve their programs and services. ASP representatives were invited to the inauguration of their new home for their special students. Shine Special Education Center is an ASP Institutional Member.

Ms. Koe as she give an inspirational message to guests and benefactors

ASP Chair Emeritus, Dang Koe, was invited by Shine to give an inspirational message to guests and benefactors. She was honored to join the ribbon cutting last November 11, 2010. Witnessing the special event with Mrs. Koe were ASP National President, Grace Adviento and ASP Executive Director, Ranilo Sorongon, ASP Trustees Evelyn Go (Treasurer) and Tiffany Tan (Secretary).

Ms. Bunny Gonzales Joaquin, School Directress, briefed the guests on the different programs of Shine while conducting a comprehensive tour of the new Shine building. Joined Dang and Grace.

From Left, Mr. Mike and Mrs. Lirio Covey, ASP Chair Emeritus Dang Koe, Shine School Directress Bunny Gonzales Joaquin, ASP Treasurer Evelyn Go and ASP Secretary Tiffany Tan

Also present were Mr. Mike and Mrs. Lirio Covey, parents of an adult with autism, who flew in from the US to scout for Adult Residential Program for their son. “We visited since sabi ko ang ganda, but also, especially with the Coveys, to see the facilities for adults - the hotel and the businesses like resto, laundry, and office,” said by Ms. Koe.

Shine’s new building is located at Barrio Capitolyo, Pasig City. The building is also equipped with a clinic, complete with a small hospital bed and medicine cabinet; with plans for a permanent nurse. Adjacent is the Office Media Works, which will be used for internship and employment opportunities for persons with autism. At the ground floor reception area, there is even a small prayer nook.

Therapy Room Exterior

There is also the Shine Resto-Café, which will cater to the meals of the students as well as patrons. The resto is equipped with a complete working kitchen, which will be used to train potential interns in practical culinary arts.

Other rooms in the upper floors include a Library, Conference Room and a special room for parents called “Parent Support Room”. Therapy rooms for Movement, Sensory Integration, Occupational, Speech and Physical Therapies will cater to young adults.

Simulation Room

For the young adolescents, the vocational training classrooms, such as the stock room, pantry, a purchase-training hall, computer room – all serve to help students learn work skills. There is also a Simulation Room, which is equipped with a kitchenette, living/dining area, sleeping area, a toilet and bath complete with washer/dryer, which will equip tenant/students with independent living skills.

For parents who wish to stay near their children, Private Condo-Hotel Units are available. The units are equipped with web-based 24-hour private security cameras.

One of Shine’s model students is PWA Vico Cham, the first PWA to have a one-man exhibit at SM City Marikina, featuring 50 of his artworks. Vico is the son of Architect Cathy Candelaria Cham and Architect Victor Cham . His artworks have been featured in ASP Painting Exhibits and TV Shows. Click here to know more about Vico.

Shine Special Education Center is dedicated to advocating the rights and needs of special children.

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