Family Support Group in Alfonso Chapter

ASP Alfonso Logo

ASP's family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering. Only 10 seats are available.

Our facilitator for this month is Mr. Jayson Maniacop. Jayson is a Sped Specialist at Cavite State University, Indang, Cavite. He completed degrees at the Philippine Normal University, Cavite State University and the Don Severino Agricultural College.

Date: 30 August 2013
Time: 8:00am-12nn
Venue: Alfonso Chapter Sped Center, 082 Matagbak, Alfonso Cavite City
Please contact: Ms. Jeanette S. Vidallon at +63908 404-7350 or jeanettevidallon@yahoo.com.ph

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Posted in: 4parents,chapters,fsg

"Autists" at Work

PWA Michael Almendrala in Philippine
Information Agency writing records

By: Dang U. Koe, ASP Chair Emeritus

Vocation becomes a crucial discussion for a family living with autism once an individual on the spectrum reaches an age when skills for independent living are reasonably expected. The transition from school to the workplace is often the most critical for individuals on the spectrum, as it may define their livelihood prospects.

Mona Magno-Veluz, the ASP National Secretary, gives us a preview of best practices in employing individuals with autism and peeks into practical tips on how you can prepare your child with autism for a future career today.

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President Aquino signed into law Republic Act 10524 (An Act Expanding the Positions Reserved for Persons with Disability) in May 2013 which makes it mandatory for government agencies and government-owned corporations to reserve one percent of their workforce for disabled persons. The autism community welcomes this development, hoping that it will inspire the private sector to open their doors to more PWA workers.

Many trailblazing companies are not only providing autism-friendly products and services; but have also reached out to the autism community and embraced the true meaning of awareness, acceptance and inclusion, through employment programs which benefit adults with autism.

- Mann Hann is a chain of 14 restaurants including its sister companies, the Mann Yann and Mannang Restaurants. In 2006, the Mann Hann group of restaurants opened its doors to an individual with autism as an assistant bartender. Sensitivity training was conducted on the staff to help create a supportive work environment as well. For their compassionate corporate culture, Mann Hann was conferred the honor "Employer of the Year" at the 2011 Apolinario Mabini Awards -- a recognition bestowed on institutions and individuals with noteworthy contributions to the disability community.

- SAP, the German software company. has recognized the unique talents of PWAs for information technology. The company has projected that by 2020, one percent of their global workforce of 65,000 would be people with autism. Six PWAs are currently employed in their Bangalore office as software testers.

- Unilab Foundation has had a long history of advocacy in holistic health. In 2013, they signed a partnership agreement with multiple special schools to embark on an initiative to design a sustainable workforce inclusion program for individuals with autism and Down Syndrome.

The autism community applauds these companies and continues to work with the private sector to create more programs, which can be scaled and replicated.

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Mr. Archie David and ILLC students

Preparing our adolescents with autism for employment is a process that can take years. The earlier a family becomes aware of the PWA's strengths and weaknesses as a worker, the easier it is for the family and their support team to work on long-term preparation. The family's aspirations and the PWA's abilities will define the educational and training goals, which are articulated in a transition program.

- Include work skills training in the IEP as soon as possible. Vocational, work, community, communication, and self-care skills that will enhance the individual’s ability to enter the workforce should be given importance.

- Take all possible opportunities to immerse the adolescent in the workplace or a simulation of the workplace. Many schools provide opportunities to learn various vocations in an effort to expose PWAs to various work environs. This helps the child develop skills important to the workplace, as well as the tolerance for what may, in ordinary circumstances, give them discomfort or distress.

- Practice work-appropriate behavior. Interaction with future work peers can be enhanced by discussing and practising desirable behaviors. For individuals on the spectrum, it is important to be explicit on the nuances between acceptable behavior at school versus the workplace.

- Provide parental support and positivity. A study in the Netherlands reveal that IQ is NOT the main driver of work success in individuals on the spectrum. Many successful adults with autism, like Temple Grandin, credit a great deal of their success to the unconditional support they received from their parents and loved ones. A support system that breeds emotional strength is the key to a PWA's work success.

===============

Dr. Abelardo Apollo David or "Teacher Archie," recipient of the prestigious The Outstanding Young Men (TOYM) in 2012 and Executive Director Independent Living Learning Centre will be moderating a panel discussion on "Employment and Livelihood for Adults on the Spectrum” at the 13th Philippine National Autism Conference. Themed “Hope for ‘A’ Nation,” the confab will tackle issues and experiences relevant to an autism community that is striving for acceptance and inclusion in Philippine mainstream society.

The event is designed to provide information on developments relevant to allied medical professionals, social servants and community workers who work with autism. Most importantly, the event was created for the growing community of parents, family members and individuals on the autism spectrum who are seeking answers, quality support and fellowship. For more details, visit http://bit.ly/philnac2013.

This article appeared on 26 August 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

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Posted in: angels-talk

Hope for "A" Nation

Hope for a Nation Poster

The 13th Philippine National Autism Conference, dubbed “Hope for ‘A’ Nation” will be held on October 26-27 at the Meralco Multi-Purpose Hall.

This year’s conference braves questions on the integration and acceptance of individuals with autism in Philippine society — in education, law, media, employment, among others. The latest updates in medicine, pharmacology and therapy will be presented by respected experts from the Philippines and the United States.

The event is designed to provide information on developments relevant to allied medical professionals and community workers who work with autism. Most importantly, this event was created for the growing community of parents, family members and individuals on the autism spectrum who are seeking answers, quality support and fellowship.

Read more: http://bit.ly/philnac2013. Register at: http://bit.ly/philnac2013-regn

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Posted in: community,nac

ASP celebrates NDPR Week

The Autism Society Philippines was an active participant in the celebration of the National Disability Prevention and Rehabilitation Week. The ASP National and its Quezon City and Cavite Chapters came in full force during the opening day, highlighted by Walk for Justice at QC Memorial Circle -- Justice Secretary Leila De Lima was the guest of honor.

PWA Carl Veluz with Peña family

ASP attended the two-day forum on “10 Goals to Make the Right Real” held at the Department of Budget and Management in Malacanang Complex. Represented by Alex Cabason, Elizabeth Udquin and Raphael Torralba, the forum was a discussion between the PWD sectors and government agencies on the various goals of the Incheon Strategy and how they are being implemented in the country. It aimed to generate awareness and sensitivity to the needs of PWDs as well as on the laws that promote and protect their rights toward motivating PWDs to overcome their limitations and encouraging support to the programs implemented by the government for them.

ASP also participated in the forum “Realizing the Rights of CWDs” through Access to Justice. This forum focused on the need for accessibility and sensitivity of parents and their CWDs in their access to justice.

ASP joined other 1,500 PWD groups, supporters and advocates in the much anticipated activity of Philippine Association of Rehabilitation Medicine -- the PARM Move Pilipinas Fun Run held at QC Memorial Circle. Aside from promoting fitness and wellness, this activity also promoted awareness on the needs of PWDs and highlight their hidden talents and abilities. Later in the day, ASP attended the Fun Day for Children with Disabilities in SM Fairview. As one of the event’s co-organizers, the program had a fun-filled day for children with disabilities with games and performances from Autism Angels and other talented children with disabilities.

The closing ceremonies saw the Mega Sensitivity Campaign in Mall of Asia. ASP President Jan Peña spoke on “Understanding Autism” and how to treat persons with autism while Program Coordinator Raph Torralba spoke on “Proper Communicating and Treating the people with Hearing Loss.” ASP Chairman Emeritus Dang Koe and Consultant Ranil Sorongon, meanwhile, attended the press conference on May 2013 elections on the other side of the mall. The press conference discussed what transpired during the 2010-2013 Campaign on Disability Inclusive Election and how they will start preparing for the 2016 Disability Inclusive Election.

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Posted in: community,government,ndpr

Experiencing the Mind Museum

ASP and ILLC family in Mind Museum

Children with disabilities from different SPED Schools and PWD organizations attended the Mind Museum Tour, courtesy of Children Hour and Down Syndrome Association of the Philippines, on Sunday, 18 August 2013.

It was an educational field trip, not only for the kids; but for the family members as well. Braving the rains of typhoon Maring, the kids forgot all about the weather once inside the Museum as they were able to “transport” themselves to different time and age. The Autism Society Philippines, led by its Program Coordinator Raphael Torralba, was represented by ASP Diliman Chapter, Marikina Chapter, Hopewell Integrated School, Independent Living Learning Centre, Beatea Mariae Academy, Blessed Child Integrated School and ASP regular members.

The Mind Museum is dedicated to provide an extraordinary educational experience that promotes and inspires public understanding of science. It was opened to the public last March 2012, five years after its planning started in 2007. It was initiated by the Bonifacio Art Foundation Inc, a non-stock and non-profit organization supported by property owners in Bonifacio Global City.

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Posted in: community,special

The Dental Home for Persons with Autism

Oral health is a very important component of healthy daily living. But for some children with autism, oral health habits can be difficult to develop due to hyper sensitivities. Families need to be informed on how to manage challenging procedures like extractions, fillings, fitting of oral appliances, among others, as this can cause a person with autism much distress. This seminar focuses on the engagement between the dentist and the parents on how to handle their child with special needs. The discussion will guide and give us information on oral health care delivered in a comprehensive, continuously accessible, coordinated, and family-centered way.

The Autism Society Philippines has very recently signed a memorandum of agreement with the Pediatric Dentistry Center to provide continuous family-centric oral health education and discounted dental services to members of our community. Learn more about how you can leverage on this partnership at the seminar.

Seminar Speakers

Dr. Manuel V. Vallesteros DMD has served as the Executive Director of the Pediatric Dentistry Center Philippines and as a consultant at the Dr. Fe Del Mundo Medical Center and Foundation since 1996. He was the President of the Philippine Pediatric Dental Society Inc. from 2013 to 2015, for which he received the Most Outstanding Affiliate Society President Award from the Philippine Dental Association. Dr. Noel finished his DMD at University of the Philippines Manila and his postgraduate training in Hospital Dentistry at Dental OPD, PGH.

Dr. Jasper L. Tago DMD is a licensed dentist and training staff in Pediatric Dentistry Center Philippines. He obtained his DMD at Centro Escular University, Manila and Post graduate training course at U.P Philippine General Hospital, Dentistry Department. Dr. Jasper is a member of Philippine Pediatric Dental Society Inc., International Association of Pediatric Dentistry, Noordhoff Craniofacial Foundation, Our Lady of Peace Hospital, Quezon City Philippine Dental Chapter and the Scientific Committee QC, PDA.

Seminar Details
31 August 2013, Saturday
9:00AM- 12:00NN
Lecture Room, Office of the Vice Mayor
3rd Floor, Quezon City Hall (Map)

Pre-registration fee is P600 (up to Aug 23). On-site registration fee is P700. ASP Members get a discount of P100. Seminar Fee is inclusive of a certificate and snacks. See below for registration form.

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account Number 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are their own and may not necessarily reflect the views of the organization.

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Posted in: 4parents,4pros,4pwas,4siblings

ASP Alfonso Chapter holds its first FSG

ASP Alfonso Chapter held their first FSG last 24 July 2013 at Alfonso Central School, Cavite. The FSG was facilitated by the ASP President Mrs. Mary Janette Peña. and participated by the members of the ASP Alfonso Chapter and the parents of the Alfonso Sped Center. The FSG aimed to give more knowledge and understanding towards their children with special needs, particularly on the behavioral aspects and manifestation. It was opened by a prayer by the PDAO President Abelardo Cordenete and by words of inspiration from ASP Alfonso President Mrs. Jeanette Vidallon. The FSG was a success; as the parents walked away with new learnings and newfound hope.

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Posted in: chapters,fsg

The lowdown on DSM-5

By: Dang U. Koe, ASP Chair Emeritus

The autism community was all agog with the release this year of the new definition of autism in the Diagnostic and Statistical Manual of Mental Disorders (DSM)-5. The manual is one of the tools used by clinicians when diagnosing persons with or those suspected to have Autism Spectrum Disorder.

In the previous DSM-4, several disorders such as Autistic Disorder, Asperger’s Syndrome, and Pervasive Developmental Disorders not otherwise specified (PDD-NOS), were referred to as Pervasive Developmental Disorder. But under the new manual, all of these diagnoses now fall somewhere along the autism spectrum, and are therefore referred to as Autism Spectrum Disorder (ASD).

The three categories of autism symptoms in DSM-4 include impairments in social interaction, communication and repetitive or stereotypic behaviors. In DSM 5, there are only two categories: social communication and interaction, and restricted and repetitive behavior.

These changes are just among the five major developments in the diagnosis of autism that were approved by the American Psychiatric Association. We asked those who live with autism every day − the professionals, the parents and relatives of persons with autism (PWAs) as well as the PWAs themselves – what these changes mean to them and how it will affect their lives. Here is what they have to say.
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“We are grateful that the DSM-V has finally come out, which simplifies the categories for ASD and similar disorders. The categories in the past were far too numerous and confusing for both parents and the medical professionals.” — Alex Cabason, Autism Society Philippines (ASP) Marikina Chapter president, and parent of of 14-year-old PWA Vince.

“When my son was diagnosed at the age of three, I asked the developmental pediatrician about the severity of his autism. The doctor said she prefers not to specify what level he was in. In a way, her response spared me from additional stress apart from the devastating impact of hearing the diagnosis of my son. But at the same time, I also badly needed information on whether my son was low-functioning or high func-tioning as basis for my future actions. With the changes in the DSM-5, children can now be classified as Level 1, 2 or 3.

The new method of consolidating the diagnosis of Asperger’s syndrome, autism and PDDNOS into just one diagnosis would eliminate the notion that those with Asperger’s syndrome are better off than those with autism and PDD-NOS. On the other hand, the disadvantage would be if we correlate the parents’ level of hope with the level of functionality defined during assessment. The more a parent knows about the severity of autism in his or her child, the more helpless and distraught they may become. Likewise, the intensity of intervention may also be taken for granted by the parents of higher functioning children.” — Jane Gonzales, a columnist of Davao’s SunStar and mother to PWA Jan, 21

“As a SPED professional and community-based rehabilitation worker, I consider the DSM-5 as the beginning of uniformity in terminologies as far as diagnosis is concerned. Although the label is not to keep the child in the box, understanding the diagnosis is a step ahead in designing his/her IEP (Individualized Education Plan). I’m pretty sure that the learning characteristics of the child with ASD will remain unchanged, and it is the level of severity that will continue to challenge the teaching and learning process.” — Riza Cansanay from the Autism Resource Center of ASP Laguna, and mother of 28-year-old PWA Michael

“The new categories will help novice therapists pick appropriate therapy techniques because of clear guidelines and description of diagnosis. This will also help the doctors and speech therapists speak the same language and understand each other better in terms of diagnosis. However, I am concerned with the inclusion of PDD-NOS in the autism umbrella. Many researches state that children with PDD-NOS can have typical language development with the help of therapy, thus reversing some of the delays particularly in speech, language and social communication. This might confuse parents further and complicate the issue of autism as being reversible rather than a life-long disorder as claimed by most specialists.” —Kate Reyes, a speech pathologist of Independently Speech and OT Center in San Pascual, Batangas

“With the lowering of the criteria for diagnosing a number of disorders, therapists should use the DSM-5 with extreme caution. It still boils down to knowing my students well enough to identify the areas where they need support and come up with a suitable program/plan to address their needs.” — Josephine de Jesus, a speech therapist from Makati City

“I cannot say certainly that the new guidelines for DSM-5 should classify other disabilities like PDD-NOS under the autism spectrum disorder. The fact that children develop uniquely does not mean that they are conclusively presumed to have autism without further probing or analysis. For instance, a child who has developmental delays but does not manifest a lot of them does not imply autism.

I still believe that children who manifest any behavior pertaining to autism should still have access to health and educational services provided by appropriate professionals or government to the maximum extent possible.” —JR Tan, autism advocate

“The deletion of the diagnosis of Asperger’s and PDD-NOS seems to be causing a stir. I’ve heard so many parents say that their child just has PDD-NOS or Asperger’s - as if to console themselves that it isn’t as bad as the classic autism that people imagine. If the label of “autism” does not deter parents from seeking the most appropriate intervention they can find/afford, then ultimately it does not make a difference. But if the label stigmatizes them to despair and inaction, then it’s another matter. Ultimately it is the parental perception or understanding of the diagnosis that will make the difference and determine the course of action and outcome.” — Cecile Sicam, school directress of Bridges Foundation and mother of 32-year-old PWA Likas

***

Dr. Alexis Reyes, one of the country’s top developmental pediatricians, will talk about “Autism Redefined: The Implications of Redefinition of ASD in DSM-5 on Diagnosis and Prevalence” at the 13th Philippine National Autism Conference. Themed “Hope for ‘A’ Nation,” the confab will tackle issues and experiences relevant to an autism community that is striving for acceptance and inclusion in Philippine mainstream society.

The event is designed to provide information on developments relevant to allied medical professionals, social servants and community workers who work with autism. Most importantly, the event was created for the growing community of parents, family members and individuals on the autism spectrum who are seeking answers, quality support and fellowship. For more details, visit http://bit.ly/philnac2013.

This article appeared on 12 August 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

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Posted in: angels-talk,nac

ASP Joins Project Hero

Project Hero kids group

Selected PWAs of ASP are taking part in Project HERO launched by Photography with a Difference founder, John Chua. The program encourages persons with disabilities (PWDs) to express themselves better through photography. It aims to teach photography to persons with disabilities and to help create positive awareness for the plight of Maali and the Manila Zoo for the benefit of the children of Metro Manila. Photos of the participants will be exhibited in an exhibit-tour in selected SM Malls.

The Saturday sessions are bonding moments between the ASP Participants and their photographer-buddies. Through the eyes of PWAs, the photographers take this activity as an inspiration for them and a challenge to lend a hand. The parents also show their dedication and commitment to their children by learning photography also.

Providing cameras to PWDs and allowing them to express themselves will also give a sense of desired empowerment. Their artistry and creativity will be surely felt by the viewers, as Christina N. Dickson of Digital Photography School said, “Children see the world through a special lens. There is a purity to their imagination that at some point most adults lose. If you have ever put a camera in the hands of a child you will soon discover that what they see in life is very different than the adult’s perspective.” This is a learning experience not only for PWDs but also for photographers.

Jae Bustamante, the photographer-buddy of Andrei Gaban shares: “You don't need words to say everything you want to say. All you have to do is feel it, straight to your heart. Feel so blessed to meet, share and be inspired of this event.”

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Posted in: best,canon,chapters,community,special

ASP UP-CAMP hosts free parent seminars in August

The ASP UP CAMP Manila Chapter has been an important partner for parents, students of allied medical sciences, practising therapists and physicians in bringing information and awareness to the autism community and the general public.

ASP UP CAMP logo

True to its mission, the ASP UP CAMP Manila Chapter is inviting parents of children with autism (CWA) between ages 2-6 years old for a hour-long Round Table Discussion (RTD) on “Parental Perception of Autism” on August 9, 2013 at 1:00 pm. Facilitators will be Dr. Isabel Quilendrino (Developmental Pediatrician), Dr. Mary Anne Castor (Pedia Allergologist), Dr. Jacqueline Vea (Neurologist), Dr. Rana Mendoza (Family Medicine).

After the RTD, on the same day, the doctors, in turn will give their time for an Open Forum on “Addressing Medical Concerns of CWAs”, from 2:00 pm – 5:00 pm. This is open for parents of CWAs of any age. Both activities will be held at Perpetual Succor Hospital 836 Cayco St. Sampaloc, Manila (Directions: If you are coming from Quiapo go down in front of UST Espana, Cayco is the street right after the overpass. If coming from Welcome Rotonda go down in front of UST and cross to other side to get to Cayco).

Registration is free. Snacks are to be provided. Grab this chance of consulting with the doctors and asking about any medical problems you might be having about your child.

Kindly confirm your attendance through Jennette F. Rodriguez, Secretary, Autism Society Philippines, UP CAMP Manila Chapter at 0922-896-9612. Please text full name of parent, name of CWA and age. This invitation is open to all families from any ASP chapter.Only limited slots are available and no walk in participants.

Note: Registration has now been closed due to confirmed attendees has now reached the venue's maximum capacity. Thank you!

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Posted in: chapters,seminar

ASP Family Support Group for August 2013

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Ms. Gina Bermudo with son Nico

Our facilitator for the August 24 Family Support Group session is Gina Luna Bermudo. Mommy Gina is the producer and composer of the CD entitled, “Mga Awiting Alay sa Autismo,” a compilation of heartfelt compositions inspired by her two boys on the spectrum, Niko and Xandi. "Kaya Ko Rin” was made into MTV for the 10th National Conference on Autism. The Song “Why God,” is an often requested song for ASP events. Her CD was also featured in Forum Asia Magazine of LA, California USA. She also composed the theme song of the recent 12th National Conference and 2nd Southeast Asian conference on Autism entitled “Hope @ Home.” Her latest single “1Pangako” is the campaign song for the advocacy of Autism Society Philippines to stop the use of the word autistic as a slur. “1Pangako” was showcased during the 2nd Autism Network Congress in Brunei Darussalam where it was warmly received. The song is also played regularly in OFW Radio Kuwait. Gina is a former international flight attendant and she recently served as a resource person for Cebu Pacific Air and Philippine Airline in their effort to improve service for PWD with focus on Autism. Gina has also represented Autism Society Philippines in several conferences in the Philippines and abroad. She serves as ASP Trustee from 2010 to present. She graduated from Ateneo de Manila University with a Bachelor of Science Degree in Mathematics Major in Computer Science. Her favorite role is a full-time mommy to the boys and a devoted wife to Lito.

Date: August 24, 2013, Saturday
Time: 1:00-5:00PM
Venue: ASP Office, Room 307, ML Bldg, # 47 Kamias Road, Quezon City

Sign up online for the Family Support Group or call 7-903-5496. Only 15 seats are available.

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Posted in: fsg