A message from Mona Magno-Veluz

Ms. Mona Veluz

Our family's journey with autism began a little less than twenty years ago, with my eldest son, Carl. Back then, the only thing on our minds were getting the right therapy, finding a suitable school and helping him adjust to everyday life. As our son matured, my husband and I were made aware of more challenging questions. We were no longer looking at just the confines of our small orbit. We had to look at how our son can deal with the rigors adults face everyday and at how our son can find his place in a society, compassionate and accepting of him and his unique needs.

The theme of the 13th Philippine National Autism Conference -- "Hope for "A" Nation" -- resonates with me. It echoes my own belief that the autism community should bring our concerns and issues outside our home, schools and communities; and escalate them to the government, the church, the media, the business sector and other societal institutions which can be active agents of change towards the integration and acceptance of individuals with autism in Philippines society.

The Autism Society Philippines -- its leadership and volunteers -- designed the conference to bring respected experts from the Philippines, the United States and the ASEAN to talk about what many in our community clamor to know about -- the latest developments in education, law, media and employment and new insights in medicine, pharmacology and therapy.

But more important still, to the growing community of parents, family members and individuals on the autism spectrum, I hope that experiencing this year's conference will bring you HOPE.

In the service of the Filipino autism community,

MONA MAGNO-VELUZ
Conference Chair
Philippine National Autism Conference

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Posted in: nac

A message from Janette I. Peña

Ms. Janette Peña

The last 25 years in the history of autism in the Philippines has been both an educative and empowering experience in Filipino families living with autism. From nothing, we are now a legionary movement driven by fire, coming together to reach and learn from each other, embracing positive and hands on approaches in rearing children with autism, and moving synergistically with an entire sector that upholds the rights of the disadvantaged in the society.

The 13th Philippine National Conference attests to the solidarity of families, allied professionals, government, corporate and media in creating an accepting, friendly and supportive environment for persons with autism. It is an achievement that we must carry on for the good and interest of an increasing number of children living within the spectrum. The challenge of autism is for life, and Autism Society Philippines stands pat to help our nation overcome.

I thank all members and partners of ASP who have faithfully heeded the call to minister to our advocacy and help make a difference. To all the participants of the 13th PNAC, thank you for being with us in claiming HOPE for a nation.

To the cause!

MARY JANETTE I. PEÑA
President
Autism Society Philippines

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Posted in: nac

A message from Dang Uy-Koe

ASP Chaiman Emeritus Erlinda "Dang" Koe

The color green represents renewal, energy growth and harmony. Silver not only represents riches and wealth, but also hope and unconditional love.

Autism Society Philippines turns 25, silver, next year. With God's grace, the society has both been "green and silver" to the almost one million Filipino families living with autism every day.

Ever since my Gio was diagnose in 1997, I have never missed an ASP national conference because being with a legion of green-clad parents and other partners with silver wings have always energized me. Together, like green gemstone, we know we can help create balance, promote change, and share hopes. And like silver, we are mirrors for others to see themselves.

I cannot wait when ASP turns gold, helping illuminate our path towards wisdom, wellness, success and prosperity... not only just for own children, but for A nation.. our nation.

May we all abound in hope.

For I know the plans I have for you, "declares the Lord,
"plans to prosper you and not to harm you, plans to give
you hope and a future.

Jeremiah 29:11

DANG UY-KOE
Chair Emeritus
Autism Society Philippines

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Posted in: nac

A message from Secretary Enrique T. Ona M.D.

Mr. Enrique Ona

Warm greetings to the officers and members of the Autism Society Philippines as they hold its 2013 National Autism Conference with the theme, "Hope for A Nation."

This Annual Conference brings together expects in this noble field to share clinical knowledge and experience to improve treatment and management outcome of Autism in the country. This will indeed pave the way to a healthier future for our humanity. The Department of Health values our collaboration and assures you of our support in this endeavor.

May you continue to persevere in your work and join in our efforts to achieve our goal of Kalusugan Pangkalahatan.

Congratulations and mabuhay kayong lahat!

ENRIQUE T. ONA M.D.
Secretary
Department of Health

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Posted in: government,nac

Stemming the rumors

The National Autism Conference tackles what is fact and fiction when it comes to stem cell therapy and autism.

Over the past few months, stem cell therapy has taken hold of the imaginations of many Filipinos looking for a cure to a myriad number of conditions, autism among them.

All across different forms of media, the average Filipino encounters testimonials from celebrities and lay people alike who swear by the effectiveness of stem cell therapy in providing relief from disease.

However, the University of the Philippines’ Dr. Antonio Dans cautions against pinning all of one’s hopes on a treatment that has only recently been introduced here in the country, especially with regards to its effectivity in curing autism.

Dans outlined his reservations, reasons, and suggestions for the future of stem cell therapy and autism here in the Philippines at the recently held Philippine National Autism Conference, which aims to provide information on developments relevant to medical professionals and community workers who work with autism.

Dans was only one of the many speakers who participated in the event, some of whom were Department of Justice Secretary Leila de Lima, ASEAN Autism Network chairman Malai Haji Abdullah Bin Malai Haji Othman, Cavite governor Jonvic Remulla, and broadcast journalist Karen Davila.

Dr. Antonio Dans of the Philippine Society of General Internal Medicine and the University of the Philippines’ Departments of Clinical Epidemiology and Internal Medicine says stem cell therapy in the country should be regulated.

No Clinical Trials

Dans began his talk by explaining what exactly stem cell therapy is. According to him, stem cell therapy is a form of treatment wherein doctors use stem cells — premature cells within the body that grow to become specialized cells — for a multitude of applications.

“First, ‘yung regenerative medicine. ‘Yung meron sa katawan natin na matanda na, puwedeng palitan ng young cells. The second application is treatment. If you have diseased cells in your heart, they can be replaced by these cultured cells in the laboratory,” he explains.

Internationally, however, there are very few countries that actively endorse stem cell therapy at a clinical level. Stem cell therapy is practiced in China on a clinical level, but Western regulatory agencies caution against it because of the lack of regulation in China. Studies on stem cell treatment in South Korea that claimed to generate cells tailored to match patients were eventually discredited by an academic panel from the Seoul National University.

This is definitely not the case in the Philippines where personalities such as former President Joseph Estrada and former Senate President Juan Ponce Enrile endorse the treatment. Dans cautioned against listening to these testimonials, as they do not carry with them the rigorousness of a clinical trial. Clinical trials are sets of tests in medical research that determine the safety and efficacy of medical treatments.

“These are just case reports. One case, one success, a success rate of 100 percent. The highest study that we can use is a clinical trial and now the success rate is zero percent,” he says. “This is why the kind of study that we present is very important. Which one do you think is the most effective in convincing people to use a treatment, in a marketing sense? The case report is the most convincing. But the most important scientifically is the clinical trial.”

When it comes to clinical trials involving stem cell therapy and autism, Dans says that according to the website Stem Cells Australia, there are only clinical trials ongoing, neither of which are in the Philippines. The first one “Autologous Cord Blood Stem Cells for Autism,” is being held in the United States, while the second one, “Autologous Bone Marrow Stem Cells for Children With Autism Spectrum Disorders,” is being done in Mexico.

Questionable Motives

Dans also explained that there are three reasons that could exempt stem cell therapy from clinical trials, namely: the treatment is miraculous, it is an innovative treatment, and if it is compassionate for the patient to receive the treatment so his suffering can be eased.

A miraculous cure, says Dans, is something akin to Lorenzo’s oil, discovered by Augusto and Michaela Odone to help their son suffering from adrenoleukodystropohy.

“Scientifically, there are three components to a miracle. Number one, the course of the disease is uniformly poor. With adrenoleukodystropohy, you become bedridden and die. The child in Lorenzo’s Oil is the first patient to live until he was 30 years old. He was diagnosed at five and the doctors said he would die in two years. That was a big improvement,” he explains. “Everyone else who was genetically predisposed to the disease and were given the oil after birth totally avoided manifestations of the disease. There is also no other explanation for the improvement. He did not receive anything else. We need to ask ourselves if stem cell therapy fits those criteria. As far as I know, it has not.”

Even if stem cell therapy could be considered an innovative and compassionate treatment, Dans says that medical papers insist that these treatments eventually be subjected to clinical trials and regulation.

“There should be an oversight to make sure that the patient’s rights are not violated. The problem is that many who offer stem cell therapy refuse to subject themselves to regulation,” he says. “Besides regulation, we need to do the trials. We are the number one user, but there are no trials being done here. My third suggestion is publication. If it’s not published, it never happened.”

The intent, says Dans, is not to deprive people of the potential benefits of stem cell therapy, but to ensure that none of the patients, especially those desperate for a cure, end up being exploited by those who prey on their desire to alleviate their loved ones suffering.

“Stem cell therapy is a very expensive treatment, and there could be exploitation happening. If you refuse to be regulated, if you refuse to do research and there are no publications, but you charge millions of pesos, then your motives are questionable in offering stem cell therapy,” he warns.

This article appeared on 18 November 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Ronald Lim.

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Posted in: angels-talk,nac

A message from Engineer Bien C. Mateo

Engr. Bien Mateo

We would like to congratulate the Autism Society Philippines for holding another successful conference. May this conference touch your lives as it has touched ours at SM Supermalls.

We will never forget how the Autism Society Philippines helped us in making our mall environment as inclusive as possible, making it a mall for all.

We acknowledge that many efforts have been made. We have been your partners in making the communities aware of the autism spectrum. But the work does not stop there. After awareness, we have to commit as a society to provide a good quality of life for everyone including persons living with autism. We have to allow them to dream, like any one of us. We have to give them respect, as we all want others to respect us. We must give them the same opportunities, as we would also want to be offered the same.

The tasks at hand are greater than ever. The challenges are harder than before. We must all step up for all the one million families in our country who are living with autism today.

We thank the parents, the teachers, the classmates, the care-givers, the siblings, the neighbours of our friends living with autism. You deserve the honour and respect for the support and encouragement that bring out the beauty in the persons living with autism.

We will continue to walk with you in the path towards an inclusive society for all.

Engr. BIEN C MATEO
Director
SM Program on Disability Affairs

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Posted in: nac,sm

A message from Carmen R. Zubiaga

Ms. Carmen Zubiaga

The National Council on Disability Affairs commends the Autism Society Philippines for organizing the “Philippine National Autism Conference 2013,” another milestone to provide the latest trends on the acceptance and inclusion of individuals with autism at the national level and within the community.

Years ago, parents of children with autism were living in hopelessness and isolation with nowhere to go in search of knowledge and support on how to bring up their special children.

Autism Society Philippines provided through the years of working with parents of people with autism and professionals, that people with autism are capable of fulfilling proper education and harnessing their innate talents and capabilities.

Truly, the ASP is one of the most active support groups in the country, working to empower children and adults with autism spectrum disorder to be self-reliant, productive and socially accepted members of the community.

We look forward to the realization of the goals of the Conference, and to the success of your future undertakings geared towards disability inclusive development for all.

CARMEN R. ZUBIAGA
Acting Executive Director

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Posted in: government,nac

Why I Work As A Speech Pathologist

Ms. Mae Sadicon

This article appeared on 18 November 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

When a Filipino child or adult has a disability like autism, he or she and the family experience many difficulties in managing and coping with the condition. Their efforts at coping become all the more daunting when necessary interventions fall short of expectation and demand.

Our angel talker this week is veteran speech pathologist Mae Sadicon, a pillar of the Philippine Association of Speech Pathologists and most of all, an advocate for Filipino children with special needs.

•••

Some people work to HAVE while others work to BE. Being a speech pathologist allowed me the best of both worlds. It enabled me to put food on the table and provide food for the soul – a wonderful combination that made me a better person, daughter, sister, teacher, therapist, and Filipino.

For four years, my home was Padre Faura and my “Adventure Time” (as my kids with needs would say) was within the skirts of UP-PGH (University of the Philippines-Philippine General Hospital).

I graduated from UP Manila College of Allied Medical Professions (CAMP). UP-CAMP pioneered speech pathology education in the Philippines. Since the Department was established in 1978, it has produced over 400 skilled, competent, and compassionate speech pathology practitioners. Part of what we are now, we owe it to this place. And we try to give back as much as we can.

DEFINING THE DISCIPLINE

Speech Pathology (SP) involves the study, diagnosis, treatment, and prevention of disorders that relate to speech, language, swallowing, fluency, voice and communication. A speech pathologist, sometimes informally called speech therapist, helps individuals who struggle with language and communication disorders. These are usually caused by neurological concerns, developmental delays, stroke, brain injuries, learning disabilities, intellectual disability, cerebral palsy, hearing loss, and other primary or associated conditions. People who experience problems with feeding and swallowing which make their speech and communication challenging, can also engage the services of a speech pathologist.

Although goals and procedures vary based on the nature and severity of the concerns, the program is ultimately directed towards optimizing function and enhancing the person’s quality of life. To be a speech pathologist, one entails exposure to various professional/major as well as foundation courses in college. At least a year is likewise devoted to clinical practicum and research courses.

WELCOME ADDITION

I can cite data and numbers and percentages. But perhaps words will do. Too many people with disability. Limited allied medical professionals. Basic terms of low supply and high demand that translate to frustration and helplessness. Because of the need to meet these needs, the University of Santo Tomas – College of Rehabilitation Sciences (UST-CRS) embarked on curricular development and proposed to offer the Bachelor of Science in Speech-Language Pathology (BSSLP) in August, 2006. After much planning and hard work, the five-year BSSLP program was opened on the first semester of the academic year 2009-2010.

Two years after, Cebu Doctors’ University – College of Rehabilitative Sciences (CDU-CRS) followed suit. The school is the first to offer this SP program in the Visayas. With these developments, we are hoping that the tides will turn. That eventually, hope and quality service will yield the bigger percentage and data.

MY STAND

As you work with and for disadvantaged people, you embrace what they are and advocate their welfare. Therefore, it is very disheartening to hear first-hand and get hold of evidence, of people who call themselves speech pathologists and “work” as such but are not holders of a legitimate SP degree. These are graduates from certain universities that offer a 10-month SP program. I have heard of these “SP” individuals who have attempted (or offered) to handle sensitive, life-threatening cases (e.g. those swallowing disorders) that even legitimate, experienced SPs are wary of managing.

This is my stand. The SP profession does not purport to be the only discipline that can provide service to individuals with language, communication and related problems. After all, communication, and the burden that results from its breakdown is a responsibility that should be shared by all. I, for one, have worked with amazing and dedicated family members, occupational therapists, physical therapists, special education teachers, psychologists, behavioral therapists, and many others.

And lest it be misconstrued, this is not so much about these people working as “SPs” but more about those who are responsible for offering such programs. In order TO BE, we need to abide by the rules. We need ethics. We need competence and skills borne out of years of being taught and trained in school. We do not hide behind shallow justifications. We do not spout empty rhetoric to justify what we are doing and at the expense of the people whom we say we serve.

(ASP’s monthly seminar resumes on Nov. 30 with Teacher Landa Bautista, the curriculum director of The Learning Center, Inc. on “Training and Job Coaching Persons with Autism” and “ABCs of Job Coaching.” ASP will also hold the biggest “Angels Walk for Autism” on Jan. 19 at the Mall of Asia Arena. Register online at www.autismsocietyphils.org for free tickets.)

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Posted in: angels-talk

The PSDBP's Position on Stem Cell Therapy for Neurodevelopmental and Behavioral Disorders

The following statement from the Philippine Society for Developmental and Behavioral Pediatrics was read by Dr. Alexis Reyes on 27 October 2013 at the Philippine National Autism Conference, after an enlightening presentation by Dr. Antonio Dans on “The Truth About Stem Cell Therapy.”

PSDBP Logo

The society acknowledges the potential of using stem cell therapy as a treatment option for developmental disabilities. However, there is currently no strong scientific evidence to recommend the use of stem cells as treatment for neurodevelopmental disorders, developmental disabilities and central nervous system disorders including but not limited to autism spectrum disorder, cerebral palsy, global developmental delay and intellectual disability. Since the long term safety and effectiveness of the use of stem cells in humans have not been established at this time, its use for these conditions should be confined to well-designed clinical trials that include the necessary ethical, scientific and regulatory controls. At present, the society strongly encourages the use of evidence-based interventions for developmental and behavioral conditions, under the guidance and recommendation of a Developmental-Behavioral Pediatrician or Neurodevelopmental Pediatrician duly board certified to practice in the Philippines.

This position statement was made after careful study by the PSDBP Research Commitee Task Force for Stem Cell Therapy Position Statement, whose members include:

Maria Michiko C. Baloca, MD
Francis Xavier Daniel M. Dimalanta, MD
Annah Rebecca V. Doroja, MD
Cindy C. Llego, MD
Jacqueline O. Navarro, MD
Maria Isabel Osabel-Quilendrino, MD
Jan Harold D. Sia, MD
Lourdes Bernadette S. Tanchanco, MD

Download your copy here.

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Posted in: community,medical

ASP hosts autism parents from Vietnam

The Autism Society Philippines -- through our National Office, Los Baños Chapter and UP-CAMP Chapter -- had a series of interactions with a nine-mother delegation from Vietnam supported by the ASEAN Autism Network. Vietnam is only beginning its journey in autism advocacy; and their exposure to the Philippine experience will hopefully inspire them to create programs to answer their countrymen's unique needs.

The discovery tour was arranged by the former ASP Executive Director Ranil Sorongon, who is now the Autism Expert for the Asia-Pacific Development Center on Disability (APCD). The APCD is a regional center on disability and development, established in Bangkok, Thailand as a legacy of the Asian and Pacific Decade of Disabled Persons, 1993-2002. It was created as a collaboration between the Ministry of Social Development and Human Security, Royal Thai Government and the Japan International Cooperation Agency (JICA), Government of Japan¹.

APCD was endorsed by the United Nations Economic and Social Commission for Asia and the Pacific (ESCAP) as a regional cooperative base for its Biwako Millennium Framework for an inclusive society in the Asian and Pacific Decade of Disabled Persons, 2003-2012. ESCAP identified APCD as the regional center on disability for the Incheon Strategy to Make the Right Real, 2013-2022. In cooperation with more than 30 countries in the Asia-Pacific region, APCD is currently managed by the Foundation of Asia-Pacific Development Center on Disability (APCD Foundation) under the Patronage of Her Royal Highness Princess Maha Chakri Sirindhorn¹.

The ASP leadership welcomes the Vietnam advocates

The delegation from Vietnam visited the ASP Los Baños Chapter's Autism Resource Center -- a showcase of grassroots ingenuity and cooperation. They also attended a seminar by Teacher Kate Reyes, arranged by ASP UP-CAMP Chapter in Manila. ASP Chair Emeritus Dang Koe, ASP VP Ces Sica, and ASP Trustee Carmel Almendrala shared their experiences in sustaining autism advocacy over the past twenty-five years in a brief round-table discussion. The trip culminated in a dinner hosted by ASP National at the Kabayan Hotel on 09 November 2013.

¹"Background." Asia-Pacific Development Center on Disability, n.d. Web. 10 Nov. 2013.

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Posted in: chapters,consultation,international

Seminar on Training & Job Coaching Persons with Autism

Vocational Training for Persons with Autism
9:00 am -12:00 pm The seminar will center on transition and vocational training concepts, principles and best practices that will equip participants in creating vocational skills training programs for adolescents and adults with special needs. These will be coupled with hands-on experiences from vocational skills training and life skills training programs. It will likewise discuss the use of the Structured Teaching principle based on the acclaimed TEACCH approach and its role in program implementation. Factors, issues, and concerns related to work transition will be tackled, as well. A short workshop on Transition Planning will likewise be conducted.

ABCs of Job Coaching
1:30 pm - 4:30 pm
The seminar will focus on supported employment and job coaching concepts, principles and best practices. It will likewise include guidelines, tips, roles, and responsibilities for job coaches in the Philippine setting. The discussion will be paired with the hands-on experiences of The Learning Center, Inc. (TLC)’s On-the-Job Training Program since 2002.

Ms. Landa Bautista

Ms. Maria Yolanda Michelle A. Bautista or Teacher Landa graduated with a BA Social Science Degree (Major in Behavioral Studies) from the University of the Philippines, Manila. She completed her Master’s Degree in Education (Major in Special Education) at the University of the Philippines, Diliman. Shortly after, she finished a Social Entrepreneurship Training Program for Professionals at Ateneo de Manila University’s School of Government.

Teacher Landa is the Executive Director of The Learning Center, Inc. or TLC, non-stock, non-profit Special Education center for children, adolescents, and adults with special needs accredited by the Department of Education (DepEd) and certified by the Philippine Council for NGO Certification (PCNC). She is responsible for the successful leadership and overall management of TLC’s programs, services, and school operations. She likewise develops the school's Special Education Curricula from early intervention to vocational skills training.

Venue: Legislative Building, Quezon City Hall
Date: 30 November 2013, Saturday

Register online today! Seminar fee is inclusive of certificate, handouts and snacks.

Single Seminar
Pre-reg until Nov 22
Member - 500.00
Non-Member - 600.00

On-site Registration
Member - 600.00
Non-Member - 700.00

Double Seminar
Pre-reg until Nov 22
Member - 800.00
Non-Member - 1,000.00

On-site Registration
Member - 1,000.00
Non-Member - 1,200.00

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account # 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Seminar Series serve as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are their own and do not necessarily reflect the views of the organization.

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Posted in: 4parents,4pros,seminar

ASP joins Kamustahan 2013

The Autism Society Philippines joined the annual Kumustahan Seminar series of Archdiocese of Manila Ministry on Persons with Disabilities (AMMPD) this year. The seminar started on 13 July 2013 at St. Anthony de Padua Parish in Manila and was held in succeeding Saturdays of the month in different parishes in Metro Manila. The seminar intended to equip the churches’ volunteers and PWD ministries in proper dealing with persons with disabilities. It also talks about the world, plight and Christian intervention for PWD’s. The speakers from ASP included Ranil Sorongon, Jan Peña, Raphael Torralba, Tina Borneo, Jennette Rodriguez, and Nina Almeda.

ASP President Jan Peña in action

AMMPD is the former Archdiocese of Manila Office for PWD Ministry and it is now under the umbrella of the Commission on Social Services and Development of the Archdiocese of Manila. For the benefit of PWDs, they provide religious, moral and values formation; offer skills training to prospective care-givers and catechists; provide assistance through referral to other agencies for rehabilitation, training and employment; offer counseling and human services and advocate awareness of PWDs’ presence, roles and rights in the Archdiocesan and in the parochial level.

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Posted in: 4public,chapters,church,community

Hope Begins Here and Now

Kiel, second from the right, kneeling, among other young and not-so-young adults on the spectrum who attended the 13th Philippine National Autism Conference.

This article appeared on 11 November 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

Twenty-seven year old autism self-advocate Gerard Atienza, who is a freelance graphic designer, volunteered during the Autism Society Philippines’ 13th National Autism Conference held last Oct. 26 and 27. Calling himself and others like him on the autism spectrum “awesome,” the visuals he created for the entire conference are truly that – awesome. Gerard is also a blogger “autisticbigbro” and this week’s angel talker.

The theme of the conference, “Hope for ‘A’ Nation,” is highly appropriate for what the event had to offer. It presented diverse perspectives from lawmakers, experts in the field, parents and individuals on the autism spectrum. The speakers and the panelists presented how it is to live with hope for autism, a vision that is continually unveiling itself.

The MERALCO Multi-Purpose Hall was filled to the brim with hopefuls — parents, professionals, and even persons with autism who gathered for the vital information about autism and to know what is being done toward acceptance and inclusion for autistic people.

The confab featured Justice Secretary Leila de Lima, whose life with son and grandson, both with autism, inspired her to push for access for justice for persons with disabilities; ASEAN Autism Network chairperson Malai Othman, who went back to the grassroots level and focused on enabling people with disabilities; and BUHAY Party-List Representative Irwin Tieng, who discussed how ASP’s advocacy motivated him to push for rights of persons with autism and other disabilities. Cavite Governor Jonvic Remulla, who graced the second day of the conference, shared a message of hope on how his journey with daughter Stella, who has autism, inspired him to be an advocate himself.

The efforts of the government in pushing for autism acceptance and inclusion were also underscored in the conference. Mandaluyong City Mayor Benhur Abalos presented how their implementation of community-based rehabilitation helped shape persons with autism and other disabilities to become fully functional members of society, and how it inspired other local governments to follow suit. Former Ormoc City Mayor Beboy Codilla, himself a father of a child with autism, discussed what his government has done for individuals on the spectrum on the regional level.

Experts such as Dr. Alexis Reyes discussed the DSM-V and the implications of this latest revision in the diagnosis of autism, while Dr. Cornelio Banaag talked about the health issues affecting adults on the spectrum. Dr. Noel Vallesteros underscored the importance of oral and dental care for kids on the autism spectrum.

Teachers Anna Cortez and Ana Rivera showcased therapies for autism, using the techniques of yoga and dance, respectively; while Sensei Vicente Rubio, himself on the autism spectrum, discussed the basics of mentoring young adults on the spectrum, and how he himself lived with autism.

Addressing the Challenges

What interested me, though, was Dr. Tony Dans’s discussion on the highly-controversial stem cell therapy and its role as an autism therapy. As an anti-cure advocate myself who believes that autism is not a disease to be cured and eradicated, but rather a difference to live with, the discussion of the topic made me uncomfortable. However, Dr. Dans somehow dispelled my fears, as he objectively presented the principles and ethics of such therapy, and that it has yet to be proven before it could be used.

On the perspective of the corporate world, Unilab Foundation’s Rhodora Fresnedi discussed how Project Inclusion has integrated autistic individuals to the workplace, citing the experiences of fellow awesome Vico Cham, who is an employee at Unilab. Public Relations practitioner Amor Maclang challenged everyone to advocate for autism.

The panel of parents and siblings of adults on the autism spectrum, composed of Arch. Cathy Cham, DIWA Party-List Representative Em Aglipay, Dr. Marnie Prudencio, and Mommy Marivic Rimano, shared how they’re preparing themselves for the future of their children with autism.

Media leaders also came together to discuss the agenda of autism in mainstream media and its role in shaping autism advocacy and the acceptance of people on the autism spectrum. The panel of media leaders are composed of GMA Network executive Annette Gozon-Abrogar, advocacy filmmaker Mirana Medina, ANAK TV chairperson Mag Hatol, journalist Ivy Mendoza, and ABS-CBN broadcaster Karen Davila, herself a mother to David, fellow awesome.

On the employment sector, Verlie Dizon, Mann Hann senior manager; Regina de Leon, mom to fast-food staff and fellow awesome Paco; Gian Paolo Feranil, plan checker at Torsten Calvi and fellow awesome; and teachers Iris Gaballo and Archie David from the Independent Living and Learning Centre, discussed the opportunities and value of employing autistic people in a variety of jobs.

What struck me the most is the panel of fellow awesomes on the spectrum, composed of ASP Dreamgirl Danica Escasiñas, Hopewell Integrated School staff Paul Garcia, Performing Arts student Clarence Cruz, and IBM’s HR specialist Yanna Aragon. Led by Teacher My Sorongon, they discussed their own journeys as self-advocates and how they are pushing for their rights. Being the passionate self-advocate that I was, I asked my fellow awesomes in the house to stand up and be recognized by the sea of parents and professionals.

It was such an exhilarating experience to be part of this conference, and together with fellow autistic guys, whom I shall call Team Awesomeness, there is hope for autism. And it doesn’t stop at the conference. Hope begins here, and hope begins now.

The biggest gathering of autism angels will be held on Jan. 19, 2014 at the SM Mall of Asia Arena. It will kick off the celebrations of ASP’s 25th year, the National Autism Consciousness Week and nationwide Angels Walk for Autism. Follow us on Facebook and Twitter.

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Posted in: angels-talk,nac

A message from Malai

Mr. Malai

The ASEAN Autism Network (AAN), would like to congratulate the Autism Society of the Philippines (ASP) for organizing and hosting the 13th Philippine National Autism Conference. The AAN recognizes ASP as one of the oldest and leading Autism Organization in ASEAN region, a role model for all other AAN members in supporting and empowering the families of individuals with autism in the Philippines.

ASP is one of the founding members of AAN was established with “Family Comes First” as a core concept during the ASEAN Autism Workshop organized by the Asia-Pacific Development Center for Persons with Disabilities (APCD), in cooperation with JICA in Bangkok, Thailand on 13-15 December 2010.

AAN would continuously support the ASP’s programs in accordance to the network’s mission to support, assist, facilitate and enhance autism-related family support groups in collaboration with other stakeholders in the ASEAN region.

Once again, congratulations and wishing everyone a successful and meaningful conference.

MALAI HJ ABDULLAH BIN HJ MALAI OTHMAN
Chairperson
ASEAN Autism Network

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Posted in: international,intl,nac

ASP lobbies for inclusive health benefits

The Autism Society Philippines is one with many disability groups in the inclusion of our unique medical and therapeutic needs under the benefits of the country’s universal healthcare program, Philhealth and of the private health maintenance organization (HMO) insurance.

In a position paper submitted to the Senate in September 2013, the ASP saw the need to engineer more laws and policies towards inclusive development. Among them was the availability of creative mechanisms for funding our medical and therapy costs. The parents of the individuals on the spectrum would welcome reforms that will help them fund the interventions for their children. One hundred percent tax-deductibility of intervention expenses of parents for their children with disabilities, Philhealth-supported therapy, interventions included in HMO coverage are only some of the creative solutions our sector would like our leaders to champion.

The Occupational Therapy Association of the Philippines, Inc. (OTAPI) -- a valued ASP partner in this cause -- has proactively appealed for occupational therapy services to be accredited for Philhealth coverage. OTAPI is currently working on proposed changes to the implementing rules and regulations to the Republic Act 9241 otherwise known as the Philhealth Act.

ASP Vice President Cecilia Sicam and Program Coordinator Raph Torralba, Mrs. Nelia De Jesus of NCDA, Christopher Molin of PDAO-Naga City and Mr. Jose Dela Cruz of Philippine School for the Deaf at the ceremonial launching of the Z-Morph Prosthesis Benefit Package introduced by Philhealth on 31 October 2013.

As ASP National works with the government agencies and private organizations, we enjoin ASP chapter leaders and members to be part of the process of change. You can do something today.

As honest taxpayers, we need universal access to free medical and therapy for our family members with autism. Please write a letter or submit a community petition to your representatives in Congress to inspire them to ACT.

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Posted in: government,law,therapy

A message from Akiie Ninomiya

Mr. Akiie Ninomiya

On behalf of Asia-Pacific Development Center on Disability (APCD), I would like to congratulate Autism Society Philippines on your 13th National Autism Conference.

Since I believe that “disability is a gift from God” the Bible clearly says that “the works of God should be made manifest in person with disability” (John 9:3)Therefore, persons with autism are gift to our society; our “Hope for “A” Nation” comes from them.

APCD has been supporting autism organizations in South East Asi. APCD was instrumental in organizing the ASEAN Autism Network (AAN) during the 1st AAN Congress in Bangkok,Thailand in 2010. APCD assumed a vital role during the 2nd AAN Congress in Brunei Darussalam last April and supported the establishment of the Vietnam Autism Network (VAN) in August of this year.

APCD is committed to support initiatives to promote the rights of persons with autism. It will be collaborating with AAN and the Lao Autism Association for the "Autism Definition and Screening Workshop" in Laos. With the redefinition of Autism Spectrum Disorder (ASD) in the Diagnostic and Statistical Manual (DSM) 5, the ASEAN region may need to come up with a practical definition of autism based on this manual taking into consideration the social and cultural context of the region. APCD seeks for opportunities for collaboration in the field of autism. It has initial talks with the International Institute for Global Health of the United Nations University (UNU) to develop a screening system on autism and training program.

In North America, researches showed that 1% of primary school children sre diagnosed with autism. With this fact, autism will be one of the major groups among the disability sector.

The Autism Society Philippines (ASP) with 24 years of experience, 67 chapters and 10,000 members will surely contribute to create an "AUtism Friendly ASEAN" by 2015. ASP is the most active autism organization in ASEAN Region with its rich experiences on advocacy and technical capability, therefor ASP's leadership serves as an engine to realize an Autism Friendly Society.

AKIIE NINOMIYA
Executive Director
Asia-Pacific Development Center on Disability

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Posted in: government,nac

A message from Mayor Herbert M. Bautista

Mr. Herbert Bautista

Congratulations to the officers and members of the AUTISM SOCIETY PHILIPPINES on the occasion of your 2013 Philippine National Autism Conference.

Your commitment and trust to constantly upgrade the quality, understanding and standard of autism care is for the benefit of a huge number of families who live with this deficiency. The ASP underscores the importance of timely management responsive to your commitment to empower autistic children and adults to become self-reliant, productive, and socially active. You have indeed served and continue to reach a greater number of people, consistent with your theme: “Hope for ‘A’ Nation.”

We are proud to host your organization, thus, enabling Quezon City to maintain its status as the center of specialized institutions, caring for its medically disadvantage constituents. In fact, we have the distinction of being the Medical Tourism Capital of the Philippines. Health care and other wellness centers make our City competitive and an attraction for those who need competent and affordable medical rehabilitation, to recuperate in a homey atmosphere.

In coping with the recuperation needs of a vast city with a huge population, I look forward to sustaining our partnership as you continue to provide relevant, up to date and effective rehab activities for these special persons and encourage them to remain productive members of society.

MABUHAY TAYONG LAHAT!

HERBERT M. BAUTISTA
Mayor
Quezon City

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Posted in: government,nac

A message from Irwin C. Tieng Representative of Buhay Party-list

Cong. Irwin Tieng

My warmest Congratulations to the officers of the Autism Society of the Philippines (ASP) for organizing the Philippine National Autism Conference 2013, themed: “Hope for ‘A’ Nation.”

This intellectually stimulating and emotionally satisfying conference will strongly foster unconditional acceptance not only of those on the autism spectrum but within the community as well. This is a good venue for sharing information and exchanging ideas and experiences. Likewise, this will provide delegates with unparalleled opportunity to learn new knowledge that focus on improving the care and treatment of children and adults with autism.

May you continue with your mission to enrich autism social awareness and inspire individuals with autism to reach their highest potential. I believe each person in the autism spectrum has the opportunity to make a positive difference in this world.

Again, congratulations ASP and more power!

IRWIN C. TIENG
Representative
BUHAY Party-list

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Posted in: government,nac

A message from Vice President Jejomar Binay

Vice President Jejomar Binay

I would like to extend my warmest regards and congratulations to the Autism Society Philippines as you hold the Philippine National Autism Conference 2013.

Your theme, “Hope for a Nation,” is most apt. Awareness on and understanding autism remain to be a major challenge here in our country. There are close to a million Filipinos suffering from this condition and only a handful receives proper attention and care.

I salute your efforts in promoting progress using resources available to you. May this conference inspire other organizations and motivate them to help empower persons with autism.

Mabuhay kayo!

Jejomar Binay
Vice President
Republic of the Philippines

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Posted in: government,nac

A Magical Disney Show for children with autism

SM Cares invited 60 children with autism and their parents, all active ASP chapter members, to the “Disney Live! Mickey’s Magic Show” on 04 October 2013 at the Mall of Asia Arena. This captivating show, with an innovative blend of characters and illusions, brought together in one venue the favorite Disney characters such and world-class illusionist, Michael Barron. One of the highlights in the show are Cinderella’s rag dress turning into a beautiful gown in seconds, Princess Jasmine elevating up into the air, different illusions done by Master Magician Mickey Mouse, and the cannon and disappearing act done by Barron. Barron also invited children to volunteer in stage to make them feel and see the illusions for themselves. Other Disney characters in the show includes Donald Duck, Minnie Mouse, Goofy, Snow White, Alice in Wonderland and the Mad Hatter, and Princess Belle.

Disney Magical Poster

True to its commitment to be one of the country’s leading corporate social responsibility (CSR) advocates, SM’s initiative to provide genuine care and assistance to customers with special needs such as the differently abled and special children is just so overwhelming that they even go beyond their goal of total customer satisfaction.

By inviting ASP members for a free admission to the show, SM did not only provide an opportunity to special needs family for quality family bonding time; but they also allowed the general public to experience children with autism and their characteristics. Some people seemed to notice how our children behave and even wondered where in the archipelago the jargon these children are speaking originated from.

Thanks to SM Cares, the participants and parents had a very overwhelming experience in the show.

Chie Marquez, the President of ASP Bacoor Chapter, shared: “My son Moti excitedly showed me his calendar pointing to the number 4 (which he marked with “ MOA Arena”) and told me “sleep then MOA”. We were lucky to be a part of limited ASP members who were given complimentary tickets by SM to watch Disney Live Mickey’s Magic Show at the MOA Arena. SM is so generous that the tickets it gave away to ASP members are lower box tickets! SM make us feel big time in a way :D”

Henry Aquino and his son, Hannz made this event as an opportunity to bond as father and son. Henry is thankful to ASP and SM Cares for inviting them to the wonderful show. His son was very happy and so excited to watch it. He even stood up and went down to see the Disney characters and magicians up close. Henry felt it was the happiest thing he has done with his son, since he has been too busy at work.

Elizabeth Udquin of ASP UP-Camp Chapter and ASP National Board Trustee said that for a family like hers, it was impossible for them to watch Disney live shows due to the cost of tickets. She also noted that many of the chapters invited were from marginalized families; but transportation fees became far from their mind, as long as their children can witness the Disney magic. When she learned about the offer of SM Cares, she immediately listed her kids and cancelled all her commitments for that day. During the show, her son Cholo kept on shouting “Abracadabra” and kept nagging his mom that he wants to volunteer on the stage. “On behalf of ASP UP-Camp Chapter, we would like to express our gratitude to SM Cares for giving us a chance to witness the show and be a part of it,” she said.

For Jean Gonzales of Mandaluyong Chapter, it was indeed a tremendous experience! They are grateful to ASP and SM for giving them a chance to watch a show like this.

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Posted in: chapters,community,sm

ASP meets with Japanese economist

Raphael Torralba and Cecile Sicam with Mr. Soya Mori

Soya Mori of the Institute of Developing Economies, Japan External Trade Organization (IDE-JETRO), a quasi-government social science research organization, met with ASP's Vice President, Cecilia Sicam thru the efforts of ASP Program Coordinator, Raphael Torralba last 15 October 2013, to discuss Special Education for Children with Autism.

Mr. Soya Mori is a Japanese Deaf Development Economist who is a member of the comparative research team, working on “Education of Persons with Disabilities in Developing Countries.” The objective of this research project is to focus on the equalization of opportunities and promotion of education of persons with disabilities through legislation, and reveal the roles of and problems facing the current education law system in developing countries.

The UN Convention on the Rights of Persons with Disabilities (CRPD) stipulates that persons with disabilities should not be excluded from the general education system, should have access to an inclusive, quality and free education, and should be provided reasonable accommodation of the individual’s requirements. This research project will research and analyze (1) the education policy, including special education, (2) the education law system of persons with disabilities, including laws, rules and guidelines, (3) the actual situation of school attendance of persons with disabilities in general and special education schools, and (4) cases of litigation and complaints regarding education of persons with disabilities in each country to examine the feasibility of the rights established in CRPD. The subject countries are the Philippines, China, Korea, Thailand, Malaysia, Vietnam and India.

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Posted in: consultation,international,uncrpd

ASP at the NBA Cares event

Active members of the Autism Society Philippines were special guests of SM Cares to a meet-and-greet with visiting NBA players last 09 October 2013 at the MOA Arena. Individuals with autism and their family members had a fun afternoon, watching the players of Indiana Pacers doing a basketball clinic with selected 60 participants from Special Olympics Philippines. They were then treated to a once-in-a-lifetime opportunity to meet the players like All-Star, Roy Hibbert and legends, Ron Harper and Jalen Rose. This is a part of the NBA Cares program under NBA Global Games. The Pacers and the Houston Rockets played an international pre-season game in the Philippines -- a first for the country!

ASP Family at NBA Cares event

The arena was in a festive mood. Children from ASP and Down Syndrome Philippines were excited to meet their NBA idols. The event showed how the players interacted with different children with disabilities and it was a learning experience for them. David West, one of core players of the Pacers, said in an interview with Philippine Daily Inquirer that “It’s always a good opportunity to be able to impact these young people. Even though we understand that they have some disabilities, they don’t allow that to kill their joy. They’re very energetic. When we interact with people, we wanna make sure they come away feeling good about who they are.”

It was also an opportunity for PWAs to bond as a group, without their parents. They were shown seating together in the bleachers and just enjoying the show. They were ecstatic when another Pacers All-Star, Roy Hibbert, approached their stands and happily interacted with them. He even signed their shirts.

Our children came home with bright smiles and lasting memories of their encounter with the NBA superstars. Many thanks to SM Cares for this rare opportunity!

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Posted in: chapters,community,sm,special,sports

APS Family Support Group for November 2013

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Ms. Mona Veluz with son Carl

Our facilitators for the November 23 Family Support Group session are Mona Magno-Veluz, the current Secretary of ASP National and Carl Veluz. Mona received degrees in Business Administration, Applied Economics and Strategic Marketing from the University of the Philippines, University of Asia and the Pacific and the London School of Business. As a practicing marketing communications professional, she has held various global management roles in Ericsson Telecommunications, Telus International, Emerson Network Power and IBM. Mona is a wife and a mom to three kids. Her eldest is PWA Carl, a young man working in their family business and growing his budding entrepreneurial venture, “Gregarious Gifts”.

Date: November 23, Saturday
Time: 1:00-5:00PM
Venue: ASP Office, Room 307, ML Bldg, # 47 Kamias Road, Quezon City

Sign up online for the Family Support Group or call 7-903-5496. Only 15 seats are available.

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Posted in: fsg