The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.

30 July 2013

Making Friends

By: Dang U. Koe, ASP Chair Emeritus

“If only I could buy him a friend.” Many parents have expressed this sentiment, when the social inadequacies of their child with autism become apparent. If neurotypical children create bonds best when left to their own devices, children on the spectrum need to be trained in behaviors and techniques which would help them create and keep bonds of friendship. Developing social skills that address the unique deficiencies of a child with autism early in life, can serve him well until his adult years.

This week’s Angel Talker is Dr. Angelina S. Onrubia. Anj is a doctor of dermatology and mom to 10-year old Zo. She shares her personal techniques in getting her son to socialize.

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Over the years, I have watched my son struggle to make friends. Instead of joining other kids in their games, he’ll circle a big group of boys not knowing how to casually join in on the conversation. Instead, he’ll plant himself in a corner and whip out his iPad or Nintendo DS. From the corner of his eye, he’ll watch other kids gravitate towards him. The boys peer over his shoulder. Some sit right next to him. They make comments about the game. But our son remains silent. He doesn’t respond to their questions. He doesn’t acknowledge their presence. He won’t even think of asking them if they want to play the video game. Eventually, the boys drift away one by one. The golden opportunity to make friends is lost.

For typically developing children making friends comes naturally. But it is especially difficult for children with Autism Spectrum Disorder (ASD). My son is on the spectrum. You wouldn’t know it just by looking at him. He has the same interests as other 10-year old boys. He walks and talks like every other boy his age. His disability is invisible and every day, he struggles to understand social situations. He struggles to understand the meaning behind certain facial expressions or the tone of someone’s voice. He struggles to make real friends.

Fortunately, there are many things we can do to help him develop the skills he lacks. Here’s a list of the things we’ve found helpful:

Enroll your child in a social skills program. Social skills classes are important to help a child modify their behavior for the classroom engagement and for community living. Personally, I have found the Social Thinking program, created by Michelle Garcia-Winner, effective. This uses cognitive behavior therapy to help persons with social deficits understand the complexities behind social interaction. It teaches them that how we think about people affects how we behave. This in turn affects how other people respond to us and how this affects our emotions. Social Thinking classes are offered in different therapy centers here in Manila such as Therabilities, Possibility Weavers and TW Community Enablers.

Enroll them in inclusive classes. Inclusive classes welcome both typically developing children and children with special needs. The children learn side-by-side. Children with special needs are given the opportunity to model their behavior after neurotypical children. In turn, the other children learn to develop compassion and empathy.

Teach them the social norms many take for granted. Neurotypical children will pick up and learn social rules and conventions by observation. Children with autism need direct instruction in these areas. Social rules and social conventions are as confusing to them as a foreign language is to us. Our kids need to be explicitly taught.

Guide them during unstructured free time. Unstructured free time is the most “dangerous’ time for kids on the spectrum. Unlike neurotypical kids, who can fend for themselves and pick up the intricacies of social communication, children on the spectrum get “lost in the translation.” Any adult with your child, be it a teacher or his grandmother, should be aware that he or she needs to guide the child during these times. This means introducing topics to talk about, steering the conversation, keeping the conversation on track, mediating arguments, etcetera.

Organize play-dates or playgroups with a small group of kids. Start small. Invite the kids of your friends or relatives, who will be more accepting of your child, over to your house for a play-date. Or arrange small playgroups for your child with your neighbors. Plan a short adult-guided activity, maybe a board game or an art activity followed by merienda. Your child needs opportunities to practice his social skills. And keeping the group small will help make the interaction a positive one.

Join bigger groups, when your child is ready. When your child is ready to join a bigger group of kids, find an activity he or she likes and enroll them in that class. Your child can join a theater class or a dance class. If it’s an activity that your child truly enjoys, it’s more likely that he or she will make friends with kids who share the same interest. Don’t forget to tell the supervising adult about your child’s diagnosis. The teacher is an invaluable ally and can keep a close eye on your child to ensure his social success in the classroom.

“Invest" in friendships. When your child finds a friend he values, go out of your way to get to know his new BFF better. Orchestrate more interaction and ensure they do not lose touch. Spring for the occasional mall gimmick. Befriend his parents as well. Closer links to another family who is compassionate to your child’s condition makes possible a longer, more enduring friendship.

Last year, my son went on a field trip. Instead of telling me about the things he saw or what he did, he chattered happily about the new friends he made. He told me about the things they did together and how much fun they had. He was happy because he had friends. And I know that’s all he’s really wanted.

This article appeared on 29 July 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

27 July 2013

ASP joins Manila Zoo 54th anniversary

The Autism Society Philippines was honored to have been the biggest contingent at the Manila Zoo’s 54th anniversary celebration last July 25, led by Trustees Jan Peña, Grace Adviento and Elizabeth Udquin. Families from ASP chapters from Dasmariñas, Bacoor, Alfonso, and Manila joined, upon the kind invitation of John Chua. Children with autism were treated to a tour of the zoo and a chance to feed Maali with bananas.

ASP Family in Manila Zoo

The Manila Zoo has hosted many PWD events and has brought happiness to many children with disabilities. Despite the ongoing global campaign to transport Maali, the elephant, back to Sri Lanka by the international organization PETA, the news that “Maali will stay” brought smiles to the children present at the anniversary. Manila Mayor Joseph Estrada reiterated that he will not allow the aging Maali to be transferred to a sanctuary in Thailand. In his speech that was read by Vice Mayor Francisco “Isko” Moreno, Estrada said that “nothing can match the smiles and joys brought to us by animals like lions, tigers, deers, and Maali, the famous elephant.”

Estrada plans to boost the city’s tourism with a P2-Billion modernization project of Manila Zoo as one of the priorities. “I will not let Maali leave the place where she grew up,” he said. One of the plans for zoo rehabilitation is to add two more elephants from Sri Lanka to keep Maali company.

ASP is looking forward to the completion of the Manila Zoo modernization project which promises to provide a humane, happy home to the inhabitants of what is meant to be a metropolitan sanctuary. This project is a fitting “thank you” for the sensory delight the animals have brought to the Filipino children who behold them -- with special needs or no.

Read more about ASPs participation in Manila Zoo’s anniversary here.

25 July 2013

Autism at Diet, Meron Bang Konek?

Ms. Felisa Mendiola
Felisa Mendiola, or Mommy Aisa, is a former Vice President of ASP Laguna having served from 2000-2006. By profession, Aisa is a Licensed Chemical Engineer who used to work as an analyst at Countryside Millers Inc. However, she gave up her career to be a full-time, hands-on mom to her first born son with autism, RV, now 23 years old.

In November of 2006, she took a leave of absence from ASP to completely focus on RV who at that time was exhibiting challenging behaviors which seemed very intriguing for Aisa. Using her expertise in chemistry and her information from Paul Shattock and Dr. William Shaw's lecture and notes on autism as a metabolic disorder, Aisa studied carefully the possible link of RV's diet to his behaviors.

Almost 7 years later, Aisa leveraged on her many years in research and carefully back-tracked and analyzed RV's behaviors and food intake since he was a baby. Aisa is strongly convinced that truly, "we are what we eat” and our children with autism are not exempted. “I discovered that RV's inability to metabolize his intake of sugar and food additives contributed greatly to his aggression and irritable behaviors. Nutritional approach helped his cognition, behavior and physical health," Aisa shared.

"It is my wish that parents like me begin to understand that what we feed our children with autism could have an adverse effect on their overall functioning. This is the reason why I agreed to ASP Laguna's invitation to share my experience on diet intervention which has worked so well with my son."

Hear Aisa as she elaborates her explanation on how diet modification is helping RV and herself beat autism. Join us on August 10, 2013 starting at 1:30 p.m. until 3:30 p.m. at the Los Baños Municipal Building, National Highway, Los Baños, Laguna.

Registration is 100.00 pesos only. (BYOB – Bring your own baon.) For details, please text 0939-240-5970 or call 536-0655. You may also drop by at the Autism Resource Center, Intan St., Sta. Fe Subdivision, Barangay Batong Malake, Los Baños, Laguna. We are open Tuesday to Friday, 8 am to 5pm.

Proceeds of this event will help in sustaining the Work, Live and Play Program for Young Adults with Autism of the Autism Resource Center, ASP Laguna.

24 July 2013

ASP Bulacan Chapters co-host NDPR Events in Malolos

Q&A of orientation seminar

ASP President Ms. Mary Janette Peňa, ASP San Jose del Monte leader Teacher Tina Borneo and
ASP Hagonoy Chapter Pres Dr. Anawi Tolentino hosted a day-long orientation seminar on autism, the UNCRPD and the parent advocacy for CWD for the PWD Federation officers from the different towns in Bulacan, AKAPIN officers, parents, teachers and the staff from the Provincial Social Welfare Office with their PDAO Focal Person Ms. Pacencia Morada. The ASP Chapters of Bulacan are one with the nation in the celebration of National Disaster Prevention and Rehabilitation Week.

The groundwork has been laid - the ball is now on the hands of parents and the officers to sustain the fervor and continue the active involvement of everyone in promoting and protecting the rights of all PWDs. May ASP chapters in Bulacan continue to blaze this advocacy trail!

23 July 2013

Autism in ASEAN: Unity in Diversity

by Teacher Ces Sicam, Vice President, Autism Society Philippines

Cecile Sicam with foreign officers

The 2nd AAN Congress in Brunei in April 2013 was an eye-opening experience for me. I learned about the status and activities of each country as each delegation gave a report during the formal meetings. But it was during meal times, breaks and field trips that we had the opportunity to share stories in more informal and personal level. Through these interactions I realized how unique each country’s situation is but that we are all bound by the same challenges autism brings.

Our host, SMARTER Brunei, led by its tireless President Malai Hj Abdullah bin Hj Malai Othman, is a center-based family support organization. They have 3 centers exclusively for Individuals with Autism (IWAs) – one for early intervention, another for IWAs aged 6-up and the Brunei Autism Center for Adults (BACA) for occupational training. Almost all of the staff of these centers are Filipinos – from their teachers, therapists, even to their drivers. Their centers are practically tuition-free as Mr. Malai takes care of raising funds to sustain their operations. In 2001 he started bringing the cause of autism to the consciousness of Brunei, almost single handedly, by running a marathon across the country. He eventually got the attention and support of the royal family. And through the years he has been holding musical shows, fun runs and other big projects to sustain awareness and support for their programs. His advice: show you have a good product and support will come. They are encouraging families to put up businesses that their children can work in.

Thailand fielded the biggest delegation to the conference – all 115 of them, including no less than their Secretary of Education. The Association of Parents of Thai Persons with Autism (AU-Thai) is a recognized public organization since 1995 and, under the leadership of Mr. Chusak Janthayanond, has grown to more than 50 network-organizations in as many provinces. It is interesting to note that the incident rate of autism in Thailand is approximately 2-6 per 1,000 people – much lower than the incident rate in the US which we have applied to the Philippine population. It is estimated that there are more than 200,000 individuals with autism in Thailand (population 69.52 million). Autism awareness and support may perhaps been boosted by the fact that the King had a grandson who was known to have autism. (Unfortunately, he died in the tsunami of 2006.) Because of the support of their monarchy and government, Thailand can boast of comprehensive programs for IWAs, including Thai Elephant-assisted therapy. Thailand’s monarchy not only shouldered the expenses the AU-Thai delegation but also paid for the airfare of delegates from Myanmar, Cambodia and Laos. This is early evidence of intra-regional support and cooperation. Very heartwarming.

Malaysia also has a strong organization for autism. The National Autism Society Malaysia (NASOM) established their One-Stop Center for Autism with the support of private business groups such as the Kiwanis. In 2005 NASOM started, managed and financed a pilot programme to integrate children into mainstream schools. Because of the progress shown by students, the model was adopted by the Ministry of Education. They even have residential facilities/group homes for adults.

Indonesia was represented by Dyah Puspitah A. Abdoellah, co-founder and Secretary of the Indonesian Autism Foundation (Yayasan Autisma Indonesia/YAI), a psychologist and mother of a 22 year-old IWA. Dyah also runs Mandiga, an educational center for IWAs. YAI was founded by a group of parents and medical professionals and currently has about 1500 members. Indonesia is the most spread-out and populous country in the ASEAN (their population is about 238 million) and establishing strong links with the families and centers in the different parts of the country has been challenging. Like us, they also dream of establishing an “autism center” that can function as a diagnostic, registration, information, therapy and education center.

The Association for Autism (AfA) of Laos, was represented by its Vice President Thongkham Vongsay who is married to Michael Shultze, a German national, an ADB consultant on SMEs. He recounts that they did not have specialized medical personnel to check and diagnose children with developmental disabilities in Laos. No experts in special education are trained to deal with the disorder and help those persons to live a joyful and meaningful life, to support their families in order to integrate their members with special needs. Autism is virtually unknown in Laos. They had to go to Thailand to get confirmation about his son’s condition. Together with other parents, they put up the Vientiane Autism Center – the only educational institution for IWAs in Laos. Right now they are advocating for recognition and inclusion of autism as a disability in order to get government support.

Cambodia was represented by a very demure grandmother who not only heads the Parents Association for Children with Intellectual Disabilities (PACHID) but also runs a day care center with 20 children with intellectual disabilities in Phnom Penh. Ms. Svay Simorn could not speak English and was accompanied by one of their members, a father, an engineer who works for the government, who translated for her. As in Laos, there are no other institutions for persons with autism and PACHID is advocating for access to education and more support for their center.

One of the youngest members of the AAN is the Myanmar Autism Association (MAA). Just like Laos and Cambodia, the MAA is campaigning for more public awareness and understanding of autism, training of parents and teachers. I could not help but think of parellisms with our situation.

The Hanoi Club for Families of Children with Autism is a parent support group in Vietnam which is working for recognition. Its representative Ms. Hoang Ngoc Bich (pronounced “Bik”) works as a trainor/facilitator in several multinational companies. But she also experienced being her son’s teacher/therapist/mother as there were no programs that were available for her son. Now her son is a teenager studying in a mainstream school.

Considering that ASP was born in 1989, we’re one of, if not the oldest parent support organization for families of PWAs in South East Asia. In some areas, we have come a long way in raising awareness and support for autism. But we still lag behind in terms of providing training and services for adult IWAs.

Meeting the warm bodies and the faces of autism in the ASEAN countries has definitely been enriching. Hearing parents from other countries echo the same problems we face e.g. limited access to appropriate diagnosis and intervention, adult services and accommodations; data gathering, monitoring; organizational sustainability, funding/public support, and public understanding gave me the sense that “we are not alone” - the affinity we get from attending family support group meetings – only on an organizational level. Hearing what others are doing/have done to overcome these challenges is inspiring and reenergizing – tuloy ang laban!

21 July 2013

ASP Diliman Lectures on the Rights of PWDs

The Autism Society Philippines - Diliman Chapter gave a short lecture on Rights of Persons with Disabilities to the Special Education faculty of New Era University last 05 July 2013, in celebration of the National Disability Prevention and Rehabilitation Week.

SpEd Educators of New Era College and ASPs Jo Palomares

Josephine Palomares gave the lecture to around 18 teachers of the SPED Department, using the CD “Educating Children with Disabilities using the Digital Talking Books.” The CD is a project of ASP funded by Australian Aid. It teaches the three basic rights of the child via learning stories using the DAISY format that runs on AMIS platform.

ASP hopes that more and more children with disabilities will learn their basic rights through the help of their teachers. The SPED teachers, with their Directress, Ms. Penelope Sandoval and coordinator, Ms. Liezel Vargas were very receptive and recognized the effectivity of utilizing Daisy to teach other lessons to their special kids.

16 July 2013

Harping on Christian’s music

Christian performs with Prof. Lourdes Gregorio at the UST Christmas Gala in 2010.

By: Dang U. Koe, ASP Chair Emeritus

For almost 25 years now, Autism Society Philippines has showcased the various talents of persons with autism (PWA), including those who are musically inclined through its many events nationwide. Many of them are singers, pianists, guitarists and even drummers. But once in a while, we meet PWAs who play musical instruments that are rarely mastered even by most musicians who are not on the spectrum. Filipino child prodigy Tumtum Mendoza on the marimba, is one. And now, we have Christian Cordero Caragayan on the harp. Angels Talk collaborated this week with Maribu Caragayan, the mother of our harpist with autism, who is also a labor arbiter at the National Labor Relations Commission.

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At two and a half years old, Christian already showed great interest in music, ranging from classical to contemporary. The toddler was so fascinated with musical records (33s & 45s) that he could pick out a particular one that he liked from a stack of records after his mother would hum the tune to him.

“I am lucky that Christian’s talent in music manifested itself in his early years. We just developed it,” according to mom Maribu.

The family first enrolled Christian at the Yamaha School of Music where he learned to play the electronic keyboard. He has also been taking lessons from professional accordionist Sam Lombardo since 2004, after his very supportive maternal grandmother bought a second-hand accordion for him. But it is the harp that Christian has learned to embrace dearly.

It was his grandmother’s dream to have a harp in her house. At age 12, Christian took harp lessons at the Philippine Philharmonic Orchestra Music School of the Cultural Center of the Philippines. Soon enough, he was already playing beautiful harp music to his Lola in her house.

Aside from his loving grandmother, Christian has the full support of his family that includes his parents, younger siblings Christopher and Catherine, aunt Lody who accompanies him to his music lessons when his parents are at work, and Yaya Frina who has been taking care of him since he was three months old.

“I was able to cope (raising a child with autism) because my family was all supporting me, emotionally and financially,” Maribu says.
Christian was also fortunate to complete his elementary and secondary education in a school that integrates special needs students in its regular classes. His school, The Community of Learners, gave Christian opportunities to display his musical talents, including playing the harp during his high school graduation ceremony at the Kalayaan Hall of Club Filipino.

Since then, Christian has participated in a number of summer workshops and student recitals of the PPO Music School. He also took part in various activities at the Cultural Center of the Philippines (CCP). Among these are the “Arts Across the Borders” of the International Visitors Program Alumni Foundation, Inc. in cooperation with the embassy of the United States of America; CCP live auction for the painting exhibit of Raphael D.L. Gregorio; and the launch of a CCP and Net 25 TV program on world-class Filipino artists. He has likewise performed at the “Serenata” of the Parish Church of Santuario del Sto. Cristo in San Juan. Christian’s talent has also been featured at GMA 7’s “Extra Extra” and ABS-CBN’s “Magandang Umaga Pilipinas.”

Later on, Christian was accepted at the Music Extension Division Program of the University of Santo Tomas’ Conservatory of Music. He was blessed to have Professor Lourdes de Leon-Gregorio as her mentor throughout the years, from CCP to UST. This partnership was highlighted with a harp duet during the 8th UST Christmas Concert Gala 2010 at the UST Chapel.

“I underwent the emotional struggle of realizing that my child has autism. I even sought professional help where I learned that it is not the end of the world to have a special child.” Last June 26, as Maribu watched her son during his recital at UST’s Museum of Arts and Sciences, no one could be prouder of what Christian has achieved, not just with his harp.

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ASP’s seminar on July 28 features one of the country’s leading developmental pediatricians, Dr Alexis Reyes, who will talk on “All You Need to Know about Autism” and expound on the concept of “The Medical Home for Persons with Autism.” Venue is at the Philippine Children’s Medical Center in Quezon City. Meanwhile, ASP’s monthly family support group meeting on July 20, will be facilitated by ASP national treasurer Evelyn Go. For details, follow ASP on Facebook, Twitter and blogspot.

This article appeared in print and online by Manila Bulletin on 15 July 2013.

15 July 2013

SJDM Ignites the Light

ASP family, teachers and friends group

The San Jose Del Monte Chapter of the Autism Society Philippines was privileged to host "Filipino Siblings of PWA's: Understanding and Responding to Their Needs" last 01 June 2013 at the Happy Child Academy.

The seminar started with a video on 1Pangako, ASP’s campaign to stop the use of the word "autistic" in jokes and pranks. This was then followed by a prayer and an orientation of the programs and events of ASP by our National President Ms. Jan Peña. Our participants -- family members, friends, teachers of PWA’s -- were indeed fortunate to have Teacher My Sorongon, has been running ASP’s SibsCamp for several years, as our resource speaker. Teacher My’s lecture dealt with the importance of sibling relationships, coping mechanisms, PWA sibling support and understanding. Chapter President of San Fernando City, Pampanga, Mommy Joy Ofrecia and of Hagonoy, Bulacan, Dr. Anawi Tolentino and our very own Mommy Susan Reyes shared more insights and encouraged parents to be active in our advocacy. The event was made special by having siblings Ate Thea and Milli who were very patient and loving to their Kuya Muneer! No better way to learn from others than the sibling advocates themselves.

Thanks to the enthusiastic and motivational efforts of ASP President Ms. Jan Peña, seminars like this one continue to help families who live with autism learn practical everyday tips. The ASP SJDM for the past two years has been learning and growing as a chapter. Despite the hectic schedules and the demands of everyday living, we hold on to our common mission of being advocates for the needs and rights of individuals with autism. It was indeed a day full of blessings and we are thankful for the opportunity to rekindle the flame.

14 July 2013

ASP contributes to the Legislative Agenda for Children

Executive Director Ranil Sorongon of Autism Society Philippines (ASP) joined the different government agencies, non government organizations and faith based group working for children to come up with a legislative agenda for children last June 25 at the Bay Leaf Hotel in Intramuros, Manila organized by the Council for the Welfare of Children (CWC).

Ranilo Sorongon meeting with different Congress people

The legislative agenda for children will be presented to the 16th Congress that will officially commence its legislative function this July. As representative of children with disabilities, being the chair of the sub-committee on children with disabilities, Director Sorongon together with Mr. Randy Calseña of the National Council on Disability Affairs (NCDA) pushed for the inclusion in the legislative agenda a law on “Compulsory Disability Screening of Children” and the inclusion of “Disability Component” in all programs and services of the government. The screening will respond to the national issue of non-identification of disability among children and the high cost of a formal diagnosis of disability. The disability component will address non-inclusion of disability in the mainstream programs and services of the government and will promote basic knowledge and understanding on disability and the different issues related to disability.

Mr. Erwin Lara from the Senate Legislative Liaison Office shared valuable inputs on policy advocacy and his experiences as a lawmaker and committee secretary of the House of Representative, before the formal drafting of the agenda. His practical tips and sense of humor gave the participants a new way of looking at policy advocacy not only in the legislative branch but also in the executive branch of the government.

Ms. Elena Caraballo, Deputy Executive Director of CWC hosted the event.

13 July 2013

Family Support Group in Alfonso, Cavite

ASP's family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering. Only 10 seats are available.
Ms. Janette Peña with son Muneer

Our facilitator for this special Family Support Group session is Mary Janette I. Peña, National President of ASP. Jan is the immediate past President of ASP Bacoor Chapter and one of the movers behind the meteoric creation of ASP chapters nationwide. Her exemplary efforts have gathered hundred of members from Cavite alone. Her passion in serving the autism community earned her a title as ASP’s “hypermom.” Mom to her three children, Tita Jan’s second child is Muneer, a 15 y/o with autism.

Date: 24 July 2013
Time: 8:00am-12nn
Venue: Alfonso Chapter Sped Center, 082 Matagbak, Alfonso Cavite City
Please contact: Ms. Jeanette S. Vidallon at +63908 404-7350 or jeanettevidallon@yahoo.com.ph

12 July 2013

Opening doors to collegiate life

As early as last year, Mrs. Brenda Aihara has been searching for the school suitable for her daugter, Erina, who just graduated from high school. Erina passed her college entrance exams with flying colors in some prestigious universities in Metro Manila, even landing at top 12 in the overall ranking. However, being a person with autism, she has difficulty integrating herself to new environments. She has yet to master social skills, in spite of years of intensive therapy. In her search, Mrs. Aihara learned that Olivarez College is offering a new course in Library Science -- perfect for Erina who enjoys the solitude of reading.

To prepare Erina, a special therapy program was designed for her during summer to gradually psyche her up for college life. She was taught how to commute from her house to Olivarez College even if her mother regularly drives her to school, social stories of what to expect in school was retold to her several times and an actual familiarization tour of her classrooms were done to orient her of her routine before the school opened for classes.

Mrs. Aihara also took an extra effort to make Erina's college life more meaningful by launching an autism awareness campaign in partnership with Autism Society Metro South Chapter of which she is a member, and Olivarez College headed by Dr. Elaine Grace Bognot, the school's physician.

(L-R) Ms. Charisma Leona Evangelio, Mrs. Teresita Abuan (Head, College of Education),
Dr. Elmer de Leon (AVP, Academics and Services), Mrs. Brenda Aihara, Mr. Hiro Aihara,
Mrs. Gina Bermudo, Mrs. Ditas Granada and Mrs. Imee Alviso

Last July 4, the Olivarez College auditorium was full of students, teachers, nuns and medical professionals eager to learn about autism. The Autism Society Metro South Chapter headed by Mrs. Imee Alviso and Mrs. Ditas Granada were present to show their support. Mrs. Gina Bermudo, ASP Board of Trustee, was invited to be the resource speaker. As always, Mrs. Bermudo gave a very powerful presentation where she conducted the seminar with much energy and credibility. After the very informative seminar, an immediate second seminar was requested to which Mrs. Bermudo graciously agreed. She warmly touched the audience's hearts by telling actual stories of how persons with autism and their families are coping up with the challenges of living with autism. Emotions overflowed at the conference room. As a result, the attendees promised to spread the message of autism acceptance and inclusion, individually and collectively.

Such was the beginning of autism awareness in one school -- inspired by a special child, Erina Aihara. By opening their doors to an individual with autism, the school also opened the minds of the students and the teachers to respect, compassion and understanding of individuals on the spectrum.

10 July 2013

National Disability Prevention Week 2013

NCDA Logo
Autism Society Philippines is celebrating this year's National Disability Prevention Week with the rest of the PWD community. The NDPR Week is held every July 17-23, and commencing on the birth date of Apolinario Mabini. It “highlights the nation’s efforts towards disability prevention and rehabilitation leading to the effective integration of persons with disabilities into mainstream of society as mandated under RA 727 otherwise known as the Magna Carta for Disabled persons.”

The theme on “Building an Inclusive and Non-Handicapping Environment for Persons with Disabilities” promotes principles and concepts relevant to inclusive development. The lead agency for this year is Department of Justice and they adopted the sub-theme, “Patatagin ang Karapatan sa Katarungan ng Mga Taong May Kapansanan," highlighting the importance of PWDs on their access to justice in order for them to be a part of inclusive society. The Incheon Strategy, which is built on the Convention on the Rights of Persons with Disabilities and the Biwako Millennium Framework for Action and Biwako Plus Five, will be highlighted in this year's celebration.

Members and friends of Autism Society Philippines are invited to join us in the following activities. Please call the ASP Office at 7-903-5496, if you are interested to join.

July 17, 2013, Wednesday
Walk for Justice
Thanksgiving and Holy Mass celebration
Launching of the Sensitivity Training for Prosecutors
Legal Clinic by the Quezon City Public Attorneys Office
Diagnosis of children who are suspected with developmental disability and other disability

July 19, 2013, Thursday
PWD Product Conference

July 20, 2013, Friday
Poster Making Contest for Children with Disabilities

July 21, 2013, Sunday
Forum for Parents with Children with Disabilities
Forum on Access to Justice of Children with Disabilities
Fun Day for children with disabilities
PARM M.O.V.E. Manila

Read details on the NDPR Week.

09 July 2013

Seminar: All you need to know about autism

Autism is a lifelong developmental disability that affects a child's ability to communicate and interact with others. 1 in 88 children are now diagnosed to be within the Autism Spectrum. Our speaker this month is Dr. Alexis Reyes MD, FPPS, FPSDBP who will expound on the concept of the “The Medical Home for Persons with Autism." This is also ideal for parents of children newly diagnosed with ASD as Dr. Reyes will include all the facts about autism that every parent should know and explain the different interventions and what can and should be done at home.

Dr. Alexis Reyes
Dr. Alexis Socorro L. Reyes MD, FPPS, FPSDBP is recognized as one of the leading developmental pediatricians in the Philippines. She concurrently heads the Developmental Pediatrics Section and the Atty. Jose Miguel Arroyo Developmental and Behavioral Studies Unit of the Pediatrics Section of the UP-PGH. She is an Associate Professor of the Department of Pediatrics at the UPCollege of Medicine, is a Special Lecturer at the Department of Pediatrics of the Ateneo School of Medicine and Public Health, and of the UP-College of Allied Medical Professions. Dr. Reyes is a Past President of the Philippine Society for Developmental and Behavioral Pediatrics. She has served as Vice President of the UP Medical Alumni Society (UPMAS) since 2009 and is a Board Member of several parent-support organizations.

Venue: Philippine Children's Medical Center, Quezon Ave, QC, AVR (Map)
28 July 2013, Sunday, 9:00AM- 12:00NN

Seminar Fee is inclusive of certificate, handouts and snack.
Pre-registration fee is P500 (up to July 22).
On-site registration fee is P600.
ASP Members get a discount of P100.

Register on-line today!

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account # 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are their own and do not necessarily reflect the views of the organization.

03 July 2013

ASP Family Support Group for July 2013

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering. Only 10 seats are available.

Ms. Evelyn Go with son Gelo

Our facilitator for the July 20 Family Support Group session is Evelyn O. Go, Treasurer. Evelyn juggled between managing her business and taking up Special Education in UP Diliman to help her son, Gelo. “This disability (autism) will be a lifelong challenge our family has to face. I accepted this and learned to cope.” With her no-non-sense financial management skills and business instincts, Evelyn has been a valued ASP Trustee, serving as the organization's Treasurer for multiple terms.




Date: July 20, 2013, Saturday
Time: 1:00-5:00PM
Venue: ASP Office, Room 307, ML Bldg., # 47 Kamias Road, Quezon City

Sign up on-line for the Family Support Group. Or call 7-903-5496.

ASP joins Freedom Walk for PWDs

Janette Peña, Raphael Torralba other leaders and members in Freedom Walk

The Autism Society Philippines joined more than 1000 participants, composed of persons with disabilities, officials from the national government agencies and local government units of Metro Manila, leaders and members of PWD organizations and civil society for the annual Freedom Walk last 30 June 2013. The theme, “Each rightful step we take, all barriers we break," stresses the rights of PWDs on the issues that affect their lives.

The walk in an annual event that coincides with the Philippine Independence Day celebration. The event was spearheaded by the Alyansa ng Mga Maykapansanang Pinoy (AKAP-Pinoy) and chaired by the Philippine Association of Children with Developmental and Learning Disabilities Inc (PACDLD). The affair aimed to raise awareness to make a PWD-inclusive society and to express concerns on their rights to a barrier-free society and focuses on the progressive realization of the United Nations Convention on the Rights of Persons with Disabilities which marks the paradigm shift in attitudes from viewing PWDs as objects of charity to a person capable of claiming their rights in all aspects of human endeavors.

Emer Rojas, the Vice Chairperson of this year’s Walk, encouraged PWDs to be aware of their rights as citizens and despite of their disabilities, they should not be discriminated. Both are embodied in the Philippine Constitution and UNCRPD.

The Autism Society Philippines contingent was led by National President, Janette Peña and Program Coordinator, Raphael Torralba, who is also a part of the event’s Technical Working Committee.

02 July 2013

Dining out

Integration and inclusion are important aspects of the personal growth of individuals with autism. Advocates rally for schools and businesses to open their doors to accommodate the requirements of people on the spectrum — this leap begins with a family allowing a person with autism (PWA) the benefit of experiencing every day life in the community. Dining at the restaurant is one such common experience that can be tricky for a family living with autism.

This week’s Angel Talker is Amaris Cabason. She is a frequent contributor to dailies on youth issues and is a sibling to an individual with autism. Her parents, Alex and Marivi, are servant-leaders for the Marikina Valley Chapter of the Autism Society Philippines.

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I remember a story that’s often been told by my father whenever he talks about his experiences in raising a child with autism. He took my brother, then 6 years old, out to eat at a fast food. As they were walking to their table, my brother grabbed pieces of french fries from another table. My father, aside from apologizing to the surprised diners, explained that my brother has autism. Fortunately, the diners just laughed the incident off. I guess it helped that my brother was a cute kid.

My brother is 14 now, and his dining etiquette is leagues better; but I understand how hard it is to dine out with a PWA first-hand. Dining out means a new environment, unfamiliar food choices, changes in routine, and being surrounded by strangers, and PWAs may have a sensory overload from too much external stimuli. As a result, they may throw tantrums or have meltdowns, and cut short what should have been a relaxing family trip to a restaurant. Here are some tried-and-tested tips on preparing for dining out with your child with autism.

PWA Vinz (left) dines out with his siblings.

1. Do advanced research. If your child is a picky eater or follows a restricted diet, it is helpful to look for the menu of the restaurant ahead of time. It also helps to bring your own food just in case. Check the peak hours of the restaurant to avoid big crowds. Check customer reviews — it will give you an idea how attentive and efficient the staff will be to your child. Do they play loud music? Is the service fast? Are the staff friendly?

2. For PWAs who have receptive language, tell him about your plan to eat out. This will lessen the impact of the change in routine if he is notified in advance. This will give him time to mentally prepare for the experience. This will also give you time to remind him to stay in his seat, eat properly, etcetera.

3. Look for a restaurant that is not too crowded, where tables are not too near each other. Your child needs “breathing space,” so he would not feel overwhelmed by the crowd or the volume of people surrounding you or passing by. If the restaurant has a patio, it would be best to stay there.

4. Bring books, gadgets, toys or snacks so your child will have something to do while waiting for food to be served. It usually takes around 10 to 20 minutes for your food to arrive, and the child may begin to be fidgety or impatient during this time. In order to engage him and keep him preoccupied, bringing those mentioned above may help. You may also invite him to walk outside the restaurant for a bit to kill time.

5. Explain your child’s condition to the server if needed. This can help you get speedy service or make the server pay more attention to your table. Be sure to leave a big tip if the server exhibits patience and understanding — kindness needs to be rewarded.

6. Enjoy. Sometimes families get so caught up in trying to avoid a meltdown or attending to the child’s needs that they forget why they dined out in the first place. Families should remember to bond and enjoy and have fun.

This article appeared in print and online by Manila Bulletin on 02 July 2013.

New Office Hours for ASP National

ASP Logo

The office of Autism Society Philippines National at Room 307, ML Building, 47 Kamias Road, Quezon City, will now be open from 8:00 am to 5:00pm, from Tuesday to Saturday, beginning the week of 01 July 2013.

The new schedule was the result of thoughtful deliberation of ASP National's Trustees to accommodate the needs of members, more of whom are available on Saturdays. We also want to be able to provide our office staff with enough rest and work-life balance -- this helps them be more effective and efficient during the rest of the week.

We are in the process of procuring an answering machine for the office, so individuals may leave messages outside office hours -- which the office staff will act on during the next working day.

We look forward to continuously serving our members and the entire Filipino autism community.

 
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