Love overflows at the 8th Laguna Friendship Games

The 8th ASP-Laguna Friendship Games took place at the Nuvali Football Field in Sta. Rosa City took place on 8 February 2014. Selected trainees and apprentices from the Autism Resource Center joined in this annual one-day sporting event.

It started as early as 7:00 a.m. when the registration process took place as a total of eleven teams vied in more than ten sporting events. Laguna-based schools that tool part in the fun-filled day included Field of Little Hands School Inc., Child and Teens Success Intervention Center, Autism Resource Center, Liliw Intervention Center, Shepherd of Faith SPED Center, Hope Intervention Center, GS Option House, Paete Intervention Center for Autism and Related Disorders (PICARD), Calamba City SPED, Work of Heart Child Center, and Child Formation Center. These institutions are based in San Pablo, Calamba, Biñan, Santa Rosa, Los Baños and Paete.

This year’s event was hosted by the Work of Heart Child Center. The Oath of Sportsmanship was headed by Arlene Humarang, a mother; Emmanuel Zamora, a PWD; and Teacher Eric Cuenca of Hope Intervention Center. Allison Dave Albert Lareza led the national anthem and the lighting of torch was spearheaded by representatives of all participating schools. The doxology was led by a group of students from the Work of Heart Child Center.

A little boy plays 50-meter run

A total of 412 students participated in more than 10 sporting events, divided into categories based on age. Some of the events are the 25-meter walk relay with assistance, 25-meter walk relay without assistance, tug-of-war, 50-meter-run with assistance (boys and girls), 50-meter run without assistance (boys and girls), sand relay, tug-of-war, tire relay, coin bank relay, balloon popping, tied legs (garter) relay, puzzle relay, sack relay, straw relay, badminton, dance contest, poster making contest, Little Mr. and Miss Friendship for 12 years old and below and Mister and Miss Friendship Games for 12 years old and above.

This year’s theme is about the rights of persons with autism. Franco Cagayat, a sculptor from Paete, was one of the judges in the poster-making competition. The elections of ASP Laguna also took place during the event. The new sets of officers were introduced during the closing ceremony of the games.

GS Option House served as this year’s grand winner. Hope Intervention Center, Autism Resource Center, Child and Teens Success Intervention Center received the first-runner up, second runner-up, and third-runner up titles respectively for their dedicated team efforts in all the games and activities.

This article is the contribution of David Michael C. Lopez of the Autism Resource Center in Los Baños, Laguna.

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Posted in: authletics,chapters,community,laguna,leaders,sports

Running for a cause

This article appeared on 24 March 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk," edited by Dang U. Koe, ASP Chair Emeritus.

A marathon is a long-distance road race that was instituted in commemoration of the fabled run of a Greek messenger from the Battle of Marathon to Athens. Hundreds of marathons are held throughout the world each year, with the vast majority of competitors being recreational athletes -- all running an official distance of 42.195 kilometres or 26 miles and 385 yards.

“This is a marathon, not a sprint” is a figure of speech often used when a task requires endurance, consistency and fortitude. And for many autism families, this is a perfect metaphor for our outlook in life, in caring for our loved one with autism.

Jah Santander is a devoted wife and full-time mom to Keira, Moira, Tiara and Zachary. When she and her husband Butch decided to run their first marathon, she asked her friends to help keep her inspired, as she ran the challenging race. Friends pledged to donate to the Autism Society Philippines in the event she finished the 42 kilometers -- and this kept Jah focused on her goals. By the end of the race, Jah had raised more than P22,000 -- proof that we all have the power to advocate and to make the world a better place, one step at a time.

Get to know Jah, a first-time marathoner and a mighty mom, as she chats it up with Autism Society Philippines’ Mona Veluz, herself a @mightymagulang.

Jah (leftmost) shares a precious moment with her husband and children.

On her first “Mary.” “I only started running last year. It was my husband who got me into this. I started training for the marathon last September by joining The Bull Runner Dream Marathon where they give us a program to follow, slowing building up our mileage until our big day in February where we'll all did the full marathon. I came up with this idea to run for a cause to make my 42 kilometers more meaningful and worth it. It was more of a wild idea, just a passing thought really. When I got in touch with ASP, my friends and relatives who were supportive of the idea, I just knew I had to make this happen.”

Our her autism journey. “Because of a suspected speech delay, I brought my second child Moira to a developmental pediatrician. She was found to have Global Development Delay at 18 months, which suggested autism. Since then, we've tried all sorts of intervention -- occupational therapy, brain gym, speech therapy, Montessori, SPED school and now a regular classroom set up (with just around 5-6 students). We've also tried biomedical intervention -- the gluten,- casein- and sugar-free diets and supplements. What has really worked for her was ABA which she had three times a week at two hours per session. Right now, her shadow teacher is already in the process of being pulled out and I take charge of the ABA and tutoring at home.”

Jah’s special cause: “My reason for choosing ASP as the foundation to run for is simple. It's because I know how difficult it is, financially, to have someone in the family who is autistic. Therapies, special teachers take up a big chunk of the household budget. It also takes a great deal of patience dealing with them at times. I know that ASP helps people in the same boat cope, through the support system. With you guys around, people know who to turn to when they need people who can understand our unique situation.”

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Being an advocate need not be a ”big production number.” It is all about finding a cause that is close to your heart and taking an earnest effort to help out. If you want to get involved in the Autism Society Philippines work to build a society where Filipinos with autism become the best of their potentials -- independent, self-reliant, productive and socially-accepted members of the community, visit http://bit.ly/asp-getinvolved.

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ASP Las Piñas Chapter invites the public to a free seminar on “Understanding Autism and Children with Special Needs” on April 5, 8 a.m.-12 noon at Our Lady of Pilar Montessori Center, Silver Road, Pilas Village in Las Piñas City. Resource speaker is former ASP National trustee Evert Malapad. Limited slots only! For registration, email autismphils@gmail.com. Follow Autism Society Philippines on Facebook.

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Posted in: angels-talk,journey

ARTism: Drawn Together

Artists on the autism spectrum gathered together on 1 March 2014 at SM City San Lazaro as they showcased their talents in an art event promoting autism awareness.

ARTIsm poster

“ARTism,” a benefit art expo by the Mu Sigma Phi Sorority of the UP College of Medicine, with the Autism Society Philippines and the Association for Adults with Autism in the Philippines as partners in the autism community, was an art exposition aiming to promote awareness on individuals with Autism Spectrum Disorders (ASD) by giving them, along with other participants, a venue for self-empowerment through art and music.

The event was participated by many regular and budding artists, young and old, surrounded and inspired by artworks created by such individuals with autism as Vico Cham, Andrei Macapagal, and students of Sta. Belina Learning Center in Dasmariñas, Cavite.

While the participants create their own masterpieces, they were serenaded by the music of ASP’s talents. Tum-Tum Mendoza, winner of the 2013 National Music Competitions for Young Artists, rendered classical and contemporary musical pieces on his signature marimba. Also, Christian Caragayan, Trisha Cardino, and Clarence Cruz, who all performed during ASP’s Angels Walk at the MOA Arena, shared their talents before everyone.

I also had the honor of sharing my experiences, as I discussed with the participants on my journey as both a multimedia designer and a self-advocate, what with my projects with ASP, including 1Pangako and CAUSEPLAY, how such areas of art as graphic design and cosplay can be used as tools for advocacy toward autism awareness and understanding.

It was a great opportunity to showcase the wonders and the value of being on the autism spectrum, what with our achievements and skills being the highlight of this event, which also aims to benefit the Rehabilitation Ward of the Philippine General Hospital, through proceeds from both registrations and merchandise. It was also an opportunity for self-advocates like us to be drawn together and show that “Yes, we can.”

(This article is the contribution of Gerard Joseph Atienza, a proud self-advocate and the Secretary of the ASP Bacoor Chapter)

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Posted in: art,community,education,self-advocates,sm,special,therapy

My First ASP Chapter Leader Conference

The first time I got an invitation to attend Autism Society Philippines 2014 Chapter Leader Conference, I had mixed feelings. I felt excited with the idea of meeting and learning from other leaders; and at the same time nervous not knowing what to expect. Yet, I just knew that this is something that I have to attend for the benefit of ASP Sta. Rosa Chapter and our children with autism (CWAs).

The two-day conference last 8-9 March 2014 at Eurotel Pedro Gil was in-depth enough for me to appreciate the work that we do and learn more about how to become a better advocate for our CWA’s. The organizers made sure that there is a balance in activities where participants can interact, share and learn.

I liked the workshops where I was grouped with seasoned leaders and relatively new chapters officers like me. It made me feel comfortable knowing that my current concerns such as finding funds, how to grow members and how to make meaningful activities are shared by other chapters too. I got lots of tips from my group members. The discussion on ASP’s policy agenda was very lively and the facilitator made sure that real life examples were given on how to better push for them given the opportunities as chapter leaders. The topics on communication and project management were focused on our needs as an organization. The very credible speakers made sure that such topics usually only found on corporate seminars were tailored to our needs; and I saw a lot of benefits in using these tools to professionalize our organization. I particularly enjoyed the role playing on communication where the organizers allowed the participants to apply what they have learned given real life scenarios. It was not only a learning experience but a fun-filled activity that showed real talents in acting among the Board of Trustees (BOT’s) and the participants as well!

Dr. Olive Medina, ASP Sta. Rosa President, preparing with her group for the role-playing exercise.

During our small breaks in the conference, I appreciated that the trustees are going around the table to make the effort to interact with the participants and made us feel comfortable. Suddenly, I do not feel like a “newbie” anymore. ASP is certainly more of a family where the support and camaraderie is strong.

As the conference is loaded with activities and information, there is a tendency for us to forget some of the details, but the organizers made sure that we went home fully armed not only by their promise to send all presentation materials but by giving us the ASP primer. In this way, we can easily share to the rest of the officers in our chapters. The primer is a very useful tool to make sure that the sixty eight (68) chapters are aligned and have one voice in making our advocacy real and clear to all stakeholders.

The 2014 Chapter Leaders Conference was a success for me -- not only because I became equipped with the tools needed to lead better -- but it made my heart burn with more passion to reach and help our CWA’s and their families. I am grateful to the Board of Trustees and ASP National officers and organizers for their perseverance in gathering the officers together. I still have a long way to go and much more to learn; but I am glad I took that first step in growing as a leader by attending the Chapter Leader Conference.
(This article is the contribution of Dr. Olive Medina, President of the ASP Sta. Rosa Chapter)

Here are other comments from other chapter leaders:

• “I learned a lot today. I've got something to share again with other people especially to the parents / educators who are very well concerned of what Autism is all about.”
• “The chance to be with the leaders and the trustees of ASP gives me clearer perspective on how to better influence our members to improve the chapter and the chapter’s activity.”
• “It is really amazing hearing all the information that will be on our chapter. Talagang brainy ang lahat ng speaker. In all the CLC is a fruitful event.”

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Posted in: clc,conference,leaders

ASP Chair Emeritus talks at PVI

ASP Chair Emeritus Dang Koe gave a talk on “Communication and Leadership” to Kamp Pagkakaisa Volunteers Inc., formerly known as PVI-Foundation, last 2 March 2014 at TSB Seminar Hall, Meralco Avenue. College students taking up Psychology, SPED, Nursing students, among others; as well as professionals were in attendance.

The seminar is for primarily for volunteers who would are interested in joining the 10-day summer camp for CWDs; in acting as trainers for other volunteers on how to handle CWDs. They received practical exercises on basic leaders’ communication tools. The sessions were designed to be fun, interactive and practical.

Dang Kow lauded the volunteers. “I “bowed” to them for choosing to be volunteers for PVI. Volunteers are from all walks of life -- this year, we have students, professionals, even foreigners. It is amazing that they really want to spend time with CWD’s.”

ASP Chair Emeritus Dang Koe receives a certificate after her talk at PVI

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Posted in: community,volunteers

ASP Family Support Group for March 2014

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Marinette and Edgardo

Marinette Yan Aglipay was among the 11 founding mothers, back in 1989, of the Foundation for Autistic Children and Adults of the Philippines -- the precursor of what is now known as the Autism Society Philippines. She graduated cum laude from Maryknoll College with a degree in AB International Studies. She is the better half of retired Gen. Edgardo Aglipay, the former chief of the PNP. Her daughter Emmeline Aglipay serves as the DIWA partylist representative in Congress. The fight for the dignity of laborers, soldiers and the marginalized sectors (such as persons with disabilities) continue to be a family advocacy.

We encourage all ASP chapter leaders to join, not only to learn from Mrs. Aglipay's 30+ years experience in championing for her CWA Mariel; but also to hear how she keeps burning the "fire" to serve the community as a private individual.

Date: March 22, 2014, Saturday
Time: 2:00-5:00PM
Venue: Quality Life Discoveries, 70 20th Avenue, Murphy, Quezon City
Map: http://bit.ly/1d8zGOh

Sign up for the Family Support Group below or call 7-903-5496. Only 30 seats are available.

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Posted in: fsg

A Happy Happy Walk

The annual Happy Walk to honor our special fellows with Down Syndrome was successfully celebrated last 23 February 2014 at the SM North Edsa Sky Dome.

As an advocate of the Autism Society Philippines, I was HAPPY to venture outside my usual pursuits and HAPPY to have expanded my cause. I was HAPPY with the warm welcome of the participants and the organizers. I was HAPPY with the giant bear hug from Jeremy Lapeña a son of DSAPI president Elmer Lapeña -- it made my day!

PWD Advocate Powerhouse! Team SM Cares, Team DSAPI and Team Autism Society Philipipnes

The Happy Walk was designed to be family-oriented, which explains how each presentation engrossed the audience, made them laugh, sing, and dance along. The crowd was enthusiastic, and the feeling of being part of a very big family was awe-inspiring.

Having experienced previous Happy Walk’s, I’ve noticed that the crowd has multiplied several times over! Congratulations DSAPI!

Waking up early in the morning to prepare for the Walk was doubtlessly worth it. I look forward to being part of the Happy Walk 2015 and to seeing a stadium full of smiling faces again.

(This article is the contribution of Anthea Carmeli I. Peña of the ASP Bacoor Chapter. Thea is the daughter of ASP National President Jan Peña.)

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Posted in: community,special

ASP speaks at SPEED Formations Assembly

(This article is the contributions Jed Carangan, member of the Ateneo Special Education Society.)

The Ateneo Special Education Society (Ateneo SPEED) is a student organization in the Ateneo de Manila University which caters to people with special needs. With the finality of the looming end of the school year, the members or the Speple, often pause to think about how to further live out SPEED’s advocacy beyond school, especially for graduating students. SPEED’s Formations General Assembly 3 (FGA 3) serves as an avenue for further reflection and self-exploration in the context of SPEED’s activities for the past year and what to do for the next year or the long-term in the context of SPEED’s advocacy. It is also a seminar that provides guidance to Speple should they choose to actively engage in championing SPEED’s cause.

Erlinda “Dang” Koe of Autism Society Philippines shared her experiences as a mother of three, her eldest son with autism. Despite the difficulties she encountered, she was still able to lead a fruitful and fulfilling life, both for her and all her children. As she shared her experiences, her words echoed the similar challenges that Speple face in interacting with persons with special needs, and it was touching to listen to how she found fulfillment and joy brought forth by her son, similar to the sense of fulfillment that Speple feel upon the conclusion of each area visit, and after being in the company of people with special needs.

ASP Chair Emeritus Dang Koe addresses the "Speples" on volunteerism.

She also shared the various ways that people can help in spreading ASP’s advocacy through volunteering to work for ASP. She shared how Speple after graduation can still continue to work for SPEED’s and ASP’s advocacy, even if they can no longer directly participate in the events of SPEED. This allowed Speple to consider different avenues for promoting SPEED’s advocacy beyond school, which is especially important for graduating students as SPEED’s members come from various courses. Inevitably, Speple will be pursuing different career paths after graduation, which will make it difficult for each of them to push for SPEED’s advocacy just as vigorously. Dang Koe’s talk allowed Speple to realize a common ground for them to continue promoting SPEED’s advocacy, despite the different paths in life that they would have taken, which is through the spirit of volunteer work.

After Dang Koe’s talk, the Speple were asked to break into small groups for further reflection on SPEED’s advocacy and Dang Koe’s talk. This was an avenue for the Speple to reminisce about their stay in SPEED, and to further reflect on how they cherish SPEED’s advocacy and how they have grown to embody its ideals.

Dang Koe was also joined by ASP Trustee Peng So, whose PWA son Patrick, is graduating from Ateneo de Manila this March with a BS Life Sciences, a 4-year undergraduate honors program.

Overall, the FGA 3 was an apt conclusion to SPEED’s year. It allowed its members to consider what can be done for the advocacy in the future and to look back at how they grew as persons dedicated to helping make the lives of people with disabilities richer.

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Posted in: ateneo,education,friendship

ASP signs Project Inclusion MOU

The Autism Society Philippines, two other national advocacy organizations and five learning institutions signed Memoranda of Understanding with Unilab Foundation, through Project Inclusion, last February 26 at the Bayanihan Center in Mandaluyong. The agreement cemented the group’s commitment to working together to achieve workplace inclusion for PWDs, especially for those with Autism and Down Syndrome.

Project Inclusion with speakers

Rhodora Fresnedi, Unilab’s executive director, shared her vision for a world where businesses see the bottom-line benefit of employing individuals with disabilities. Fresnedi predicts that employment of individuals with developmental and learning disabilities will become a common industry practice. She also shared the rich set of projects that Unilab Foundation is investing in, dedicated to advocating for health for all Filipinos.

Mona Magno-Veluz of the Autism Society Philippines spoke in behalf of the advocacy groups: ASP, Association for Adults with Autism and Down Syndrome Association of the Philippines. She shared her personal journey as a parent of a person with autism; and likened this to the direction of parent-driven advocacies. She opined that it is no longer enough to drive disability awareness and acceptance. With the help of companies like Unilab, we can all together more actively champion inclusion.

Prof. Archie David of ILLC took to the microphone to speak in behalf of several educational institutions: ILLC, Bridges Foundation, CARD, SHINE, One World School and The Learning Center. He regaled the group with stories of the successes of young adults they have mentored and placed in compassionate workplaces. He shared his hope that this “dreamlike” support from the business sector continues and amplifies in the years to come.

Project Inclusion seeks to prove by way of an academic research approach that hiring PWDs, particularly those with autism and Down Syndrome will be beneficial to business. One of the project’s outputs will be a resource book for designing and development of appropriate assessment tools for employers and employees, with limited but usable skills, abilities and behaviors.

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Posted in: best,employment,mou,unilab

DepEd honors outstanding SPED centers and teachers

DepEd organized the search for outstanding SPED centers and teachers through the Bureau of Elementary Education SPED Division to honor the efforts of the schools, teachers and officials, in supporting and delivering the education agenda to children with special needs.

“Only those with a great deal of intelligence, fortitude, and love can nurture learners in an atypical setting. This recognition is a small thing compared to all the difference you’ve made for the future generation,” lauded DepEd Secretary Armin Luistro.

Baguio City SPED Center garnered the top award as the best SPED center in the country, followed by the La Union SPED Center in the City of San Fernando; and the Kapianan SPED Center in Tuguegarao City.

In the individual category, Mary Joy Suganob of Aklan emerged as the best teacher for children with autism. In second place is Marilou Mina of Cavite City; followed by Eloida Mabiog of Marinduque in third place.

Winners were given cash gifts and plaques. But clearly, when public teachers and learning institutions elevate the standards of education and intervention for their students, the true winners are the special learners in their care.

ASP extends its heartfelt thanks and congratulations to all the winners. The full list of winners can be found at the DepEd official website.

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Posted in: chapters,community,education,regional

Ask Dr. Alexis Reyes

Dr. Alexis Socorro L. Reyes is recognized as one of the leading developmental pediatricians in the Philippines; and is a sought-after speaker and resource person on the management of developmental disabilities. She serves as a technical adviser to the Board of Trustees of the Autism Society Philippines.

Dr. Alexis Reyes

Dr. Alexis answers some questions raised during the 13th National Autism Conference.

How do we classify autism -- a behavior condition or cognitive disorder?
Autism Spectrum Disorder is still classified as a neuro-developmental disorder and has associated co-morbidities like intellectual disability or mental retardation. It is a unique and different classification separate from behavior disorders like ADHD and intellectual disabilities like mental retardation which has many causes.

Autism numbers are increasing in other countries, how can we be sure this is the same for the Philippines?
Prevalence has been established by different countries in their respective contexts. There is no prevalence in the Philippines; hence we are still working on data provided abroad and as such can only extrapolate from what is available.

Should a 17-year old still see a developmental pediatrician? If not, what kind of doctor should he see? Until what age should he be monitored?
If this 17-year old has not been diagnosed for a specific developmental disorder, he/she can see any of the following: a developmental pediatrician, a child neurologist or a child psychiatrist. Follow-up is determined by the nature and implications of the diagnosis.

Is the DSM-V the new tool to be used by all developmental pediatricians? How do we know if they are using the latest assessment standards? Is it okay to ask?
The DSM-V is a manual for mental health professionals and should be used as a set of guidelines; hence the diagnostic criteria for each of the different medical/psychiatric disorders. This is not a tool but is the basis for most tools. Your developmental pediatrician will know this and its clinical purpose.

Does risperidone cause seizures? My son has been taking risperidone for almost 6 months and he started showing epileptic-like seizure.
Risepridone does not cause seizures. It is difficult to determine whether this is a direct effect of this medication; because there are other important factors in place. More information is needed regarding this child’s history and diagnosis.

If you have a question on autism and its management, send it to us via the form below and we will periodically publish the answers from Dr. Alexis. ASP reserves the right to screen or paraphrase the submitted questions. We will try our best to answer all questions; but we cannot guarantee if or when answers will be published.

Note that this is NOT a replacement for bringing your child to a developmental pediatrician. Dr. Reyes can only share general answers, not specific to a particular person or case. This form is also not a means of requesting an appointment from Dr. Reyes.

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Posted in: ask-alexis

The Pinoy Autism Advocates Calendar

In the 25 years since the Autism Society Philippines began its advocacy, many international and local initiatives have been created for the benefit of persons with autism. Here are some important annual observances every well-informed advocate should know.

Philippine National Autism Consciousness Week
By virtue of Presidential Decree No. 711, Fidel V. Ramos declared in 1996, the third week of January as National Autism Consciousness Week. “The aim of the Philippine Government to develop awareness of the problems of autistic persons and promote a supportive environment among communities to enable autistic persons to live with dignity and enable them to function independently and contribute productively to society.”

A record 10,000 advocates came out en masse at the Angels Walk 2014,
held during the National Autism Consciousness Week.

Autism Sunday

Autism Sunday, also known as the International Day of Prayer for Autism is observed annually on the second Sunday of February. It was initiated in 2002; and was first celebrated in the United Kingdom.

World Autism Awareness Day
World Autism Awareness Day is on April 2. It was adopted by the United Nations in December 2007. The observance aims to raise awareness of autism on all levels in society and is participated in by UN organizations, member states, NGOs and private and public organizations.

Autistic Pride Day
Autistic Pride Day is an initiative by the self-advocate group called “Aspies for Freedom.” This annual observance on June 18 of every year is a celebration of the neurodiversity of people on the autism spectrum. “Autistic pride recognises the innate potential in all people, including those on the autism spectrum.”

National Disability Prevention and Rehabilitation Week
As per Proclamation No. 1870 (1979), Proclamation No. 361 (2000) and Administrative Order No. 35 (2002), the NDPR Week is being commemorated annually every July 17 to 23. It aims to stimulate public awareness on the issues and problems of disability, thereby encouraging every citizen of the country to take active responsibility in the upliftment of the economic and social conditions of PWDs of our society. It culminates on the birthdate of Apolinario Mabini.

International Day of PWDs
International Day of People with Disability on December 3 is an international observance promoted by the United Nations since 1992. It has been celebrated with varying degrees of success around the planet. The observance of the day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities.

Advocates should also bookmark the Autism Society Philippines’ calendar at http://bit.ly/asp-calendar. See you at our next event!

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Posted in: community,government

Autism and Amazing Self-Expression

This article appeared on 10 March 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk", edited by Dang U. Koe, ASP Chair Emeritus.

The Autism Society Philippines was one with the nation in celebrating the National Arts Month last February. ASP partnered with NCCA, Metrobank Foundation, MADE and SM Supermalls to mount "The Art of Healing," a unique art therapy workshop given exclusively to ASP members at the SM Aura. The experience brought to the fore how art is a powerful force of self-exploration and healing for many young adults on the spectrum.

Self-expression through art is the apparent refuge of many whose communication is limited by autism. And for some, what they lack in social skills, they compensate for with a “great eye” and a steady hand. Artists like JA Tan, Gabriel Atienza and Tomas Perez-Rubio have been lauded for their unique perspective and enviable dedication to their craft.

ASP National Secretary Mona Magno-Veluz returns as this week's Angel Talker to introduce us to an up and coming artist on the spectrum and his gift of perspective -- Lance “Tikoy” Basilio.

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Lance Basilio, for the most part, is your typical 11-year old boy. Aloof and handsome, his long hair tied in a ponytail hints to non-conformist tendencies. This young man with autism has long been fascinated by cityscapes and spent many an hour drawing imaginary cities on pen and paper, since he was four years old. Without referring to the original, he can recreate a drawing he did a year back so well that you would think you are looking at a photocopy. Gifted with muscle memory, Tikoy can make replicas down to the stroke imperfections.

Lance Basilio and his mom Mimi

So exemplary is his passion and artistry that Lance was highlighted by the Museo Pambata as one of their featured artists. “Tikoy’s Gift of Perspective” ran from February 16 to 22, 2014; and attracted many visitors from the business and art communities. The exhibit was opened by socialite and art enthusiast, Tessa Prieto-Valdes. [Erratum: Due to popular demand, Tikoy's exhibit has been extended to March 15.]

Mimi Basilio, Lance’s mom, feels that the ability to recreate on paper the fascinating places his imagination takes him is what allowed Tikoy to better express himself. And this outlet made a difference in his academic work. From being in a special program in Bridges Foundation, he successfully transitioned to the mainstream of Maria Montessori in Pasay.

Without any formal training or strong artistic influences, Tikoy never felt his drawings were special. It took the prodding of his mother, an interior lighting designer, and his godmother Shoko Matsumoto, the Cultural Center of the Philippines resident lighting director to persuade him to mount a solo exhibit. In the end, Tikoy became convinced and worked feverishly to create the pieces that were displayed in his exhibit.

Aside from being an artistic endeavor, the exhibit also opened doors for Tikoy’s talent to translate to a future livelihood. Mimi Basilio transformed some of Tikoy’s sketches into elegant lamps. Some designs were also made into t-shirts which were sold to benefit the Museo Pambata. More interesting still, a Japanese fashion house expressed their desire to manufacture Tikoy’s art into fabric prints. It is clear that Tikoy’s art has a commercial appeal he can leverage on in the years to come.

“Am I a celebrity?” Tikoy innocently asked his mom, when an exhibit guest asked for his autograph. While Tikoy is not yet a household name, the future is looking very bright for this talented young man on the spectrum.

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The United Nations declared April 2 as the World Autism Awareness Day. Advocate organizations like the Autism Society Philippines will commemorate the day with various events and activities. Get the latest updates on our Facebook page ( http://www.facebook.com/autismsocietyphilippines) and join us!

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Posted in: art,feature,pers

Behavior Management Seminar in Alfonso

The ASP Alfonso chapter conducted a parent seminar with occupational therapist Mr. Mike Kelvin T. Esguerra with Ms. Rose Ann Tuduc at the SPED Center, Alfonso Central School, in Alfonso, Cavite on 02 March 2014. The seminar tackled Behavioral Management and Sensory Integration Science.

ASP Alfonso after Behavior Management seminar

With the guidance of ASP President Jan Peña, the seminar was designed for ASP members, parents from Alfonso SPED Center, and day-care workers. The seminar was so well received that Mrs. Jasper Alcedo, the MSWD / PWD Coordinator, will propose a follow-up seminar, together with the local government of Alfonso.

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Posted in: 4parents,4pros,chapters,community,education,regional,seminar

Ormoc District 2 Chapter holds a Family Support Group

ASP Ormoc District 2 Chapter held a family support group meeting last 14 February with Mr. Ranil Sorongon and Teacher Lian del Valle of ASP Laguna as facilitators at St. Paul's School of Ormoc Foundation, Inc.

Among the concerns discussed by the members were how their children have been affected by the typhoon and its aftermath in different areas of development particularly on self-care and social skills, flexibility and adaptability; reasonable accommodations for those enrolled in the mainstream; the need for more trained speech aides and how parents can be encouraged to be more active in their child's various intervention programs.

Teacher Lian advised the members to address their children's needs with fresh eyes, as if "your children have just been diagnosed" to gain an accurate assessment of their learning behavior, social skills, and other life skills. "Tapos na si Yolanda. Panahon na para tayo ay bumangon at magsimula ulit. Let us start again."

Mr. Ranl Sorongon and Teacher Lian del Valle leading Family Support Group of ASP Ormoc District 2

Ranil further emphasized how parents need to be all the more empowered to take an active part in their child's intervention programs, which is the main objective of ASP. "The only people constant in our child's life are us, the parents. This is why we draw on the resources (OTs, SLPs, APED teachers, etc) to train the parents, to empower each other to become our child's own therapist."

The meeting being the first for the chapter to have Mr. Sorongon and Ms. Del Valle as facilitators, was truly enriching and heartening for the members. The five parents and two SPED teachers who attended certainly brought home a wonderful learning experience.

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Posted in: community,fsg,regional

Innovating Advocacy Campaigns for Children with Special Needs

The University of the Philippines and Advocata, an organization of professionals, parents and volunteers who advocate for special children and their families presented a two-day lecture-forum series over two days, “Innovating Advocacy Campaigns for Children with Special Needs,” with four major support groups for autism, ADHD, Down syndrome, and cerebral palsy, at UP College of Education, Diliman Campus last Feb 19 and 21.

Ms. Gina with professionals, parents and volunteers

Rose Villasor, Advocata President, conceptualized the activity in line with the course, Introduction to Special Education (EDSP 101) which she teaches at UP Diliman. It is hoped that through this personal encounter with people who founded the organizations, the students in her class will be inspired to join or create their own advocacy groups.

ASP’s Gina L. Bermudo whose talk focused on how and why Autism Society Philippines was created and what its reason for existence. Gina shared ASPs vision of creating a society where Filipinos with autism become the best of their potentials -- independent, self-reliant, productive and socially-accepted members of the community. She called on the students from different universities who are taking Special Education classes to be involved in ASP’s activities by joining or volunteering their time and services to the organization.

Gina spoke about one of Autism Society Philippines’ public campaigns, called “1Pangako” (http://bit.ly/1pangako), an example of an innovative advocacy campaign Rose can share with her other classes.

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Posted in: community,education

Catanduanes commemorates 18th NACW

(This article is a contribution of Ms. Fatima Dalisay Kozma, ASP Catanduanes Chapter Vice President.)

The participants gathered at the Virac Municipal's office ground on 15 February 2014, Saturday as early as 5am in support of Autism Society Philippines Catanduanes Chapter’s first ever fun run. With two categories, a 3km and a 5km distance, the run inspire early risers to leap with vigor, after the warm up; and they ended back at the Municipal's grounds in less than an hour. The run was lauded and led by the Philippine Army and the Philippine National Police.

18th NACW chapter active team

Awards were handed out, photos taken for momentos, and a Zumba workout followed. When all was said and done, Jollibee even spent a few minutes to be with the children with special needs.

The grace and tenor goes to the team who worked diligently, keeping their family in tow, with each step all the way. Though it has been a hectic and stressful preparation, we are definitely grateful for the outcome.

A heartfelt appreciation goes to DILG representative, especially Sir Jun, who gave much to the boost of our Run, BIR, the Mayor's Office's Representative, Sir Roger, the Governor's office, Ms Julie Gonzales and the Vice Governor's office representative, Sir Teves, the Red Cross, Sea Breeze Resto and Teacher Liza Molod of Jmames.

At the beginning of the National Autism Consciousness Week, the chapter's active team, Marjorie Cantollas, Gie Laynes, Liza Molod, Irene Molina, Jennifer Torres, Heidi Fernandez, Kristine Gamil and myself, spent two weekends, (January 25 and 26, 2014 and February 8 and 9, 2014) on a rotation, at the Center Mall of Virac. The members set their stall and accommodated people with queries on autism, our cause, activities and of course the Fun Run, beginning at 8am till 7pm. The people were curious and some reluctant as they passed us by. For the most part, there were a lot of familiar faces, during those days and it was a pleasant experience of giving resources to the inquisitive few and listening to the troubled and concerned individuals. With a bit of humor, gusto and warmth, we also reached out to the listeners of the island's Radio Station, Radyo Natin, in hope we did touch lives in some way, during this celebration.

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Posted in: chapters,nacw,regional

ASP Ormoc Chapter I leads 3rd Angels Walk

Hundreds of parents, teacher, advocates and children flock to the city stage plaza for this year’s 3rd Angels Walk as its culminating activity in celebration of the National Autism Consciousness Week. Said event was spearheaded by the ASP Ormoc Chapter 1 president Engr. Generoso P. Managbanag in coordination with Ormoc City SPED Center faculty and staff. ASP Ormoc chapter faculty and staff. ASP Ormoc chapter district also joined in the walk.

Highlight of the celebration were the Drawing contest dubbed as “Colors of Autism” participated by all CWAS who were all smiles the whole day as they look at their artworks displayed for public viewing. Their happiness could not be contained especially when they received their cash prizes as their parents and guardians watched beaming with utmost gladness. There was also a Jingle Singing Contest by the gifted / talented pupils of Ormoc Sped as their way of showing their empathy to the CWA’s. The topic of the Jingle contest was based on this year’s theme “Katuparan ng Karapatan ng mga Pilipinong may Autism: Isulong Mo, Ngayon Na!.“ Various dance and song presentations by our children with special needs were showcase during the program to the delight of the audience.

The annual walk was participated in by numerous college institutions and companies such as Ormoc Credit Cooperative Inc. (OCCI), Eastern Visayas State University (EVSU), Western Leyte College, Saint Peters College, Sto. Nino College, STI College of Ormoc, St. Augustine Montessori School, ABLE Buddies & Therapy Center and our strong and dynamic partner in Special Education, DSWD of the Local Government of Ormoc.

There were also professional advocates who took part in their pledge of commitment to continue in supporting ASP in all our advocacy campaigns, programs and projects. Mrs. Arlene Sia and Mrs. Milagros Villamor of OCSC; respectively: 2013 Regional Outstanding SPED Teachers further dedicated their awards to bring out the best in the life of a child with autism.

Mr. Managbanag in his closing message extended his heartfelt gratitude to all parents whose unwavering love and devotion to their children especially those with special learning needs never faltered.

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Posted in: angels-walk,chapters,community,nacw,regional