Gio Danniel, the Before and After

National Family Week is celebrated the the United Kingdom from August 25-31 this year. The Filipino autism community is one in celebrating family life and encouraging families to spend more time together, highlighting the important role families play in society; and in raising of happy, well-adjusted children.

Gio Danniel, the Before and After

This KOEmposition is a KOEllaboration of KOEple JOE and DANG for the school yearbook of their eldest KOEboy GIO, then 7yo now 20. Mama Dang, ASP Chair Emeritus, has been serving the Filipino autism community for almost 20 years now. A much sought after speaker, she uses this KOEmposition as the KOEnceptual framework in sharing her family's journey and advocacy, updating it regularly as Gio reaches new milestones, and even after Papa Joe's passing.

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Posted in: family,journey,poetry

Team ASP discovers the new SM Exploreum

The SM Lifestyle Entertainment, Incorporated (SMLEI), through SM Cares, recently invited Autism Society Philippines to be among the first guests of the newly renovated Exploreum at the SM Mall of Asia. Eight new galleries which include 250 interactive exhibits will continue to show educational content through state-of-the art technologies. Exploreum is a place of total immersion that will stimulate curiosity and inspire interest in science. It’s guiding principle is to make science relevant in everyday life at the same time make learning fun and interactive for its patrons.

Exploreum had its soft opening and ASP had its first taste of the new Exploreum last 9 August 2014, bringing in a total of 50 CWAs with their parents. The CWA’s had a fun day exploring the whole center and taking curious walks through the new galleries. Below are the parents’ testimonials on their experience at Exploreum with their kids:

CWAs and Family in SM Exploreum

Monique Pinpin with son, Mico: “We enjoyed exploring the exhibit of helicopter models especially my son who is fond of looking at the spinning of its ‘elisi’ and the different wheels used for transportation. Thank to SM Exploreum for inviting us.”

Leyminda Maranon, with son Julliann: “He was happy and enjoyed the event. He immediately told his dad about his experience through phone call right after the event. He learned about what happens in day and night through the planetarium show. Most of all, he socialized well with other CWAs.”

Imelda Alviso, with son Paulo: “My kid enjoyed it especially the many trivias written. It’s very informative and SM Exploreum employees are very friendly and smiling. The facilities helped them in turn taking, waiting, focusing, and listening to different sounds.”

Annabelle Saman, with son Gerard John: “We really had fun and my son enjoyed the exhibit especially about the solar system, earth and volcano. And the gallery attendant was also impressed that he knew about how many planets we have and he named them in order. He also enjoyed the show from planetarium and he felt like travelling to the moon. Thanks a lot to SM Exploreum for this opportunity.”

Agripina Macaroy, with nephew Lance: “We really had a great time exploring the Exploreum. It was so amazing and very educational. My nephew really loves Exploreum, especially the vintage cars that’s why he wishes to go back there again.”

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Posted in: community,science,sm

308 participants join ASP Marikina’s seminar

ASP Marikina Valley Chapter conducted a back to back seminar on “Managing Children with Special Needs at Home” and “Managing Children with Special Needs in School” last 23 August 2014 at the Marikina City Hall. The seminars were conducted in response to the observed growing number of children with special needs which has caused concern to parents, schools and learning institutions. Behavior management, both in the classroom and at home, is crucial since these children have unique symptoms and needs that go beyond the normal “childish” behavior. If not properly addressed, incidents causing trauma to the child, anxiety to the parents and teachers and embarrassment to the school may not be avoided. It is in the best interest of all parties concerned to work hand in hand in dealing with the problem.

Participants during Managing Children with Special Needs at Home and Managing Children with Special Needs in School

The seminars oriented the participants about the behavior difficulties attributed to the
conditions of the children with special needs and what strategies can be adopted to manage them. Ms. Karla Czarina D. Tolentino, OTRP talked on Behavior and Sensory Integration, while Ms. Angela Claudine M. De Leon, SLP centered her talk on Language Stimulation. Applying SPED techniques were discussed by Ms. Marilou Gerero-Vispo and Ms. Jacqueline Glori, both licensed and practicing SPED specialists. ASP Marikina Valley Chapter President Mr. Alex Cabason also emphasized the importance of having a family support group and made a brief presentation on ASPMVC and its activities.

A total of 308 participants attended the seminars. The morning session entitled,
“Managing Children with Special Needs at Home” had 82 participants and the afternoon
session: “Managing Children with Special Needs in School” had 226. The participants were a
mix of parents, caregivers, teachers, therapists and college students from schools,
universities, therapy centers/clinics from the cities of Marikina, Pasig, Antipolo, Quezon,
Pasay, Valenzuela and Manila; the municipalities of Taytay, Cainta, San Mateo, Rodriguez,
Morong, and Cardona; and provinces as far as Bulacan, Cavite, Laguna and Batangas.

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Posted in: 4parents,4pros,4siblings,seminar

Lights up Sounds down in Pampanga

Children with autism are known to be sensitive to a variety of sensory stimuli; and because of this, most of them cannot enjoy some leisure and relaxation activities typical individuals do. One good example is movie-watching, most children with autism cannot get inside a movie house; and therefore cannot join their families and enjoy a good movie together. The darkness of the room, the loud sound, the required quietness while watching and the prolonged sitting can contribute to sensory overload, which may lead to tantrums.

Participants watching “Lights up Sound down”

SM Cares through SM City Pampanga hosted a SFM event entitled “Lights up Sound down” exclusively for children with autism and other disability last 30 July 2014, Wednesday, 10 in the morning at SM City Pampanga Cinema 3. The activity aims to provide children with autism a movie watching experience on a big screen inside a cinema that have been adapted to their sensory sensitivities together with other audience who can understand the shouting/crying and/or running of these children inside the room.

The event was attended by a total of 108 children with special needs along with their parents and caregivers from the members of ASP CSFP and Hagonoy Chapters, DepEd ALS-PWD learners from the Division of San Fernando and San Simon, Adelle Grace Montessori, Crownvale School and San Fernando Elementary School students with autism, along with other CWA from other towns of Pampanga.

Many children with autism who came are “first timers” and their parents were quite nervous about how their children will react. But it was such a great feeling to see these children and their families enjoy a movie together.

“Thank you for yesterday’s activity. You made the children so happy. They really enjoyed. Congratulations!”- Melissa Sanchez, DepEd ALS Coordinator, Division of San Fernando.

“Thank you, it was so much fun! Di ko expect kaya pala naming tapusin yung movie” – Mommy Malou Maniago, mother of Ericka, 5 yrs old with autism.

“Success! We were all happy, akala naming “wonderland” lang kami mga mommies kasi di naming expect na magtatagal sila sa loob. Expect the worst, hope for the best! Yahoo! Another milestone for the kids.” - Mommy Eugie Corpuz, mother of Bianca, 7yrs old with autism.

“It was a very fun experience for a big number of special ones as it allowed them to watch a full length movie wherein they can be themselves without excuse. They can stim out loud minus the comments. And they can easily walk away at scenes they don’t want to see without the odd reactions from the other viewers. But above it all, such a relief for all parents, guardians, family members, teachers who accompanied each kid as they also enjoyed the movie with emotional easiness.” -Mommy Wham Liang, mother of Josh, 5 yrs old with autism.

The Autism Society Philippines City of San Fernando Pampanga Chapter, with all the children with special needs and their families extend our warmest gratitude to SM Cares, through SM City Pampanga Management headed by Mr. Junias Eusebio and Anna Lisa Carino.

About the contributor: Joy Ofrecia is a mother of a teenage boy with autism. She has been a hands-on mother and for more than 10 years, has been implementing home intervention programs along with other school/center-based interventions for her own son and other children with autism. She has earned her Master’s Degree in Special Education from Angeles University Foundation. She conducts orientations and trainings to parents and professionals on autism. She is the current president of the Autism Society Philippines City of San Fernando Chapter. Teacher Joy finds her fulfilment in her role as an advocate of autism and an instrument to empowering parents of children with special needs.

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Posted in: chapters,community,sensory friendly movies,sfm,sm

ASP hosts back to back seminars

The Autism Society Philippines hosted a back to back seminar on “The Miller Method Autism Intervention Program: Possibilities Put Into Practice” and “All You Need To Know About Autism” last 2 August 2014 at the Auditorium of Philippine Information Agency, Visayas Avenue, Quezon City, attended by 53 participants composed of parents and professionals. The whole day event which featured two distinguished speakers.

Speakers and National Trustees in Miller Method

The morning session on the Miller Method Autism Intervention Program was facilitated by Dr. Sonia Mastrangelo, an Assistant Professor from Lake University Orillia in Ontario, Canada. Dr. Mastrangelo emphasized that there is no single method of intervention for persons with autism. Dr. Mastrangelo utilized videos to explain the approach -- one of Dr. Arnold Miller applying the method to a child with autism was among them. She also had some interactive activities for the participants -- a movement exercise which simulated how a child with autism spectrum disorder perceived things. The exercise made participants feel how persons with autism may experience their environment; and simulating internal blocks which keep them from doing an action. Learning by experience and gross motor activities such as lifting and spinning are important parts of this approach. Dr. Mastrangelo the use of an Elevated Square, an elevated platform on which the therapy is conducted. Another key feature of the Miller method was having the parents be constantly involved. Dr. Mastrangelo mentioned that the parents are the first teachers of children. She said that a multidisciplinary team is important for the development of the child and in this team, the role of the family is very important. She recognized that therapists may come and go; but the family remains constant in the lives of children with autism.

Dr. Rita Grace R. Villadolid, a respected developmental pediatrician, discussed the history of autism, the development stages of typical children, the proper diagnostic process, and treatment programs. She mentioned that there is still no significant cause identified for autism, with genetic or environmental causes still inconclusive. Dr. Villadolid highlighted the main challenges that persons with autism experience which are in social interaction, communication, and restricted and repetitive behavior. She shared early signs of autism in infants and that these development concerns usually come at 14 to 15 months after the birth of the child. She clarified some notions regarding autism, updating the audience on the official terms that are being used today by professionals. She also shared information regarding the population of persons of autism which was rising in number. Dr. Villadolid discussed different interventions -- medical, non-medical, or complimentary methods. Dr. Villadolid highlighted the significant role of an "A"-team -- doctors, therapists, teachers, family, and other important people who were part of the development of the child with autism.

Participants shared their thoughts about the seminar.

"We learned so much. The seminar has good value for money."

"There should be more of this type of seminar from Dr. Mastrangelo and about Miller Method."

"The Miller Method is an interesting topic -- how you communicate with a child with autism, their expressive language and problem solving. There's a lot of teaching strategies we approach with our students and this is very hopeful."

"Keep up the good work. Congratulations! For bringing the awareness to us as parents looking forward on your next seminar."

"The speaker was very knowledgeable about the topic."

"Very educational and enriching."

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Posted in: 4parents,4pros,seminar

ASP Valenzuela holds sensory-friendly movie

SM Cares host Sensory-friendly
movies for autismfamilies in
Valenzuela and other cities all
over the Philippines

ASP Valenzuela Chapter and SM Center Valenzuela held a sensory-friendly movie screening last 5 August 2014 at Cinema 2. A total of 247 participants, 110 of whom were persons with autism, attended “Adventures of Zambezia.” According to ASP Valenzuela President, Dr. Nida Valeriano, as early as 9am SM Center Valenzuela allowed the viewers to enter the Cinema 2 for them to choose optimal seats. Children were allowed to explore the theatre before the movie started.

“Through their facial expressions and gestures, you can see that they enjoyed a lot. Parents, teachers and school administrators were all thankful. Many of them texted and called me, requesting for a repeat presentations. To sum up the response is very overwhelming,” Dr. Nida said.

The management of SM Center Valenzuela were all happy to the extent that everybody enjoyed watching the movie. They also provided 140 packs of free snacks for the children that were distributed while watching the movie. “Engr. Gats, the mall manager, told me that he will try his best to convince the management to make this a regular activity every quarter,” Dr. Nida added.

SM is holding a Sensory Friendly Movie nationwide in partnership with the Autism Society Philippines. ASP chapters and ASP institutional members interested in implementing sensory-friendly screenings may contact the ASP Office at +632.7.903.5496 for details.

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Posted in: chapters,community,sfm,sm

August 30 Saturday Back to Back Seminars

Emergency Skills For Families of PWAs
9:30am – 12:00pm

Does the threat of flood, earthquake and other natural disasters have you worried about your child with autism? The seminar will dive into the basics of what a family who lived with autism should do before, during and after emergency situations. Learn potentially life-saving techniques and skills; and create a plan that will keep your family safe.

Mark Anthony T. Padil is a graduate of BS Physical Therapy from Our Lady of Fatima University in 2002. He has worked as a Behavior Therapist ABA / VB - Shadow Teacher with individuals with autism in school, center and home-based environments. Teacher Mark assists in emergency and disaster alleviation efforts and in the promotion of public safety, disaster-preparedness and community service with the Regional Emergency Assistance Communications Team and with the CRS-AFP Civil Relations Service. He is founder of the eMergency Autism Response sKills (eMark) Services.

Our speaker, Mr. Mark Anthony Padil and Ms. Solinda Bautista

Music Therapy For Individuals With Autism
1:30 – 3:30pm

Studies reveal that most children, teens and adults with autism spectrum disorder respond positively to music -- making music a potentially powerful therapeutic tool. Music interventions used within a therapeutic relationship for individuals with ASD have encouraged social interactions, increased attention and communication attempts, reduced anxiety, and improved body coordination. Though well-established as an allied health profession in other countries, music therapy has yet to be better known in the Philippines as a therapeutic option, and thus our session speaker will enlighten us on what it is, why and how it works, why it is an art and science at the same time, how it is carried out and how it benefits individuals with special needs.

Ma. Solinda Garcia-Bautista is amongst the first batch of graduate students learning Music Therapy at the St. Paul University Manila College of Music and the Performing Arts, a Center of Excellence for Music pioneering Music Therapy programs in the Philippines starting 2013. Sol concurrently gave chase to Business Administration and Accountancy at the University of the Philippines and Music at Sta. Isabel College. After delivering her piano graduation recital and garnering eighth place in the CPA boards, she plunged into an intense 28-year corporate career in Information Technology with top global firms. She helped transform businesses through technology as a consultant working locally and abroad, including mission-critical engagements in New York, Chicago, Tokyo and Hong Kong, and as a senior executive for a large global financial firm. Sol concertizes whenever time permits.

Single Seminar	Double Seminar
Pre-reg. *until Aug 27 ASP Member - P500.00 Non-Member - P600.00	Pre-reg. *untilAug 27 ASP Member - P 800.00 Non-Member - P1,000.00
On-Site Registration ASP Member - P600.00 Non-Member - P700.00	On-Site Registration ASP Member - P1,000.00 Non-Member - P1,200.00

Venue: Auditorium, 4th Floor Philippine Information Agency, Visayas Avenue, Quezon City.
Map: http://bit.ly/1o9dJ4F
Seminar Fee is inclusive of certificate, handouts and snacks.

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account Number 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who do not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Education and Empowerment Program serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are their own and may not necessarily reflect the views of the organization.

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Posted in: 4parents,4pros,4public,music,seminar,special,therapy

ASP Family Support Group for August 2014

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Carmelita B. Ponce is a graduate of AB Economics at University of the Philippines and also a BSBA Accounting graduate at Philippine Science and Business Administration and a Certified Public Accountant. She worked as an external auditor and eventually become controller before becoming an insurance agent of a Canadian company for 17 years. She became a part of ASP Board for more than 10 years and support ASP in all its advocacy. She is a widow and a supportive, loving mother to OJ, a 36-year old man with autism. OJ who is presently attending a public school for his socialization, loves to assembles planes, play with his computer and do household chores.

Date: August 23, 2014, Saturday
Time: 1:00-5:00PM
Venue: ASP National Office, Room 307, ML Building No. 47 Kamias Road, Quezon City
Map: Map: http://bit.ly/asp-map

Sign up for the Family Support Group below or call 7-903-5496. Only 15 seats are available.

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Posted in: 4parents,4public,fsg

Exceptional Soccer

Despite the gloomy weather, 11 children with autism from ASP joined the Exceptional Children Soccer (E-Soccer) program held at The Camp in Taguig City last 02 August 2014, which intended to create awareness for the needs of special kids through sports and to launch E-Soccer Philippines as an organization that would create sustainable program for these kids.

Carol de Vega, the lead organizer, said that the event aims to make the community aware that children with special needs are also into sports, which in turn helps boost their confidence. She also emphasized that thru this clinic, volunteers will take away their fears in handling children with special needs, by interacting with them. De Vega is a mother of a child with autism and is a volunteer of E-Soccer in the United States.

“My son, Al, really enjoyed playing soccer because he loves balls, he love sports, and he loves everything that is round,” Mommy Rae of Pasay Chapter said. Al’s trainers had special praises for him because he listened well to their instruction, even if he cannot speak. “It helps him socialize and he is very happy, kapag sports na ang ginagawa nya. It helps lalo na sa sensory problem ng isang batang may autism,” the proud mom said. She was also happy to learn that the lady volunteers were attracted to Al’s cuteness.

PWAs enjoy playing soccer

Romeo and Jeng Rodriguez of UP-CAMP Manila made this event an opportunity to bond with their son, Rolo. Both parents were proud to see their son playing soccer. “He seemed to understand that the reason he is kicking the ball is to make a goal. He would not make such a move unless he likes it,” Romeo said. “My son likes to run and the court was a really big place for him to run around. It was a good break from his usual routine, for we don’t have much area in the house to run,” Jeng said. Both parents agreed that sports clinic like this helps develop a child with autism. “This type of clinic helps special kids enjoy the game. It provides the kids a break from their routines and hopefully help them have more focus in whatever they do,” he said. Jeng mentioned that Rolo often watch soccer games on TV with his father, who is a soccer fanatic. So playing on the real soccer field helps Rolo build his interest in the game. Both parents agreed that the clinic should continue or have multiple sessions, in order for children with autism to develop, learn and hone their skills. “I wouldn’t be surprised if I hear Rolo say “Go to Football Clinic on Aug 2” next year. If he can remember it, that means he liked it,” Jeng said.

E-Soccer is an all-volunteer, inclusive soccer program for typical and special needs children in the US. It started in the year 2000 at Foster City, California and spread throughout California. It is currently expanding outside the US. Bangalore, India and Nairobi, Kenya are now part of the global locations of the organization. The purpose of the organization is to provide soccer workshops which will promote leadership, social, character, and athletic development for children.

About the contributor: Raphael Torralba is the Program Coordinator of ASP and its resident photographer. He is a former media photojournalist and a graduate of Bachelor of Science in Business Administration Major in Computer-Based Information Systems. His advocacy to serve the PWD community has been recognized by the National Council on Disability Affairs. Raph's youngest brother, Patrick, is on the spectrum.

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Posted in: community,partners,sports

ASP Laguna organizes Sensory Friendly Screening

Recently, 202 persons with disabilities, friends and relatives watched the first sensory-friendly movie shown in Laguna. Organized by ASP Laguna Chapter, it was held at SM City Calamba Cinema 1 last July 29, 2014. Zambezia, an animated movie about two falcons that were en route to a community of birds protected by a group called “the Hurricanes,” was shown.

ASP Laguna logo

The weather was cooperative since it didn't rain when the participants and companions waited for SM City Calamba to open. The cinema was almost filled with moviegoers, some of them for the first time.

The overall feedback is largely positive, as most of the PWD’s and companions in attendance that came from different parts of Laguna like Santa Rosa, Cabuyao, Calamba, Los Baños, and San Pablo enjoyed the movie. ASP Santa Rosa Chapter also participated in this event. A mother relayed that her son was able to complete his movie watching experience. The mother was thankful for the opportunity to have this kind of event. Another parent, who had some doubts about the film showing, made more optimistic remarks as she talked with her other companion as they leave.

This wouldn't be possible without the efforts of cinema manager Ma. Supreme M. Fagara, SM Calamba security personnel and other staff, who were accommodating. We would also like to thank those who spent their time and enjoyed watching the movie with their friends, relatives and peers.Despite the recent typhoon which disrupted the lives of our kababayans, we were able to do a film presentation as a way to belatedly celebrate the National Disability Prevention and Rehabilitation (NDPR) Week.

About the contributor: Ian Lopez is a self-advocate currently taking up Bachelor of Arts in Sociology in University of the Philippines Los Baños. He creates maps to help people get to seminars and symposiums organized by ASP-Laguna Chapter.

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Posted in: community,ndpr,sensory friendly movies,sm

ASP Dumaguete hosted seminars on Handling Children with Autism

ASP Dumaguete Chapter conducted seminars on entitled “Basic Skills in Handling Children with Autism at Home and in School.” The seminars were held at Dumaguete City Multi-Purpose Center and was attended by parents and the daycare workers of DSWD Dumaguete.

One mother said, “I’m very thankful that I attended this workshop because now, I understand my son more and I have already an idea on how to manage him and his meltdowns. Teachers were glad with the new skills they learned -- making their job easier and less stressful.”

A teacher handling a CWA putting food to another container

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Posted in: 4parents,4pros,4pwas,chapters,community,seminar

Philippines ahead in giving PWAs voting rights

The Philippines held the National Day of PWD voter registration last 20 July 2014. While poor information dissemination, bad weather and inaccessibility plagued the initiative, resulting in low voter registration¹, the Autism Society Philippines remains thankful for the efforts of the Commission of Elections and the National Commission on Disability Affairs to ensure that Filipinos with autism are given the opportunity to exercise their rights to vote.

Interviewing a PWA in voter registration

A sad development. Halfway across the globe, a Voting Rights Act complaint² was filed with the United States Department of Justice by the Disability and Abuse Project, seeking for the review of voting eligibility in Los Angeles county -- the country’s largest -- where advocates claim to that thousands of people with autism spectrum disorder, cerebral palsy and other intellectual or developmental disabilities, over the last decade.

Fox News reported on 10 July 2014: The complaint says judges in Los Angeles Superior Court use literacy tests to determine if adults in limited conservatorships should have voting rights, a violation of the federal Voting Rights Act. It also says that judges and court-appointed attorneys violate federal laws that allow people with disabilities to have assistance to complete voter-registration forms and cast ballots.

"Autism is a broad spectrum, and there can be low skills and there can be high skills. But what I observed was that people tend to just dismiss it as though they have no skills," Teresa Thompson, whose son has autism and whose case helped prompt the complaint, said in a videotaped statement.

Back home. In the Philippines, every citizen above 18 years old may register to vote -- without any condition on abilities or education. The country has also done much to accommodate the voting population with various disabilities. One practice that has been recognized as best-in-class is the COMELEC’s partnership with SM Malls to utilize the spacious, accessible, and air conditioned malls as polling places for individuals with disabilities and the elderly.

One of the more common challenges observed in the last National Day of PWD voter registration, was the inability of adults with autism to complete the process. For the next round, the Autism Society Philippines hopes to welcome more voters to by helping COMELEC brief our community on what the PWAs can do at home to prepare for the experience of writing their details, having their biometrics taken, etcetera. Sharing the process with the parents ahead of time and with visual tools will go a long way in helping people with autism prepare for their experience at the registration or voting precincts.

Voices heard. Here are some thoughts by adults with autism on voting:

“The COMELEC staff are accommodating and kind. I am very excited because I will able to vote the deserving candidates come in election day.” --- Wilfredo M., 22

“I voted for the first time last 2013. I wish the senators who won would help make small businesses more successful and would stop being corrupt.” ---Carl V., 21

“I am glad that voted for the persons that I trust will protect my rights as an autistic person and bring discipline to the people.” -- JR T., 23

About the contributor: Mona Magno-Veluz is the National Secretary of the Autism Society Philippines. Aside from being a practising marketing communications professional in the IT industry, Mona is a wife and a mom to three kids. Her eldest, Carl, is an adult on the spectrum working with their family business.

References:
¹ "Lack of Info, Bad Weather Blamed for Low Turnout in PWD Voter Registration." Yahoo! News. Yahoo!, 21 July 2014. Web. 21 July 2014
² "Complaint Claims Intellectual, Developmentally Disabled Prevented from Voting." Fox News. N.p., 10 July 2014. Web. 21 July 2014.

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Posted in: elections,government,self-advocates

Access to Justice for PWD’s

Despite the threat of Typhoon Glenda, the Forum on Access to Justice for PWDs went on last 15-16 July 2014 at Sequoia Hotel in Quezon City. ASP was represented by Program Coordinator Raph Torralba. The forum, organized by the DOJ and the NCDA, aimed to ensure effective access to justice by PWDs, in accordance with the Article 13 of the United Nations Convention on the Rights of PWDs. This states that: “Parties shall ensure effective access to justice for persons with disabilities on an equal basis with others, including through the provision of procedural and age-appropriate accommodations, in order to facilitate their effective role as direct and indirect participants, including as witnesses, in all legal proceedings, including at investigative and other preliminary stages.”

Forum on Access to Justice for PWDs group

A well-known PWD media advocate and Publisher of Philippine Daily Inquirer, Atty. Raul Pangalangan explained to the participants composed mostly of lawyers about the Rights-Based Approach for Equality of PWDs. He differentiated impairment from disability, explaining the impairment means “any loss, diminution or aberration of psychological or anatomical structure or function” while the latter means “resulting from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in the society. He also explained the characteristic of every PWD witness and how to handle them. In his speech, he gave examples of cases involving PWDs to give light to lawyers. He urged the them to focus on what PWDs lack compared to full-abled persons and to how they prevent PWDs from the full exercise of the legally protected rights.

Atty. Reynaldo Reyes, Corporate Secretary of Down Syndrome Association of the Philippines, was the speaker on “Assisting Persons with Learning and Cognitive Impairment.” Atty. Reyes said that Down syndrome, autism, ADHD, etc. counts as one of the intellectual disabilities. Persons with intellectual disabilities have signs and symptoms of intellectual disability that are all behavioural, which is characterized by significant limitations in both intellectual functioning and in adaptive behaviour. In the later part of his speech, he shared his family’s journey with his daughter, Clara. He shared how Clara was like an angel sent from heaven and is a blessing to his family. In turn, he introduced her to the participants.

Other speakers are Dr. Liza Martinez on Assisting Persons with Hearing Impairment, Ms. Milagros Wayno for Persons with Visual Impairment, Atty. Rodolfo Quimbo for Persons with Mobility Impairment, and Ms. Janice Cambri for Persons with Psychosocial Disability.

About the author. Raphael Torralba is the Program Coordinator of ASP and its resident photographer. He is a former media photojournalist and a graduate of Bachelor of Science in Business Administration Major in Computer-Based Information Systems. His advocacy to serve the PWD community has been recognized by the National Council on Disability Affairs. Raph's youngest brother, Patrick, is on the spectrum.

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Posted in: community,government,ndprw

JUMPSTART 2.0

An abundant blessing for a very successful, well-attended, and a high-rating autism awareness seminar, “JUMPSTART 2.0,” hosted by the Autism Society Philippines - Bacoor Chapter, in cooperation with St. Dominic College of Asia School of Arts, Sciences and Education; the Global Educators Guild; and Special Education majors last 2 August 2014 at the Studio Theater of of the college. It was attended by 82 participants from different sectors, students, teachers, parents, caregivers, and professionals.

Jumpstart 2.0 participants 

This event was graced with three equally informative topics, and one DIY Task Boxes Workshop for the participants. The first topic for the morning session, “Understanding Autism,” was facilitated by Ms. Chie Marquez, autism advocate and currently the president of ASP Bacoor; the second topic, “Disability: A Human Rights Perspective,” by Mr. Ranil Sorongon, a member of the Philippine Coalition on the UN CRPD. He was part of the team who designed the training modules on Disability and Human Rights of the coalition as a result of his training sponsored by the International Disability Alliance (IDA) in Geneva, Switzerland.

The afternoon sessions, “Managing Challenging Behavior of Children with Autism” and “DIY Task Boxes for Children with Autism and Related Disorders,” were facilitated by Ms. Kismette Cepe-Riguerra, a special education teacher based in the UAE and an active professional member of ASP who helps in organizing local and national events that advocates for the welfare of children with special needs and their families.

Thank you to our SDCA Director of Student Affair and Services Mr. Jon Sta. Ana for the timely support and approval of our venue for this seminar; to all our attendees -- our beloved Dean of SASE Dr. Pedrajas and her class; SDCA Faculty and staff; the SDCA Caregiver class of Ms. Amor Alapide; parents; SPED teachers; the SDCA Global Educators Guild President Rio Juegos Ramas; Julie Anne Zamuco; and my BEEDSE3A and BEEDSE2A SPED major students for their services and to the ASP Bacoor President Chie Marquez, Gerard Joseph Atienza, Kinney Dune Baleña Minez, to our speakers Ranil Sorongon and Kismette Jasmin Cepe-Riguerra and our ASP President Jan Peña for making this day a true autism awareness day! God bless us St. Dominic College of Asia and Autism Society Philippines for this partnership!

Here are more insights about the seminar from the SDCA Students:

“I really enjoyed listening to the speakers; they have very wide perspectives when it comes in autism. I hope there will be another seminar like this because it was really an eye opener to the people who don’t have any idea about autism.”

“The seminar was very informative and a useful information for everybody. This kind of seminar is not only for us Special Education major but for everyone. It is important for everyone to be informed. I hope these people will never get tired to conduct seminars like this.”

“They gave us a lot of ideas. The seminar was a successful one. Our hard works were paid off. Seeing those delegates enjoy and learn new knowledge and techniques made us so happy.”

“I got an idea of how they make or come up with those materials to use for the special children. It’s easy and not too heavy in the pocket. You can just use something that you can see and be resourceful to it. Be creative in doing your Instructional materials. Thanks to the DIY seminar workshop of Teacher Kismette.”

“Happy ako kasi dito ginanap ang seminar sa St. Dominic. Napaka-hospitable nilang lahat. We look forward to more seminars regarding autism in the near future here at SDCA.”

“I've learned a lot from the topics and everything that had been discussed and shared really inspire me to be a competent health care provider.”

“My comment regarding in this seminar is related to my thesis topic/title, so I found my solutions for my thesis problem. I would like to thank you for the great speakers in relation to my thesis studies.”

“Thank you for organizing this seminar and taking time / effort and providing speakers for the event. Kudos to all of you!”

“I've learned so much from this seminar. As a parent, it equipped me more on how to handle my son. I hope we could have more seminars like this.”

“I have learned a lot about autism, how to handle them in school, home, and anywhere. As a teacher, it is interesting yet needs patience and perseverance.”

About the contributor. Prof. Maria Teresita “Terry” B. Carlos is the SPED Coordinator and SASE-Faculty of the St. Dominic College of Asia in Bacoor, Cavite.

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Posted in: 4parents,4pros,4public,4pwas,chapters,community,seminar

ASP Parañaque partners with SM City BF Homes

Autism Society Philippines, along with the Association of the Visually Impaired and Down Syndrome Association of the Philippines, partnered with SM City BF Homes, Parañaque to conduct the Caring for Special Customers and Persons with Disability seminar last 11 July 2014 at the 1st Floor of the SM City, BF Homes, Parañaque City.

This was the first Caring for PWD seminar held at the mall since it opened last November 2013. About 130 employees, mostly security guards, janitors and sales persons came to attend the seminar. Some officers of SM City BF Homes were also present. The seminar aimed to educate SM's front liners about the different disability groups; and how to assist and handle them as customers to ensure their safety and convenience while they are in the premises of SM mall.

The speakers were:

• Mr. Jimmy Silva, Chairman Committee on Accessibility (United Architects of the Philippines) talked about the needs of blind and visually impaired persons and the proper way of assisting them.
• Mrs. Agnes Lapena (Down Syndrome Association of the Philippines) who introduced her son Jeremy, while giving a presentation on Down Syndrome and its challenges.
• Mr. Evert Malapad (Autism Society Philippines) gave an overview of the stigma and major challenges of persons with autism and the proper approach and assistance to give them when they are in public places like the SM malls.
• Mr. Rizalio Sanchez (National Council on Disability Affairs) talked about the laws and policies to ensure the protection of civil and political rights of persons with disability. The seminar was a big success and a learning experience to the new employees of SM City BF Homes. We look forward for the next batch in December this year.

About the author. Imee Alviso is a full time housewife, sometimes a mother and father because my husband works abroad as a website designer for 15 years now but he comes home monthly. An operating room nurse at Saint Lukes before but resigned because of my children. Family is my priority. I drive, tutor and sometimes give therapy to my bunso, sing, dance, plays guitar, plays badminton & swim with my 3 kids. And now wearing green at ASP! Member of ASP for almost 12 yrs now. I used to be the treasurer of ASP Metrosouth and now my first time to be a President of Asp Paranaque. It’s hard to start but very challenging. One way of serving God. I can give a little of my time, talent & treasure to all my organizations! My favorite bible verse is Isaiah 41:10 Do not fear for I am with you!

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Posted in: chapters,sm

ASP Joins PARM Move Fitness

The Philippine Academy of Rehabilitation Medicine (PARM) has been leading the annual PARM Move Manila, a special event for persons with disabilities. This year, they broke out of the mold and organized the PARM Move Fitness, which aims to promote fitness for PWDs. The wellness event was held at Quezon City Hall last 20 July 2014 and was attended by hundreds of participants.

PARM Move Fitness participants

Autism Society Philippines was represented by ASP President, Jan Peña and her son, Muneer, ASP Trustee Fortunato Agbayani; and the leaders and members of ASP Quezon City chapters. It was a fun-filled fitness event, that saw persons with autism having a fun workout and bonding with their parents. “Our bonding as mom and son was more significant because we were also bonding with our ka-sectors, celebrating the triumphs of 36th NDPR,” says Tita Jan. It was also an opportunity for Muneer to adapt to a new experience and a new environment. They enjoyed the physical workouts as she guided Muneer in following directions and movements and he enjoys being able to comply because it challenges his comprehension skills. He managed pretty well in being a part of a big crowd that is striving to move in unison.

After the fitness program, the Holy Mass for PWDs was held, with ASP Tandang Sora Chapter as the lead group. Fr. Ronnie Banaria reflecting on the Gospel, comparing PWDs to the good seeds planted by the Lord. PWDs do not have the chance to turn their back against God but instead call and praise God more often. They are far from committing sins. He felt blessed to witness the PWD lectors, readers, choir and participants announcing the Word of the Lord with all faith and sincerity, conscious not of themselves; but of proclaiming the Good News as clearly and as effectively as they can.

“PWDs are able to work producing pride in the community where we the unexpected comes out. Whereas the abled persons, where much is expected, builds and works with more anomalies and of low quality,” Ciony Torralba, Tandang Sora Chapter president, said.

Jan Peña also said that she believes that God was greatly glorified in this gathering of sector believers, persons with different physical and intellectual conditions, yet one in spirit in worshipping God, the Creator of diverse human beings, Giver of rights equal among all.

About the author. Raphael Torralba is the Program Coordinator of ASP and its resident photographer. He is a former media photojournalist and a graduate of Bachelor of Science in Business Administration Major in Computer-Based Information Systems. His advocacy to serve the PWD community has been recognized by the National Council on Disability Affairs. Raph's youngest brother, Patrick, is on the spectrum.

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Posted in: government,health,ndprw

Q&A with Autism Experts - August 2014

"It takes a village to raise a child." This African proverb rings louder for children with autism. The Autism Society Philippines believes that parents should build relationships with a professional compassionate support team who can advise and counsel them, in addressing the myriad of questions they have about raising a child on the spectrum.

"If you have met someone with autism, you have met ONE person with autism." There is no substitute for personal consultations with professionals, which consider traits and behaviors unique to the individual with autism.

As ASP continues to receive questions from parents and family members year-round, we have reached out to the following experts to help answer some concerns on health, education and intervention.

My son had been diagnosed with mild autism when he was 3 years old. Now he turned 7 on March 28. Still he can't talk straight, write legibly, read and communicate. He has OT after class. Is there a possibility that he could overcome those? How? -Divina P. Coruno

It would be important to discuss the developmental assessment results with your chosen professional. This discussion should include an understanding of the skills of your son in the different domains. What is his prognosis given these findings? What would be the best approach to help him? I think it is necessary to trust your doctor and listen to what he or she has to say.

My son Ken is 12 years old. Lately, napapansin ko po ang malimit niyang pag-blink ng eyes. Kagabi, yung movement ng arms niya na parang di niya makontrol ang pagpalo sa face niya. Ticks po ba yun? May autism po sya. Anu po ang mga dapat kong gawin? -Noreelyn P.
It is hard to gauge unless you can document this using a video clip to show your doctor. Kindly indicate the events prior to these observations.

My son was diagnosed with ADHD, but I have observed that he also has signs of ASD, like tip toeing and has silly talk most of the time,and doesn't complete tasks most of the time. Should I be disturbed with his behavior? -Carmel C.

It would be a good idea to go back to your doctor with these concerns. Please try to document these episodes using a short clip and show this to your clinician.

My son was diagnosed with global delay when he was 4yrs old. No follow up professional check up since then. He was able to attend school but has stopped due to financial constraints. Aside from being non verbal we think he's just fine no disturbing problem at all. We know we should be sending him to school but no decent one can be found in our area. Are we doing the right thing? Not sending him to school? Is it a must to consult a speech therapist? -Jhoana E.

Perhaps it would be a good time to have a new consultation. Global developmental delay usually evolves into a more specific diagnosis. Having a comprehensive evaluation will make this provisional diagnosis of global delay a more specific one. This will lead to more appropriate recommendations and plans.

What therapies or options do you recommend for very low functioning adolescents (non verbal) who have gone through years of ABA, OT and therapy? -Antonette R.

May I ask what your goals are? It is possible that this is a good time to stop and look for more appropriate programs now that your son/ daughter is an adolescent. Needs change as the person with autism ages and this period can bring challenges or settle issues.

I wonder if there's a public clinic for autism?, my nephew needs to reassess by a doctor before he can enroll to SPED. -Reynaldo F.

Yes, you can access our free services at the Philippine General Hospital. Kindly inquire from the Section of Developmental Pediatrics regarding the available schedules at our outpatient clinic.

Have you heard about the success of kids with autism who were given Reliv's NOW milk supplement? Would you recommend this? -Leah V.

I have heard of Reliv but I am not too familiar with the evidence that it has shown any specific advantage for autism. That being said, good nutrition is always beneficial for development.

I have a son who is turning 4 on Aug 16. He had an EEG at St. Luke's for 15 minute interval awake-asleep. Results say that there is a spike on the result of his EEG. I was told by my son's developemental pedia to go to Dr.(witheld). When I went there, he said that the result are normal and wanted another 6 hour video EEG. wouldn't his EEG at St. Luke's suffice? He is taking OT thrice a week for a year already. He has improved with eye contact and with interest in people. He is malambing. He smiles at me when I call him and sort of talks to me; but he still couldn't speak. He will join a toddler school and I just want to ask if it is better to observe him first if he improves in the toddler school before we go through that 6-hour EEG. -Hazel P.

Your pediatric neurologist is an esteemed colleague who will understand if you want to wait before undergoing another procedure. If your son is doing well and has not displayed any additional inappropriate behaviors, additional investigations may not be helpful at this time.

I had my child checked by two different developmental pediatrician. One diagnosed him with ASD and the other says if it weren't for that initial diagnosis, she wouldn't diagnosed ASD for my son. Now, I'm confused. -Elaine B.

It would be difficult to give you the best advice for that question; but I believe that many parents go through a process and intuitively know who to trust. Will it help if you review your concerns with the first developmental pediatrician?

Dr. Alexis Reyes

Dr. Alexis Socorro L. Reyes is recognized as one of the leading developmental pediatricians in the Philippines. She concurrently concurrently heads the Developmental Pediatrics Section and the Atty. Jose Miguel Arroyo Developmental and Behavioral Studies Unit of the Section of Pediatrics of the UP-PGH. She is an Associate Professor of the Department of Pediatrics at the UP College of Medicine and is a Special Lecturer at the Department of Pediatrics of the Ateneo School of Medicine and Public Health and UP College of Allied Medical Professions.

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Posted in: ask-experts