Answered Prayers

This article appeared on 30 June 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk", by Dang U. Koe, ASP Chair Emeritus.

In my years serving the Filipino autism community, I have met many families and I continue to be amazed by the stories of those who live with autism and do so with faith, hope and love.

Lagmay Family

The Lagmay Family has been an active participant in many an ASP activity. While this family has stayed away from the proverbial spotlight, their teenage son Kiel stands out as an articulate and intelligent young man with autism, who has impressed many and inspired others by being the true epitome of what an autism self-advocacy should be -- respectful, humble and kind-hearted. While it is not likely that his autism diagnosis can be reversed, Kiel shows us how, in the grand scheme of things, it does not even matter. In this personal account, Angel Talkers Aldrich and Sally Lagmay share their family’s ride through the bumpy spectrum called autism.

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“He has autism …”

Why him? Will he be able to live a normal life? Is there any cure? Will he be able to speak, read, or write? What about his education? Will he have friends? Why did God allow this to happen to us? Is there any hope for him? Who can help us?

Autism is just another by-word until it hits home. When tragedy arrives at one’s doorstep, it’s either we draw ourselves closer to God and trust Him for His faithfulness, or we draw ourselves away from Him -- a heartless God, a God that does not exist. We chose the former. We drew ourselves in the protective love of God, asking for His guidance and wisdom.

Frantic search over the web in search for answers… a cure… a specialist... a therapy center… a school. All this had led us to a brother in Christ, living halfway across the globe -- and his prayer has changed our lives and more significantly our son’s.

"Dear Father. We praise You for Your mighty power and grace. Heal Ezekiel. Oh what a name of blessing! Like the Ezekiel of the Bible, give him insight and wisdom. Touch his tongue with the coals of Your altar in Heaven and loosen his tongue so he speaks of the glories of God! Lead this family to those who can help their son develop into a Godly man. Give them strength and ability. We praise You for all of this and give You the glory. Let this family draw close to Your Son, Jesus Christ, and be sheltered by Him. Save souls and save this family. Let their faith and story be a witness for others. In Jesus' Name we pray, Amen."

Last March 2014, our son graduated as the valedictorian of his class and with God’s blessings he is going to take up B.S. Computer Science at Ateneo de Manila University this coming school year. Below is an excerpt from our son’s valedictory speech reflecting his journey with autism.

“I am standing here today because God had answered my prayers. Thank you, Tabernacle of Faith Christian Academy, for preparing me for 11 years to become a good citizen for God’s glory. Thank you, Integrated Center for the Young, for believing in me that I can reach my dreams. Thank you, Core Skills Therapy Center, for being my guide for 12 years in living a normal life. You made me realize this quotation by Temple Grandin that ‘I may be different, but not less.’

And for my parents, you may not understand what God has planned for me -- why I was born with autism -- but you had surrendered your plans to God, and did your best to raise me. You have sacrificed your time, effort, and even finances for me to live, in a way, as a regular person. You sent me to the best therapy center, best school, and took me to vacation in different places for me to experience what it means to enjoy life even with autism. I would like to thank you very much for pouring out your love and support to me one day at a time, and believing in everything I do. I thank God that you are my parents. You taught me to dream and trust God.

And finally to my ever-present God. I may not know why You created me this way, why I belong to 1 out of 50 newborn afflicted with ASD, why You allowed me to have autism; but Lord here I am, I trust You and I believe that You have a reason and purpose for creating me this way. I declare that You are my Creator, You are my Redeemer, You are my great help. You are the reason why I keep looking forward for my future. Of whom shall I be afraid? My God is alive and He is true to His promises!

Thank you God for never leaving me and helping me in my studies that’s why I’m standing here right now. I give You back all the glory to Your name, Jesus, my Lord and my Saviour.”

Allow us to take this opportunity to thank all the people whom God have used to help us in our journey with autism. Indeed God had answered our prayers. Our Lord Jesus Christ has made a difference in the life of our son!

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Posted in: journey

Special Dads

Fathers of children with autism share the ups and downs of raising a special child.

Dads with children with autism

When it comes to raising special children, it is often the mothers who work closely with their kids. they are the ones who take them to their developmental pediatricians, their therapists, and the ones who take them to and from school.

But as times have changed, so have the roles of fathers in raising their special children. None of this was more evident than at the June family support group meeting of the Autism Society Philippines (ASP). Held at the Starlight Training School for Special Youth in Imus, Cavite, the group featured three fathers who have put in more than their fair share of work in caring for their special child.

Speaking at the support group were retired career Ambassador Alfredo L. Almendrala, former ASP trustee and lifetime member Evert L. Malapad, and Albert Aragon. Almendrala is the father to Mike, a person with autism (PWA) who now holds a permanent position as an administrative assistant in the head office of the Philippine Information Agency. Malapad has a Master’s degree in Education, major in Special Education, and is the father to Mae-Mae, a 17-year-old PWA.

Dang Koe, ASP chair emeritus, says the family support groups (FSG) are an integral part of the ASP, and has been part of the group since ASP’s establishment 25 years ago.

“It started with 11 mothers na nagkita-kita sa doctor’s office. Casual lang sila nagme-meet, palakasan ng loob, and then they thought of putting up the ASP,” she says. “Ang usual na pumupunta sa FSG ay parents of newly diagnosed children or mga hindi na alam kung anong gagawin nila so they ask the more seasoned, experienced parents.”

FSGs are held every third Saturday of the month, and is usually a free-flowing discussion overseen by a moderator who summarizes the discussions at the end of the FSGs. It is usually the first activity held by new ASP chapters all over the country.

FROM DENIAL TO ACCEPTANCE

Aragon, who was the moderator for this FSG centered on the father’s role in raising special children, began the discussion by asking the others how they first reacted to learning that their children had autism. Reactions ranged from denial to immediate acceptance.

Malapad, for instance, insisted on a second opinion before accepting that his daughter was under the autism spectrum.

“Sabi nung asawa ko, may kakaiba siyang napapansin kay Mae-Mae. Dinala namin siya sa St. Luke’s at sinabi na may autism siya. Mabigat dahil wala naman kaming alam doon,” he recalls. “Pero ang plano namin ay magtanong pa sa ibang doctor kasi hindi talaga ako naniwala na si Mae-Mae ay may autism.”

It was different for Almendrala, who despite having his son Mike at a time when an autism diagnosis wasn’t yet widely accepted, immediately admitted that there was something special about his child.

“Nung na-diagnose si Michael, he was already eight years old. ‘Yung panahon ni Mike, wala pa ‘yung autism sa vocabulary ng society. Wala namang masyadong iba sa behavior niya, pero wala siyang speech,” he shares. “Pero hindi ako naniniwala kasi naririnig niya ‘yung TV sa kabilang kuwarto. Labas kaagad ‘yan para tingnan ‘yung TV. Nung na-diagnose siya, tanggap ko kaagad.”

For Malapad, it was a longer journey towards acceptance, but one that would drastically change his life. Before Mae-Mae’s diagnosis, he was working in Saudi Arabia, and had planned to open up a shop on his return. He was hoping that Mae-Mae would become the doctor in the family.

“Mahirap tanggapin, kasi kung ganiyan talaga ‘yung condition niya, wala na ‘yung pangarap ko. Ang plano namin ay maging doctor si Mae-Mae. Sumanga ‘yung buhay ko. Kung gusto kong maging mekaniko dati, ngayon, special education teacher ako,” he reveals. “Hindi naging mahirap sa akin na kumuha ng Education, ng masteral program sa education, at ngayon natuturuan ko na ang ibang mga children at adults with special needs.”

LIFE-CHANGING

Mae-Mae has changed the Malapad family’s life in other ways as well. The change of career has meant a lesser income, and the family has learned to tighten their belts to compensate.

“Talagang tipid lahat. Si Apple (Evert’s wife) lang ang bumibili ng damit kasi siya lang ang may trabaho. Luma ang cellphone. Basta ilaan mo ‘yung natitipid sa check-up at therapy. Talagang kasama sa acceptance na marami kang isasakripisyo. Surviving talaga kami pagdating sa finances,” he says. “Gumagawa ako ng paraan para kumita. Tumutulong ako sa mga kaibigan. Kahit papaano, yung pambili ko ng load o pang-gasolina, nakakakuha dahil meron akong part time na trabaho. Napapag-usapan naman.”

For Almendrala, having Mike brought about a change of temperament. A former soldier, he says that he had a short temper before he was faced with the challenge of raising a child with autism.

“Mas marami ang naitulong niya sa akin kesa ako sa kaniya. Mainit ang ulo ko. Ang unang reaction ko sa kaniya dati ay nagloloko lang siya. Sa ulo ko, hindi siya dapat binebeybi,” he shares. “Pero dahil sa kaniya, lumambot ako at hindi lang sa kaniya kundi pati sa iba kong anak. I learned humility, tolerance, and compassion.”

It is also time for society at large, says Almendrala, to learn the humility, tolerance, and compassion that Mike has taught him.

“I think what we should do is we let society see that this person is this person and that he has as much right to exist in this space as any other person. He should be accepted as he is, and if he should be helped, he should be helped,” he proclaims. “That should be the information that we give them. May kapansanan ang tao at kailangan tulungan. Kailangan imulat ang mata ng mga tao na may segment ng society na ganito at kailangan tulungan.”

This article by Ronald Lim appeared in the print and on-line version of the Manila Bulletin on 23 June 2014.

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Posted in: fathers,fsg,mb

The NDPR Week 2014

The 36th National Disability Prevention and Rehabilitation (NDPR) Week will be celebrated on July 17 – 23 this year under the auspices of the National Council on Disability Affairs, pursuant to Proclamation No. 361 (2000), as amended by Administrative Order No. 35 (2002). This year’s Chair is Department of Foreign Affairs.

NCDA Logo

The mission of this weeklong event primarily is to stimulate public awareness on disability and encourage every citizen to take active responsibility in the upliftment of economic and social conditions of PWDs. The theme for this year is “Talino at Paninindigan ng Taong May Kapansanan: Pasaporte sa Kaunlaran” which aims to promote and advocate the capabilities, skills and talents of PWDs as a means of improving their lives and economic status and to mainstream and include disability agenda in the programs of various government agencies and non-government organizations in order to fulfil their obligations as duty bearers to PWDs.

The weeklong activities are as follows:

17 July 2014, Thursday
o Holy Mass celebration at DFA
o Wreathlaying ceremony at Mabini bust at DFA
o Ribbon-cutting of the exhibit of artworks and photos of PWDs
o Musical play on the life of Mabini
o Launching of the Apolinario Mabini Awards

18 July 2014, Friday
o Paligsahan ng may “K” sa kasaysayan at Kultura ng Pilipinas
o Coping skills for parents with children with disabilities
o Kakayahan 2014 (E-Life Competition)

19 July 2014, Saturday
o Art exhibit and fun games
o Ribbon cutting: Art in Silence- International Abilympics Champions exhibit and demo of work skills excellence of PWDs
o Serbisyong Pampamayanan Para sa May Kapansanan

20 July 2014, Sunday
o PARM Move Fitness Day
o Celebration of Holy Mass for PWDs - Lead: ASP Tandang Sora Chapter
o Issuance of passports to PWDs - Lead: Department of Foreign Affairs
o National Registration of PWD's

21 July 2014, Monday
o Forum on Sports and Cultural Activity of Youth with Disability

22 July 2014, Tuesday
o Science Teachers’ forum

23 July 2014, Wednesday
o Wreath laying ceremony on the 150th Birthdate of Apolinario Mabini
o Processing of Passport Appications of PWD's

Post NDPR Week Activity:
o Legislators forum on disability- July 31, 2014

Autism Society Philippines chapters are encouraged to participate in the NDPR Week events and create community activities to commemorate the week.

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Posted in: ndprw

ASP Diliman holds a Walk and Art Summer Camp

The warm breeze of summer inspired the ASP Diliman moms to try another activity for Summer 2014. ASP Diliman spearheaded a Walk and Art Camp in UP Diliman last May 15, 2014 for Teens with Autism (TWAs) Jason Inanuran, JV Legarto, Macky Palomares and Vincent Benoza, together with their supportive moms and siblings. These boys braved the afternoon heat to the enthusiastic cheers of their moms, siblings and the UP SPED Soc volunteers.

PWAs and volunteers from the UP SPED SOC

The canopy of acacia and caimito trees around the UP College of Human Kinetics (CHK) shaded the young men in their sketching activity, as warm-up before the walk. Mom Len Inanuran prompted the boys to draw ‘what they see.’ True to the spirit of youth, they drew not only trees, but also the blazing sun, clear blue skies, walking people and even the passing buses along Commonwealth Avenue. After the sketching, volunteers from the UP SPED SOC guided them in the warm up exercises and finally their walkathon. Indeed, the boys have grown up as teens with strong stamina to finish the 2.2 kilometer UP Academic Oval.

Mommy Resy commented that the Walk and Art Camp showed how well these teeners have matured over the years. They can follow instructions better, showing improvement in their mental faculties and fine motor skills. Gone are the days when their hands were guided to correctly hold pencils or crayons. Their drawings correctly showed the recognizable features of trees, people, and clouds, among others. This is a big contrast to the doodles and dots of yesteryears. As expected, they wore big smiles as their photos were taken side by side with their art work and their peers. Gone are the reclusive boys who did not care about others or “walang pakialam sa mundo.” They borrowed and shared crayons with one another.

After the walk, it was delightful to hear them say “pagod na at gutom na.” They can now correctly express their feelings. They showed confidence in themselves as they enjoyed climbing the tree house, and playing in the swing, seesaw, monkey bars, balancing rails, among others.

From the successive summer sessions of swimming, basketball, soccer and now walking, these TWA’s have grown up to be young men with robust bodies, strong hands and feet, and good eye and body coordination. But more importantly, they have peers whom they trust and call friends.

A Father’s Day lunch get-together held last June 14, 2014 culminated the 2014 summer for ASP Diliman where the kids played basketball and enjoyed lunch with their parents.

About the Author. Resy Benoza is the PRO of ASP Diliman Chapter

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Posted in: art,chapters,community,sports

ASP joins Freedom Walk 2014

The Autism Society Philippines once again joined the annual Freedom Walk of PWDs held at San Juan City last June 14, 2014. ASP is led by its Program Coordinator and Freedom Walk Technical Working Group member, Raph Torralba and members of Tandang Sora, Makati, and Pasay Chapter. Now on its 4th year, the Walk, with the theme “Every step we take, barriers we break,” attracted more than 2,000 walkers composed of PWD organizations, local government units, government agencies and private sector such as LGU of San Juan, Taguig, Pasay, and Mandaluyong, AKAP Pinoy, PFRD, NCDA, Senate of the Philippines, DSWD, DPWH, DOTC,DENR, MIAA, PIA, PNP, BFP, NVRP, PACDLD, Physicians for Peace, Archdiocese of Manila Ministry on PWD, Citibank, JP Morgan, SM CARES, PARM, and CBM. San Juan City Mayor, Guia Gomez welcomed all the guests and participants to the city.

ASP Tandang Sora Officer in Freedom Walk

Senate President, Franklin Drilon, arrived and gamely showed his willingness to walk with the PWDs that gathered at the Pinaglabanan Shrine. He was joined by his wife, Mila; Mayor Gomez; former Energy Secretary, Rene Almendras; NCDA Acting Executive Director, Carmen Zubiaga; PFRD President, Noli Agcaoili; and AKAP Pinoy Chairman, Oscar Taleon. In his inspirational speech, the Senator threw his full support to this yearly event by saying that he enjoyed walking with the PWDs and that he was looking forward to next year’s walk. “Sa susunod na taon, sama-sama po tayo rito. Mas marami po tayo next year,” he said. He even jokingly said that the walk was a short one. “May reklamo lang ako. Mas marami ang picture-taking kaysa sa walking,” he said in jest. Later on, he posted a message in his Facebook account encouraging every community to empower the PWDs: “Congratulations to all the participants of the Freedom Walk for a successful event which is aimed to give PWD's a united voice in pushing for their rights, acceptance, and inclusion in society. We must all promote a community that empowers all the PWD's in the Philippines.”

This yearly walk is being organized by the AKAP Pinoy with PFRD as this year’s Chair. The goal of this activity is to raise awareness of the general populace on the importance of the United Nations Convention on the Rights of PWDs as well as to encourage local government units to establish Persons with Disabilities Affairs Office (PDAO) as mandated by the RA 10070. The Walk is also an expression of the PWDs’ desire to be free from chains of discrimination, inequalities and poverty and has persuaded the them to be united as one in advocating for the recognition of their rights and the responsibility of the government to enable them to live independently and participate fully.

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Posted in: community,freedom-walk,government

UP-UST Students: Making Friends and Inspiring Change

The 4th annual UP-UST Friendship Meet saw Speech Language Pathology students from the University of Santo Tomas (UST) and the University of the Philippines-Manila (UP-M) coming together to form friendships and to learn more about their future profession last 11 January 2014, at the Quadricentennial Park of UST. They decided to make it more special by inviting parents and children of the Autism Society Philippines (ASP) and Bantay Bata.

UP-UST Students SLP, ASP Families and Bantay Bata group

With the theme Take the Leap: InSPiring Change One Day at a Time, the event started off with Mrs. Ma. Georgina D. Mojica, CSP-PASP, MHPEd, chairperson of the SLP Department of UST, giving the opening remarks. She welcomed both the UP students and the ASP visitors to UST and commented on how far the SLP education has gone, with the Cebu Doctors University in Cebu City offering BS Speech-Language Pathology as well. She hoped that this will lead the profession farther as well, where it will be able to help more people. Lastly, she wished everyone a successful and fulfilling day.

The event was emceed by Ms. Adrienne Dela Cruz, Mr. Terence Piodos and Mr. Marco Quimpo, and they got the crowd pumped up with a few minutes of exercise followed by a series of games that the students and the children were all eager to join. Finally, after an hour of fun activities, everyone was ready to dig into their lunch. As the crowd ate and got their fill, students from both universities took the stage and performed songs to keep everyone entertained. Raffle prizes were also given before the program officially resumed.

At noontime, the children were escorted into the Carnival by their respective ‘buddies,’ their ates and kuyas from UP and UST. The Carnival is a series of game booths arranged by the fourth year SLP students of UST for the children to enjoy. All the students made sure that the children enjoyed the games as safely as possible. Free dirty ice cream was also available for everyone to indulge in. While the kids were playing, the parents were then escorted into Room 125 of the St. Martin de Porres Building of UST to attend a seminar on the Red Flags for Speech-Language Development by Ms. Joyce Anne Ponciano, CSP-PASP. Social workers from Bantay Bata also attended the seminar and both visitors from Bantay Bata and ASP were very participative and asked a lot of questions. Afterwards, raffle items like household materials, cellphone and gift bags from Blue Magic were given away.

By 2:30, after eating their snacks, the visitors from ASP and Bantay Bata left UST with smiles on their faces. However, the day was not yet over for the UP and UST students. The event continued with more games and team building activities, including an Amazing Race especially arranged by the Collegiate Association of Speech Pathologists (CASP) of UP-M.

At 4pm, everyone went to the Education Auditorium of the Albertus Magnus Building of UST for a talk about the importance of volunteerism and community-building by Sir Ivan Neil B. Gomez, MAED, OT, OTRP, UST-SIMBAHAYAN-Community Development Coordinator of the College of Rehabilitation Sciences. To close the event, Mr. John Arden S. Romanillos, President of the SLP Society, reminded everyone why they were here: to give help to those who need it, to take the leap and inspire change without expecting anything in return because what’s the value of material rewards when compared with a grateful smile?

About the Author: Courtney Chua is an incoming fourth year B.S. Speech-Language Pathology student in the University of Santo Tomas (UST). She served as the Internal Vice President of the UST Speech-Language Pathology Society last academic year 2013-2014

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Posted in: chapters,community,partners,university

A first at Project HeART

Members of ASP Tacloban Chapter gathered for Project HeART, an art psychosocial intervention program, as post-disaster response for the Yolanda survivors in Leyte. This unique event was funded by Metrobank Foundation and held last 4-6 June 2014 at the Eastern Visayas State University.

Mommy Fajardo (in stripes) and her son Ruvic with ASP National President Jan Peña, Muneer Peña and other Project HeART participants in Tacloban.

I’m very glad to have been a part of it. It was a first time experience for most of the participants to be gathered around with fellow special children for one movement. There was an excitement in each and everyone including the parents and guardians.

For the Group 8 years old and above, Day 1 was to draw their own profile and it gave them freedom to introduce themselves in the way they wished using mixed media. Day 2 was to etch "who or what supports them" using 3 square boards with oil pastel. They had to think hard to be sure what or who really are giving them full support in their daily living; because there's no erasure in etching technique thus making them feel confident realizing the reinforcements they already have. The last day was also in mixed media but in a relief form or in three-dimensions. Participants were given a board where they can create a 3D work of the surroundings or an ideal environment they wish to have. Through this, they were able to use their imaginations and their outside world experiences.

I would like to thank the Autism Society Philippines together with the sponsor, Metrobank Foundation for spearheading such activity. This will be a great help for my son in order for him to develop his skills and talents needed for his development. This will pave way for him to have social exposure in order for him and for the public realize their potentials as a member of their society and not to be ridiculed with their disability.

About the Author: Elisa N. Fajardo married with 2 kids Ashley Nicole and son Ruvic 8 yrs old with ASD living in Pawing Palo, Leyte. A BS Management graduate at St. Paul’s Business School in Pawning Palo.

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Posted in: art,chapters,metrobank

ASP Naga hosted "Handle with Care" Seminar

The Autism Society Philippines Naga City Chapter hosted a free seminar last May 30, 2014 entitled “Handle with Care: Seminar and Training on Disaster Preparedness” and a free intellectual disability screening at the Public Safety Office, City Hall Compound in Naga City. The event was attended by 170 teachers, parents of PWA’s, local government employees and some professionals in various fields.

Alex Cabason presents Handle with Care

This seminar was headed by ASP Naga President Santos Braga, in partnered with Mr. Cris Molin, Head of Naga City PDAO, Ms. Edna San Jose, Principal of Naga City Sped Center, Marie Chris Palafox-Pascua and Ms. Kate Vela of Communicare, and Mr. Alex Cabason, Jr., Program Manager for PWDs of the Presidential Commission on Urban Poor and Trustee of Autism Society Philippines.

Mr. Ernesto Elcamil of Naga City NDRRMC spoke on “Training for Disaster Preparedness for PWD’s,” Ms. Karen Kate Vela, OTRP on “Occupational / Physical Therapy for Children with Autism,” Ms. Marie Chris Palafox-Pascua on “Speech-Language Therapy” and Mr. Cabason on “Rights and Privileges of PWD’s and Categorization of Disabilities, Issues and Concerns.” After the event, a short meeting was held to discuss joint activity for the National Disability Prevention and Rehabilitation Week for Naga City to be headed by Naga City PDAO.

Mayor John G. Bongat of Naga City congratulated the organizers and the participants. He further stresses Naga City’s commitments to PWD’s.

About the author: Alejandro S. Cabason Jr is a graduate of AB Political Science from the University of the East Manila and of MA in Public Administration from the University of the Philippines Diliman. This public servant, church worker and a motivational speaker is happily married with four children. His youngest child, Victor Lorenzo or Vinz is on the spectrum. An ardent advocate of autism education since 2002, he is the President of ASP Marikina Valley Chapter.

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Posted in: chapters,community,government,ndpr,regional,seminar

ASP hosts “Planning for Successful Transitions”

The Autism Society Philippines hosted a moderated webinar, entitled “Planning for Successful Transitions” with the assistance of IBM Philippines last 31 May 2014 at the IBM Plaza, Eastwood, Quezon City, attended by 33 participants composed of parents and professionals.

Group discussion in Transition Planning Seminar

Teacher Arnold Alerge, who serves as the Program Director of Hopewell Integrated School, discussed Transition Planning 101 in Pinoy Style. He shared strategies and examples unique to the Filipino experience. He shared tools that the participants could take home and practice at home.

ASP Vice-President Cecile Sicam coached the participants on creating and Individual Transition Plan designed to support outcomes that are important to the family and to be relevant to the shared vision of the students’ future.

In the webcast, Ms. Michele LaMarche, a BCBA and co-founder of Special Learning Inc, shared and explained in great detail her Critical Life Skill Domains -- communication, adaptive skills, self-care, social skills, recreation and leisure, self-regulation, assessment and reinforcement, work habits, health and safety, mobility, housing and money management

Feedback from the participants include:
- “Very informative and given me a good overview of the topic.”
- “The speaker was able to connect to the group interests. He was able to share his experiences to be able to inspire the parents in raising their children. It also helps the teacher to think much better approach on how we will improve the program for the children that were handling.”
- “The seminar is a great opportunity to open our hearts and mind for the special education / SPED pupils.”

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Posted in: 4parents,4pros,adults,seminar,transition

My Life is a Prism

Let us commemorate Autistic Pride Day today, June 18, by celebrating the neurodiversity and innate potential in all people on the autism spectrum.

To have autism

Is to live in a prism

Everything's quite askew

A spoon and its color

The grass or its odour

Though obvious, are not in my view

The sounds of the people
The clatter, the ripple
Are too loud they make my ears hurt
Though I want to complain
I cannot explain
It's been like this for me since birth

I have a condition
That harbours derision
From people who don't understand
My speech and my movement
My awkward temperament
The strange things I do with my hand

Though I seem fixated
I'm just fascinated
With flickering fluorescent light
They look like a million
Devoted companions
So I don't let them out of my sight

Though I don't look at you
I know all that you do
There are just many things on my mind
My mother, the weather
The touch of a feather
How I must be one of a kind

Through your altruism
My odd mannerisms
Are better than has been for awhile
I'm reading, I'm talking
I'm dancing and learning
I've found much more reasons to smile

About the poet: Patricia Marie Grace S. Gomez is a two-time Palanca Awardee for Poetry for Children "Poems from the Pantry and Prehistoric Times" and Short Story for Children "A Thousand Paper Cranes." She also has honorable mention from the Philippine Board on Books for Young People-Salanga Prize for her children's story "Pepe's Gift" about the childhood of Jose Rizal. She lives in Bacolod City with her husband Mark and their two boys Mark Jr. and Malachy.

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Posted in: poetry,self-advocates

The Daddy Difference

This article appeared on 2 June 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk," by Dang U. Koe, ASP Chair Emeritus.

When we first learned that our son Enzo has autism, my spouse and I cried together and found support and strength from each other. It helped me a lot to feel that I am not alone,” shared Enzo’s father, Mario Medina who is an active ASP chapter leader in Sta. Rosa, Laguna.

During the first decade of Autism Society Philippines’ 25th year existence, fathers attending seminars, conferences and other events were rare sightings. Baring their hearts out was even rare. Thankfully, that is no longer true these days.

SUPER DADDY – Being a father of a child with autism is a role no superhero can do. In photos are the fathers proudly posing with their children with autism.

To celebrate the fathers who took the challenge of raising children with autism heads on, Angels Talk posted 3 questions that generated overnight a lot of respondents among father members of ASP. Here are some of them.

What is your advice for fathers of newly diagnosed children?

OFW Dad Jun Aquino of 9-year old Nathan enumerates the following advice: (1) Take "time out." If you need to cry then so be it. Accept the fact and reject denials. (2) Be supportive of your wife. You should be the stronger one. Give her comfort. (3) Plan. Look for the best therapies near your area. Prepare your financials. Learn the government benefits for persons with autism (PWA). (4) Study. Read medical textbooks in autism. Watch seminars on autism (there are tons in YouTube), and fill yourself with information. (5) Be your child's best therapist at home.

Danny Fernandez, Jr, father of 5yo Ayel advises fathers to be “physically fit to play wrestling for hours; emotionally ready for day to day surprises; intellectually equipped with creative stories and role playing scenes because your sons will love to do and explore all these things with you.”

Daddy Joey Baldomero of 7yo Hana wrote: “Focus on the present and the future; don't dwell on the past. There is really no point looking for what caused your child's autism. Your child needs you focused not on who he could have been, but on who he is and who he can be.”

How do you enrich your relationship with your CWA and your other children?

The proud father of IBM-employed Yanna, Albert Aragon of Chain Reaction, instills among his other children the feeling of being responsible for their special sister. “My wife and I love and care for Yanna while at the same time showing the same love and affection to the other siblings. You have to be patient and be able to make them understand early.”

Daddy Jun practices “No favoritism; I treat Nathan and Naomi just the same. Also, whenever Naomi asks why her kuya behaves differently, we always try our best to explain kuya's situation to her. By this, we feel that she will be more understanding and be aware.”

Daddy Mario relates that Enzo and his sister has a 9-year gap. It was quite challenging to make Enzo adapt to having a sister at home. “We give Enzo and his sister a lot of time being together as well as being apart. We make Enzo feel that he is a big brother by giving him simple tasks that he can do for his sister - like packing away her baby things or shaking her milk bottle.”

Former ASP National Board Trustee Evert Malapad reversed roles with his wife when he decided to take charge of Maemae’s education program himself. “Since my wife and I are actively involved in ASP, we expose our other child to various ASP activities for her to personally witness the many colors of autism, and how other families are able to successfully cope with having a child/sibling with autism in their midst.”

What is your biggest challenge as a father of a PWA?

Daddy Albert finds realigning his time, priorities and financial resources to help his daughter Yanna. Aside from the financial challenges, Daddy Jun worries about bullies and Nathan’s future, “will he have a job, a family? Will he be independent?” Aside from being able to provide financial and spiritual support, Alex Pangga wishes that his two special sons 17yo Lance and 14yo Patrick “will grow old with me and survive any obstacle they will face in their future.”

Daddy Mario’s biggest challenge is handling Enzo’s behavior as he can be aggressive at times; Enzo is non verbal, has difficulty communicating his needs and this can often result to aggression. “We have to help him learn other forms of communication and spend more time with him so we can understand him better.”

Daddy Danny wants to tell the world that autism is not a disease that needs a cure, but a condition that needs to be understood. Daddy Joey agrees with him that the world is the biggest challenge. “Not everyone has the patience for kids acting up. When something sets my daughter's tantrums off in public, I find myself soothing her and the people around me. It can be a very exhausting experience. That's why it's always an amazing feeling when someone, a stranger, lends a helping hand or says a kind word. Thankfully, there are still plenty of people who do. We need more kindness and compassion in this world for people with special needs.”

ASP institutional member Center for Autism and Related Disorders is holding the 3rd Good Autism Practice Conference: “Autism Across the Ages” which will be held on June 29, 2014. For inquiries, please email goodautismpractice@gmail.com.

Follow Autism Society Philippines on Facebook, Twitter and www.autismsocietyphils.org.com.

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Posted in: angels-talk

Project HeART in Tacloban

ASP Tacloban participated in MADE-N.O.W. Project HeART: HeART for Humanity Phase III, an art psychosocial intervention program as post-disaster response for the Yolanda survivors in Leyte funded by Metrobank Foundation.

ASP Tacloban Family with artworks of PWAs

The art workshop for children with autism was opened by Dr. Grace Evangelista of Miriam College and UP Diliman; and Lee Marja Mercado of ASP Tacloban. The participants were divided into 2 groups. Mentor Buddy Ching handled the children with ages 8 years old and above; while Mentor Thomas Daquiaog taught the children aged 7 years old and below.

The workshop ran for three days beginning 4 June 2014.

About the Author: Lee Marja Mercado an ASP Tacloban President since 2012. Lee worked with Metrobank in Tacloban for 10 years. She is mom to Maddaox Lenard (who is on the spectrum).

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Posted in: art,chapters,metrobank

Empowering Women, Empowering Humanity

The United Nations Entity for Gender Equality and the Empowerment of Women launched the Beijing+20 campaigns. Part of the campaign is to promote the rights of women and to gender equality all over the world.

Beijing Generic banner_EN

“Empowering Women-Empowering Humanity: Picture it!” is a yearlong campaign for the 20th Anniversary of the Beijing Platform for Action. Its main objective is to advance women’s right in all aspects of life. The campaign invited global citizens to engage in a day long Tweethaton (24 hour conversation on Twitter), held last May 22 and lasted for 24 hours. Various global organizations and women from all over the world joined the Tweethaton #Beijing20 by sharing their thoughts about women rights on political will, social mobilization and awareness-raising. The kick off of #Beijing20 campaign was supported with 14 different hosts who tackle about specific themes thru the use of social media Twitter.

The Autism Society Philippines supports the Beijing+20 Campaign by celebrating the talent and abilities of women with autism. While they may not involved in gender politics, they are the pride of the Filipino self-advocacy community because of how they contribute in their chosen fields.

PWA Yanna Aragon

Maria Angela “Yanna” Aragon is the middle child among three daughters. Diagnosed with autism at an early age, Yanna began her schooling at Bridges Foundation. She completed her elementary education at St. Mary’s College, Q.C. and her secondary education at St. Theresa’s College QC. She graduated with a degree in Interdisciplinary Studies from the Ateneo de Manila University in 2011. In three months, she was employed by IBM Philippines where she coordinates with off-shore clients daily. In her downtime, she loves listening to music, playing with any one of her 20+ cats, solving Sudoku puzzles, surfing the ‘net, reading books, and playing video games.

Charlene Danica Escasiñas she learned to sing at age two -- even before she could speak. She was diagnosed with autism at the age of three. Passionate about performing, she first joined and won a singing contest at the age 7; and started modelling at the age of 12. She is pursuing a degree in Information Technology at the College of Arts & Sciences of Asia & The Pacific. Her hobbies include playing guitar, piano, clarinet, and listening to radio and watching cartoons.

Thara Marie S. Santiago started singing at the age of five. As part of the ASP Dreamgirls, she is a familiar face within the PWD community as a frequent performer in national and international events, in small and large venues. Thara’s dedication to music is an inspiration to many who dream of become professional vocal performers. Thara and her singing partner Nica brought home the Gold Medal at the First Autism Youth Camp Competition in Brunei, organized by the ASEAN Autism Network.

Velle Baria has been performing at advocacy events for years. Velle is currently a college student at St. Scholastica's College Manila, working towards a degree in Music Performance, with a major in Voice, and a minor in Piano. She is interested in acting, dancing, languages and sports.

For more details about the campaign please visit http://beijing20.unwomen.org/.

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Posted in: international

ASP Joins ASEAN Program Evaluation and Planning Conference

The Philippines, through the Department of Social Welfare and Development and the Japan-ASEAN Integration Fund, recently hosted the ASEAN Program Evaluation and Planning Conference for PWDs on 1-5 April 2014 at the Crowne Plaza Hotel, Quezon City, in the continuing effort to "Make the Rights Real" for persons with disabilities in the region. ASP President Jan Peña was one of the Philippine delegates to the said event. Other ASEAN countries represented were Brunei Darussalam, Cambodia, Indonesia, Malaysia, Myanmar, Thailand and Vietnam.

ASEAN forum delegates

The event aimed to develop the capacity of the government to implement sufficient and quality auxiliary social services for Persons with Disabilities (PWDs) through a technical cooperation among ASEAN member States. Highlight reports from Hongkong and Thailand updated the delegates on state of the art global and regional initiatives by both government and private organizations on the provision of social services for PWDs in the two countries.

There had been a rich exchange of situationers and information during the country paper presentations. The reports included current situation of PWDs in each member state; existing legislations, policies, programs and systems in place to respond to PWD concerns; strategies/mechanisms in place to ensure effective delivery of services for PWDs; and best practices and challenges in the implementation of services for PWDs. Interestingly, issues pertaining to autism were raised recurrently during the discussions, indicating a need for further exchanges of know-how in dealing with autism among development workers in these countries.

The Philippine report was comprehensively presented by NCDA Director Carmen Zubiaga. It featured regional and national disability-related statistics; international treaties and numerous national disability-inclusive legislation binding in the Philippines; a listing of government and private organizations servicing PWDs (including the Autism Society Philippines); programs on social protective services, health, education and livelihood; mechanisms for effective delivery of social services; best practices and challenges in the implementation of services. ASP's stake in serving the Filipino autism community is appreciably acknowledged in this report. It is praiseworthy that the Filipino PWD sector has initially achieved a good measure of success in uplifting the life and the rights of PWDs in our society, and that it continues to reach forward to its desired goals as reflected in the Incheon Strategy of 2012.

Furthermore, the showcasing of the success stories of two pro-active Philippine LGU's - the Municipality of New Lucena, Iloilo, presented in session by Hon. Mayor Liecel M. Seville, and the Tiger City of Mandaluyong (NCR), presented by Hon. Mayor Benhur Abalos during the learning visit to the city - strongly impressed upon the delegates that seriousness in purpose and advocacy is the TOP secret to an effective and stable government program for PWDs.

The last part of the conference was devoted to action planning by each country. Looking back and ahead, each member nation is more motivated to develop new strategies and reinforce existing ones to improve auxiliary social services of government and private organizations serving PWDs. Knowledge and experience sharing during the conference had instilled a sense of oneness in purpose and action among the ASEAN nations. It is highly possible then that member countries can actively support each other through cross-delivery of resources and expertise within the region.

About the author: Mary Janette Infantado-Peña is a former President and Executive Director of the National Autism Society Philippines. She is also a former President of the Autism Society Philippines Bacoor and Dasmariñas Chapters (Cavite). Ms. Janette is a Graduate of AB Psychology from the University of the Phil, Dil. QC. She worked as a Teacher, Trainer and Supervisor in multi-instructional settings. Ms. Janette is a very active autism advocate, being a mother of a 22-year old young man with autism (Muneer). In 2015, her family was conferred the prestigious 2015 Jollibee Family Values Award for its exceptional contribution to the empowerment of Filipinos with Autism.

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Posted in: government

ASP Family Support Group for June 2014

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Date: June 14, 2014, Saturday
Time: 2:00-5:00PM
Venue: Starlight Training School for Special Youth, Inc.
Address: 334 Tamsui Ave Lungsod ng Imus 4103
Map: http://bit.ly/1kFpiPz

We encourage dads to attend this special Family Support Group. This session will be moderated with Albert Aragon and graced by panelists: Gov. Juanito Victor Remulla Jr., Ambassador Alfredo Almendrala, Jr. and former ASP Trustee Mr. Evert Malapad.

Hon. Juanito Victor Remulla Jr. is the Governor of the Province of Cavite. Under the leadership of Governor Remulla, Cavite has enjoyed meteoric developments in the delivery of public services for individuals with disabilities. He attended the University of the Philippines and the Ateneo de Manila University. Gov. Jonvic is a devoted husband and a father to five children, one of whom is on the spectrum.

Ambassador Alfredo L. Almendrala, Jr. is a retired career Ambassador of the Philippines. The biggest challenge their family has to overcome is having to live in different countries where they were posted and deal with all the changes and challenges that entailed. Keen on integrating Mike to mainstream society, the family supported Mike through vocational college in computer studies. Mike obtained a civil service eligibility by passing the encoder examinations given by TESDA; and now holds a permanent position as administrative assistant in the head office of the Philippine Information Agency. Mike is also a “Special Olympian,” having won multiple medals in the 2003 Special Olympics World Games in Dublin Ireland and in the 2013 Special Olympics Asia – Pacific Games. Tito Fred is currently Chairman of the Department of Diplomacy, Government and Politics, at the College of International Relations, Lyceum University of the Philippines.

Evert L. Malapad is former Trustee of ASP National Office and ASP Lifetime Member. He is a proud father of Mae-mae, her 17 years old daughter with autism, and Ella, her 13 years old high school student. Daddy Evert is currently teaching an adult program for individuals with special needs in Candent Learning Haus in BF Homes Las Piñas City. He earned a Masters Degree in Education (Major in Special Education) and passed the Licensure Examination for Teachers-Secondary Level in 2011.

Albert Aragon is an AB Communications Graduate of UP Diliman and has over 30 years of experience in advertising, sales, marketing, events management and video production. He has written for and directed more than 100 special events and videos, including the record-breaking Angels Walk for Autism 2014 held at the Mall of Asia Arena. Albert is a proud husband to Agnes and father to three children Meg, Yanna and Andrea. Yanna is a thriving adult on the spectrum with a degree from Ateneo de Manila and currently working in IBM Philippines.

Sign up for the Family Support Group via the on-line form below or call 7-903-5496. Only 30 seats are available.

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Posted in: fsg

Family Support Group with Teacher Ces

ASP Vice President Cecile Sicam welcomed four mothers, two fathers, two grandmothers and three PWAs at the ASP office for the May 2014 Family Support Group session. The participants were especially lucky as their moderator, aside from being a mom to an adult on the spectrum, is also a special educator and Directress of Bridges Foundation, Inc.

Cecile Sicam leads Family Support Group

The session started with the participants introducing themselves. Most of the participants have pre-teens with autism. Sharing included how to handle older CWAs, and tackling difficult concerns like circumcisions and masturbation.

“We can teach them about doing things in the right time and in the right place,” Teacher Ces advised. “Don’t say -- Huwag mong gawin yan kasi masama.”

Below are feedback from some of the participants:

- “As parents of CWA we must continue our goal for them, be strong, open and accept the situation. The more we accept our child, the easier for us to face the challenges in our life.”

- “We still have a lot to learn even if our child is the eldest among the group.”

- “There is hope, continue to learn and apply to your child what you have learned.”

- “Autism is a never ending process you just shift from one hurdle to another. You just have to take it one step at a time and enjoy victory after the other.”

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Posted in: fsg

EO 417 drives economic independence for all PWDs

Gloria Macapagal Arroyo signed Executive Order 417, directing government agencies to implement wide-reaching economic independence programs for persons with disabilities.

NAPC Logo

The long-anticipated implementing rules and regulations calls for:

(1) the establishment of local Disaster Risk Reduction and Management (DRRM) team composed of four departments -- budget, local government, civil service and national defense. The Implementation Rules and Regulations (IRR) mention about persons with disabilities (section 7.0- 7.3).

(2) The economic independence for persons with disabilities; directing National Anti-Poverty Commission (NAPC) to allocate funds to ensure the implementation of EO 417 and its IRR.

The IRR solidifies inclusive development as part of the national policy agenda.

At least one percent (1%) of all positions in all national government agencies shall be reserved for persons with disabilities (based on RA 10524);

All national government agencies, state universities, government and control corporations and government financial institutions, including LGUs, shall avail of at least ten percent (10%) of their procurements from persons with disabilities;
The accessibility law (BP344) pursuant to section 477 of Republic Act (RA) 7160 (local government code) shall be strictly implemented; and
Government financial institutions shall provide adequate capital and financial support to micro-businesses of persons with disabilities.

Please download the IRR of EO 417 here.

For ASP and other autism advocates, the need to develop the capabilities of adults with autism now becomes a priority. The law protects PWAs and does not cover family members who serve as primary caregivers.

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Posted in: employment,government,inclusion,law

Q&A with Autism Experts - June 2014

"It takes a village to raise a child." This African proverb rings louder for children with autism. The Autism Society Philippines believes that parents should build relationships with a professional compassionate support team who can advise and counsel them, in addressing the myriad of questions they have about raising a child on the spectrum.

"If you have met someone with autism, you have met ONE person with autism." There is no substitute for personal consultations with professionals, which consider traits and behaviors unique to the individual with autism.

As ASP continues to receive questions from parents and family members year-round, we have reached out to the following experts to help answer some concerns on health, education and intervention.

For those with co-morbidities with ASD, which comes first in the diagnosis - ASD or the other condition (e.g. ASD w/ Down Syndrome or Down Syndrome with ASD)? ---Name Withheld

The presence of Down Syndrome (DS) and Autism Spectrum Disorder (ASD) is actually that of a “dual diagnosis.” This means that there are two co-existing developmental disabilities and is technically not a “co-morbidity.” In many of these cases, it would be important to address the target behaviors that have a greater impact on daily care. Most of these behaviors fall under ASD. In the new DSM 5 criteria, this is already acknowledged. Co-morbidities, on the other hand, are other medical conditions (not necessarily a developmental disability) that co-exist with ASD like epilepsy, intellectual impairment and gastrointestinal symptoms.

Dr. Alexis Reyes

Dr. Alexis Socorro L. Reyes is recognized as one of the leading developmental pediatricians in the Philippines. She concurrently concurrently heads the Developmental Pediatrics Section and the Atty. Jose Miguel Arroyo Developmental and Behavioral Studies Unit of the Section of Pediatrics of the UP-PGH. She is an Associate Professor of the Department of Pediatrics at the UP College of Medicine and is a Special Lecturer at the Department of Pediatrics of the Ateneo School of Medicine and Public Health and UP College of Allied Medical Professions.

If a child diagnosed with Asperger's Syndrome could not fit to attend a regular class from a high standard school, will it be helpful if she continues her behavioral therapy sessions instead? Can she stop going to school? Will it greatly affect her behavior and her right to education? ---Karen Villaroel

Ideally, we would want to give the child access to opportunities for social interaction with peers -- which is usually in a school setting. If the child has impairments in cognitive, language and social skills, it may be best to consider a learning institution with a small class size with learning supports according to area of impairment. Also, consider getting help from a speech therapist, especially one versed in Social Thinking, for social skills development

Ms. Cecile Sicam

Cecilia Sicam is one of the 11 original founders of the Autism Society Philippines. She has served ASP in many capacities, as President from 2000 to 2004; and as its current Vice President. Inspired by her PWA son Likas, Ces has been instrumental in the founding of Professionals for Autism Foundation, Inc., Center for Autism and Related Disorders, the Philippine Association for Behavioral Analysis, and Bridges Foundation where she is currently its Directress. She taught SpEd for three years Santa Clara, California; and came back to serve Filipino children with special needs.

What could the OT provide to improve the motor planning? Will music therapy help? The child can already approximate and is eager to verbalize. Is AAC already needed? ---Roschell Chun

Music Therapy has been found to be helpful with almost all children regardless of developmental level or speech level. An augmentative and alternative communication (AAC) would be beneficial (see previous answer). Here is a website that has a lot of motor planning activities that an OT could use: http://therapyfunzone.net/blog/ot/apraxia-or-motor-planning. No matter what, in both cases, the entire team (parents, OT, Speech Therapist, Music Therapist, teachers, etc) should work on the same skills and be as consistent as possible across fields of expertise. It is VERY important that the parents work on the homework given by any therapist to the best of their ability.

Ms. Tabitha Kirby

Tabitha Kirby, MA, BCBA received her bachelor’s degree in psychology and master’s degree in special education with specialization in Applied Behavior Analysis from The Ohio State University. As an expert in the field of behavior analysis, Tabitha has worked in various clinical, school, and community settings. As a consultant for families of individuals with Autism, Tabitha led and implemented a variety of home-based programs.

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Posted in: ask-experts

Ang unang pangkalahatang pagpupulong ng ASP Makati

Ang mga kasapi at panauhin ng Autism Society Philippines ay nagkaroon ng isang orientation seminar sa Multi-Purpose Hall ng Cembo, Makati City patungkol sa paksang “Understanding Autism/ Behavior Management and Sensory Integration”, noong nakaraang Sabado, ika-24 ng Mayo, 2014.

Mga kalahok ng orientation seminar

Sa pang-umagang sesyon, Si Gng. Janette Peña, National President ng ASP, ang naging tagapagsalita para sa paksang “Understanding Autism” na tumalakay sa kung paano unawain at maunawaan ang mga taong may mga ganoong kalagayan. Sa panghapong sesyon naman, tinalakay ni OT Erwin Pedrogosa-Bote ng GOTIS (Group of Therapists in South) ang tungkol sa “Behavior Management” sa pamamagitan ng applied behavioral analysis (ABA). Itinuro naman ni OT Kelvin Esguerra ang tungkol sa “sensory integration” at mga angkop na paraan para matugunan ang sensory needs ng mga taong may autismo.

Bilang isang magulang, marami akong natutunan sa mga tinalakay at isa itong malaking tulong sa akin maging sa mga kapwa ko magulang. Batid ko na maging ang mga guro ng SPEd na dumalo ay tuwang-tuwa dahil mas napalawak ang kanilang kaalaman na maibabahagi nila sa kanilang kapwa guro at mga estudyante. Masasabi kong mapalad kami dahil isa kami dito sa Makati na nabigyan ng panahon ng mga taong tumutulong sa kagaya namin na mapalawak ang aming kamalayan at kaalaman bilang magulang na may anak ng ganitong kapansanan. Pinapasalamatan ko ang kanilang katiyagaan at pasensiya sa pagtugon at pagbabahagi ng kanilang nalalalaman. Hinihikayat ko ang mga kapwa ko magulang na kapag may mga ganitong pagkakataon ay huwag nila itong palampasin, dahil hindi nasasayang ang bawat oras ng kanilang pagdalo at hindi matatawaran ang karunungan ng mga taong nagbahagi ng libreng kaalaman sa mga katulad naming mga magulang. Salamat sa Panginoon dahil ito ay isang matagumpay na gawain at nawa’y hindi manghinawa ang mga tagapagturo na magpursige sa layunin nila na ipalaganap ang kanilang kaalaman. Umaasa din ako na maging buo ang samahan namin dito sa Makati para sama-sama naming maitaguyod ang aming adbokasiya na mas maipaalam pa sa lahat ang kalagayan ng mga taong may autism at maisulong pa ang kanilang mga karapatan.

Tungkol sa may-akda. Si Percieveranda B. Villanes ay isang magulang na may anak na may autismo na si Harvey Isrel na ngayon ay may edad 21 taong gulang. Na-diagnose si Harvey sa edad na 3 taong gulang. Si Mommy Percie ay kasalukuyang P.R.O sa ASP Makati Chapter.

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Posted in: chapters

Yoga and Autism

This article appeared on 2 June 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk," by Dang U. Koe, ASP Chair Emeritus.

The Autism Society Philippines has experienced meteoric growth over the last few years, with our reach spreading to many parts of the country. With the reach comes the happy discovery of many new and interesting ways families who live with autism relieve stress and find balance in their lives. ASP Sta. Rosa chapter president, Olive Medina, a certified yoga teacher by Rainbow Kids Yoga International and Yoga Vidya Gurukul is this week’s Angel Talker.

*****

STRETCHES FOR STRESS RELIEF — For children with autism like (from left) Airam Cinco, Kyle Gutierrez, Kyle’s neuro-typical sister Beatriz, and Noelle Cruz, yoga can provide many benefits.

As a mother of a child with autism, I was initially drawn to the practice of yoga for its stress-relieving benefits. Families who are living with someone on the spectrum would definitely understand that life can be at times challenging and stressful. I started the practice of yoga five years ago and my life was never the same. I became more relaxed, peaceful and accepting of things and people surrounding me. I realized that my son and other persons with autism very likely go through their share of anxiety and yoga can benefit them in the same way it helped me.

I introduced my son with autism, as well as his younger sister, to yoga a year ago; and the benefits have been pronounced.

Yoga naturally provides sensory integration, as it is done in a relaxed and non-competitive environment. One would only discern soothing music, massages, calming voice from the teacher and smooth mats. Less sensory stimulation makes persons with autism more relaxed and they are less likely to exhibit uncontrolled behavior.

Yoga can help persons with autism learn self-regulation. As they become more aware of their bodies and breathing, they begin to develop coping abilities when they feel agitated or upset.

Yoga develops physical strength and motor abilities. Persons with autism oftentimes have delayed motor development, which can be improved as yoga helps tone muscles, provide body awareness and coordination.

Yoga can improve social skills. Yoga for kids and those with autism are modified to include many opportunities for social interaction. There are games and partner poses where persons under the spectrum can develop and refine their social skills.

Yoga involves a lot of breathing exercises that calm the nervous system. When persons with autism feel comfortable with their body, their behavior generally improves.

Specific yoga poses can address specific body problems like gastro intestinal problems. A lot of people in the spectrum usually have problems with their digestion and yoga poses can help address this.

Members of the Autism Society Philippines from Sta. Rosa Laguna have begun to reap the benefits of yoga and have discovered a unique bonding activity for families.

“Yoga is very beneficial to our persons with autism,” Evangeline Cruz observes. “Noelle has been doing that every day in her school in NJ when she was seven to nine years old. It was a part of their physical therapy, it was not the usual yoga with meditation but it was focused on balance and teacher imitation with the different poses.”

Marie Faith Alvarez shares, “For our Caryll, it made her more relaxed and calm. Yoga helped her develop her motor skills, confidence and social skills. Yoga is best for family bonding.”

“We hope that we can continue with the yoga activity. We know that yoga can help Justin gain many benefits particularly in developing his motor skills and self-regulation,” said Vicky Erolin.

“My son Francis and I enjoyed the yoga activity conducted by ASP Sta. Rosa in our clubhouse,” declared Leah Pelegrina. ”He was allowed to run and move around. It’s playtime for us! The massage and quiet time session helped him relax.”

(ASP institutional member, Center for Autism and Related Disorders will hold the 3rd Good Autism Practice Conference: “Autism Across the Ages” on June 29. For inquiries, email goodautismpractice@gmail.com. Follow Autism Society Philippines on Facebook, Twitter and www.autismsocietyphils.org.com.)

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Posted in: angels-talk,chapters,community,health,regional

Unified DancExercise Party

Let’s get physical! That’s how we’d shout out for this activity held at the SM Sucat 3rd Floor Activity Area last May 24 at 10:00am. Dubbed as the “Unified DanceExercise Party” - the kids, the parents, siblings and therapists, not to mention the grandparents and caregivers, participated in the highly energetic dance party led by two very lively and well-coordinated dancers. We danced to the latest dance tunes and sweated it out while having so much fun. It was an activity meant to introduce us to Special Olympics Philippines, where children are able to participate, perform and achieve.

Unified DanceExercise Party Group

Truly, activities such as the DanceExercise Party and the Special Olympics inspire our special children to dream, perform beyond their current abilities and feel the triumph and fulfilment of achieving so much more. For the parents, it provides a sense of comfort that their kids are capable of aspiring and working hard to attain their goals, no matter how big or small it may be. The family is provided an opportunity to support the special children in this worthwhile endeavour.

Thank you to the children for doing their best and for a job well done and thank you to organizers and parents for providing a place for the children to be themselves and do more!

About the authors:

Imee Alviso is a full time housewife, a mother and sometimes a father because her husband works abroad as a website designer for 15 years now who comes home monthly. An operating room nurse at Saint Lukes before who resigned to give priority to her family. Imee is an ASP member for almost 12 yrs now - she was treasurer of ASP Metrosouth and now President of ASP Parañaque.

Jennah Suarez is a Mom 24/7. While balancing family and career, she managed to pursue her studies and ventured into several businesses. She now aims to be more involved in issues closer to her heart and help her child Jerice and children with autism to cope, be productive and gain acceptance.

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Posted in: chapters,community,special olympics,sports

The Third Good Autism Practice Conference

The Center for Autism and Related Disorders, Inc. – Professionals for Autism Foundation, Inc. (CARD, Phils. PAFI) will be having a one-day enablement entitled “The 3rd Good Autism Practice (GAP 3) Conference” on 29 June 2014, Sunday, 8am to 5pm, at UNILAB Bayanihan Center, Pioneer Street, Mandaluyong City.

The speakers include Dr. Alexis Reyes (Developmental Pediatrician), Dr. Juan Rapadas (Clinical Psychologist), Ms. Mae Sadicon (Speech-Language Pathologist), Ms. Lady Suarez (Occupational Therapist), Ms. Sunny Escareal-Velasco (Academics and Programs Director, CARD, Phils-PAFI), Ms. Cecile Sicam (Directress, Bridges Foundation, Inc.) and Ms. Matec Villanueva (Chief Executive Officers, Publicis Manila)

REGISTRATION DETAILS:

Foreign Participants
Early Bird Fee - $ 100.00
(until June 10, 2014)

Regular Fee - $ 150.00

Local Participants
Early Bird Fee - Php 2,500
(until June 10, 2014)

Regular Fee - Php 3,000

Registration fees include conference kit, certificate of attendance and lunch. For more details please visit CARD, Phils. –PAFI.

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Posted in: conference,partners